HELP! remicade side effects?

hey everyone
i got off steroids in between infusions of remicade, so they had to give mee an iv steroid before the remicade infusion. that was yesterday. today, about mid morning during school, i started to have what i think is muscle pain in my left shoulder. eventually, it was my whole arm and part of my back and i couldnt move that arm, much less carry anything on it. and this whole time im in excrutiating pain and couldnt move my upper body, except my right arm. i had my mom call the doctors and they think its a reaction to the steroid and to take benadryl. so around 4 i was able to get some. so i fell asleep around 6ish cause of that but when i woke up at 8ish i couldnt move either arm i cant grab anything with my right hand with pain. does anybody have similar problems? what else can i do?!

I had something similar with joint pain with remicade in my elbow and forearm and its very painful and its hard to lift things
I am waiting for results to see if I have developed antibodies to remicade
its possible that you are going through the same thing
when did you have your first infusion
you should get tested for antibodies
also, for the next infusion get premedicated with benadryl and tylenol instead of steroids to rule out a steroid allergy
(The only downside is that you will not be able to drive yourself home as you will probably be too tired)

platinumpixie, the left arm is where it started and thats where i had my iv. Dikid, they gave me benadryl and tylenol when they werent giving me iv steroids (i was taking prednisone for my first three infusions, this was my fourth remicade and first iv steroid) i had my first infusion like second friday of june 2015 i think. ki-wi, i want to, but i dont think thats going to happen unless the doctors tell me to go in.

You need to go in to your doctor ASAP
If they won't see you like today than go to the er of a hospital that has an ibd unit

im currently in the er

olivia lynn said...
they admitted me just to observe me over night (going home at 12ish hopefully) they have me on benadryl, ibuprofen, iv fluids, and toradol to control things. they're almost positive i have serum sickness (not sure how its spelled), anyone can get it whether its a vaccine or an infusion. it's just a reaction to whatever youu receive. i would do what i did and go to the er and get checked out from there! let me know what happens or if you have anymore questions. my email's on my profile if youu want to shoot me an email

Here's an article about infusion related reactions to infliximab/remicade. The article is about psoriasis use, but the infusion reactions would be the same.

Review and Expert Opinion on Prevention and Treatment of Infliximab-related Infusion Reactions
www.medscape.com/viewarticle/580215

Delayed reactions are reactions that occur between 24h and 14days after an infusion, the majority occurring after 5-7days. In most cases symptoms include arthralgia (pain in joint), myalgia (pain in a muscle or group of muscles), influenza-like symptoms, headache, tiredness and 'rash' or urticarial (hives).

Serum sickness is an allergic reaction to an injection of serum, typically mild and characterized by skin rashes, joint stiffness, and fever. It's a type III hypersensitivity reaction. Typical symptoms of serum sickness are rash, fever, and polyarthralgias (aches in the joints, joint pains, and multiple joint pain) or polyarthritis (arthritis that involves 5 or more joints simultaneously). These symptoms begin 1-2weeks after first exposure to the agent responsible and resolve within a few weeks after discontinuation. A delayed infusion reaction to infliximab clinically imitates serum sickness.

Treatment with infliximab can result in the development of human antichimeric antibodies, mostly called antibodies to infliximab (ATI). It has clearly been shown that the presence of ATI increases the incidence of infusion reactions.