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Proctitis pain only when sitting? Doctors say..

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Posted 10/13/2015 1:33 PM (GMT 0)
Hello everyone,

I wanted to ask you guys if the burning pain in your rectum alleviates if you are not sitting for long periods of time or proctitis pain will hurt no matter whether one sits or not.

Thing is, I have had this burning pain since 2010 and have seen at least 4 proctologists.
They first diagnosed hems, but then it was Stress related proctitis. I have had 2 colonoscopies and one with biopsies. I don't have UC. No discharges or blood, just awful pain that bogs me down.

If I avoid sitting, I don't have pain. So, I am starting to wonder whether this is proctitis or just hems.

In any case, I am still trying to find a cure. Tried Anusol HC, and other cortisone sups. It seems to alleviate the burning some, but as soon as I have a long sitting at the desk for work then I start to slowly be in pain.

For a couple of months it seemed that I was back to normal, but the burning from sitting came back.

Not sure who to see anymore or what to do. ( I went full vegan and exercise regularly to no avail)

Please let me know what you think. Thanks a lot!
Posted 10/13/2015 1:48 PM (GMT 0)
Have you tried using those "donut" pillows they have for hemmies? That would be information for you (works/doesn't work) whether it is hemmies or not. If it doesn't work then you can look for another possibility.
Posted 10/13/2015 2:34 PM (GMT 0)
Hi, I forgot to mention that. Yes, that was my first self prescribed measure.
I have 2 donuts stacked together and they allow me to sit for longer than without.

Should I go see a gastroenterologist?
Posted 10/13/2015 2:43 PM (GMT 0)
Here is a link from Mayo Clinic about possible causes.
www.mayoclinic.org/symptoms/anal-pain/basics/causes/sym-20050918

My first thought was being nerve pain and there are many nerves in that area.
When was your last c-scope? Maybe you need one to look for answers.
Not sure a GI doc is the best one to ask but perhaps he/she can refer you to someone.
Posted 10/13/2015 3:36 PM (GMT 0)
What was the 'stress-related' proctitis about? Did they actually do a scope and see inflammation there?

I have something a bit similar to you right now: rectal pain which gets worse when sitting down. I can't help much because I haven't had any tests yet. Waiting on an MRI scan, but it's likely to be a few weeks away still. In the meantime, you don't need to go the full hog with a colonoscopy: a flexible sigmoidoscopy should do in your case.

PS: Proctitis is a new thing to me and I can't say I'm liking it.
Posted 10/13/2015 3:44 PM (GMT 0)
Nicecupoftea, a proctologist told me that my hemorroids should not be painful and that some people manifest stress in different ways in the body. Some have rectum inflammation from it.
So tired of this. Not sure where else to look. Another proctologist will want to do the same tests and will prescribe the same things. Maybe I should have the hems removed and see how that route goes.
Posted 10/13/2015 6:15 PM (GMT 0)
Look into prostate pain, which can feel like rectal pain on sitting.
BPH or prostatitis.
If it is hemmies try a sitz bath/hot and see if you get relief,sitz may also relieve prostate pain.
Old Mike
Posted 10/14/2015 2:18 PM (GMT 0)
I've never ever heard of 'stress related proctitis', I think you are being fobbed off.

I used to suffer with hemmies for years and they do cause a burning sensation and mega pain! I got a bad nfectin from tearing on my first child that didn't hurt as much as the stranglated piles! So you doctor is talking crap saying they don't hurt. But f it was piles, you can see them and feel them if they are external and feel them wth an inserted finger f internal, they also bleed.

I also have severe Proctitis, and funny enough the piles stopped bothering me when I got UP but I'd say that the Pentasa suppositories help me out.
With proctitis, you bleed and have mucus a lot, urgency, a feeling like you still need to go more when sitting on the lol and some pain, but I would never call it burning pain, more a throbbing dull pain in your rectum, and some left side pain.

Personally, i don't think you have either things, as you don't have any bleeding which is a big symptom of both.
Not to be to intrusive but how far up is the pain? If it's just the outside, could it be an allergy to toilet paper? If it's higher up, you need to demand a scope to investigate what's going good on.
:-)
Posted 10/15/2015 3:32 PM (GMT 0)
Hi Gency,

Well, I went to the gastroenterologist yesterday.
He examined me and suggested I just try a hydrocortisone cream since there is a hem that is protruding. He said that for some people hems are more painful than others and that he agrees with me that it is the hems that are the source of my pain and not proctitis.
I have to say though, that 2 separate proctologists told me that my pain was inflammation of the rectum and that it could be from stress. 3 other proctologists blame the hems.
This GE wants to see how the cream works and then have me in for band ligation using the CRH-O’Regan ligation system to get rid of the couple of internal ones. He said he can't do anything about the external hem. Thing is, the external is not a ball hanging out or anything like that. It is just a little mass saying hello to the world lol.
I will see if the cream takes care of the pain. If it does, it means the external hem is the painful one and there would be no need to ligate the internal hems. If there is still pain after 2 weeks of the cream I will consider the ligation more seriously.
Posted 10/16/2015 11:31 AM (GMT 0)
Oh you have my sympathies, those piles can be so painful! I am surprised they weren't bleeding or itchy on you. I once had an external one that was so stranglulated that it burst open in a hot bath... and omg the relief! The cream will do the trick. Best of luck 😊👍
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