Just Diagnosed...Don't want to take meds

It is extremely unlikely that you will be able to control the disease without meds, even though a microscopic few may post that they do. You are so lucky that they have caught your UC at such an early stage that taking some extremely safe meds will probably reverse your disease before you get to the true hell where the rest of us have already been and many of us still are. Colon damage heals very slowly and sometimes never heals so the best thing you can do is take your meds daily forever so that worse colon damage does not happen because once it does you will be destined to take harsher meds or live a miserable life for decades until you finally realize that surgery is your best answer. You have the power to make sure that doesn't happen by taking this med forever and yet you're thinking of pissing your exremely good fortune away.

On top of that, from what I understand, the Oncoblot test is pretty good at detecting cancers before they are usually visibly detectable. The reason they didn't find anything during your colonoscopy is because your cancer has not yet reached a detectable level. Not only is UC a risk factor for colon cancer but the med they want to give you not only makes your UC better but it also helps fight colon cancer and you're seriously considering not taking it because you are against "Big Pharma". Your future is grim indeed. Not only will your UC get worse and make you considerably more miserable but before long your cancer will become detectable and they will surgically remove your colon (and possibly also be put on radiation and chemo) in an attempt to save your life but, hey, you will have showed Big Pharma!

You seem to have no clue what a great gift God has given you in showing you a glimpse of the future and the opportunity to change that future course by taking meds to go down a different path but you appear to be squandering that great gift due to your irrational and extremist views. Most of us were never given that chance to see our futures and given the time to cut this off at the pass while we still had the chance.

Gary is so right. Don't wait until you have cancer or severe damage. Don't want to take meds then have your colon removed. That cures UC

I would certainly spend a great deal of time doing some in depth research on both UC & CC. Drugs are certainly not the answer for everyone, you just have to decide what's best for you and your body.

I am curious as to why you got the oncoblot test in the first place if all you had for symptoms was stomach pain. Is that the new strategy for most, or do you have increased risk factors ?

Hope all turns out well. I'm sure it will.

IMO, medications are tools to help troubleshoot the disease. They might help you manage the symptoms until you figure more things out about your UC pathology.

You will find some users who have weaned off successfully, but they addressed the root cause of the disease before doing so. There is emerging data suggesting that some variants of the disease are microbial in nature, and that the good bacteria need help in overcoming the bad. Some have indeed cured themselves through a procedure called fecal transplant.

I encourage you to do your research. You owe it to yourself to learn every possible modality of treatment. Just know that doctors are trained in the pharmaceutical modality, and as such, they will encourage medications only. Be your own scientist here and experiment. You obviously know your body best.

I encourage you to research things like kefir, resistant starches, probiotics, curcumin, fish oil, essential oils, butyrate, hygiene hypothesis, fecal transplants, whey protein, LDN, l-glutamine, Jordan Rubin, Maker's diet, Paleo diet, Jini Patel Thompson.

Good luck.

Post Edited (Guardian7) : 9/20/2015 6:41:28 AM (GMT-6)

Well, you're taking a risk...a big one. Uncontrolled inflammation will harm your body in so many different ways. If your UC becomes bad enough and you still refuse to take meds, then you will likely lose your colon. Either that or you run a great risk of colon cancer which could also lead to you losing your colon. Good luck.

So am I really the only person who is bothered by Gary's grandiose religiousness? I'm sorry, but what place does invoking God have on a UC board? Particularly a God that's invoked in a spirit of spitefulness rather than kindness. I'm blunt, but I don't think I'm spiteful and I certainly don't tell people that they "deserve" to become seriously ill. Imagine the arrogance of thinking that you can read the future in the first place, anyway. Imagine predicting that somebody will get surgery or colon cancer based on no evidence at all.

Edit: I genuinely don't know why I am bothering or even why I am so riled up by this. No, I know why. It's because I'm one of the ones who became seriously ill, despite trying all the sodding meds. The sodding meds that are way, way overrated. Yes, they work sometimes. Do they prevent you from having surgery? No, not if you're a severe case, they most certainly don't.

Post Edited (NiceCupOfTea) : 9/20/2015 7:22:22 AM (GMT-6)

NCOT said...
So am I really the only person who is bothered by Gary's grandiose religiousness? I'm sorry, but what place does invoking God have on a UC board? Particularly a God that's invoked in a spirit of spitefulness rather than kindness. I'm blunt, but I don't think I'm spiteful and I certainly don't tell people that they "deserve" to become seriously ill. Imagine the arrogance of thinking that you can read the future in the first place, anyway. Imagine predicting that somebody will get surgery or colon cancer based on no evidence at all.

You hit the nail right on the head. But be prepared, it is only a matter of time before he accuses you of twisting his words around.

So, a science teacher who rejects science. Interesting. A lot of people come here who decline to take drugs. I seem to see many or all of them coming back month or years later when they're in severe flares that 5-ASA's won't control. Be wary of "big pharma" all you want, but don't cut off your nose to spite your face (as my mama used to say.) The meds do play a positive role in preventing colon cancer. You don't want colon cancer, for sure.

I agree that you should talk to your doctors and do some quality research (not just reading opinions on the internet) about UC. Whatever you decide to do, it should be an informed decision.