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Posted 11/6/2015 3:53 AM (GMT 0)
Howdy;

I had a fun idea for a thread. Looking around, I see that all of us are in different stages and different places when it comes to our UC and related ailments. Some of us are just coming out of our first flares, while others are veterans are of the condition. As we're all aware, we often feel discouraged or frustrated with our UC and everything that goes with it.

So, here is my idea. To help inspire others, and even to help boost your own confidence, I suggest sharing when things just go right for you. Whether it is something big, minor, in between, feel free to share.

I'll start off.

Yesterday I was able to actually go a full 9 hours in public without having to use the bathroom. First time since my hospitalization that I was able to pull that feat off. The line of work I used to be in, it wasn't uncommon for 8/9 hours shifts without a bathroom break. If I can continue finding this balance, hopefully it will make me less paranoid for when I graduate and re-enter the work force.

Post Edited (MarsRover) : 11/5/2015 11:36:48 PM (GMT-7)

Posted 11/6/2015 6:38 AM (GMT 0)

Alice22 said...
I love this idea! I'm glad you had that good experience yesterday and it has helped you to feel more confident. That's great! My experience is sort of a mixed bag, but I'll share it anyway. Yesterday on kind of the spur of the moment I thought it would be nice for my husband and I to take my mother out to dinner. She's 91 and I'm the only nearby family member, and I'm going on vacation for a week so I thought I'd take her out one last night before we go. I ordered food I hardly ever eat - a sirloin steak with fried onions on top, baked sweet potato, 2 beers, bread, and a bunch of peanuts. It was fun eating like a normal person and everything was so good! And I was pleasantly surprised that I wasn't having any GI issues from all that "bad" food. But, this morning I had to pay the price! (lots of gas and some extra bms.) But it was worth a night of eating and feeling like a normal person, and by noon I felt fine.

That is awesome! I'm glad you were able to have a great night.

Ha, I remember for my birthday I did that. Between the stress of UC and stress from school I needed a "**** it" type of day. Sushi, sake, cake, whiskey, beer, fried rice. Next day my body hated me, but it was worth it, like you said, to feel normal for an evening.

Thanks for sharing!
Posted 11/6/2015 11:27 AM (GMT 0)
Great idea! I have had a busy week full of my regular teaching schedule plus evening rehearsals or concerts every night this week and not once did I have to run out from class or the stage to use the bathroom! In fact I have had only 1 or 2 bm's all week, which is the best week I have had yet during this flare up.
I had been dreading this week because there was no way I could have survived if I was in the shape I was in 3 weeks ago. It takes time, but hopefully this flare is on its way out.
Posted 11/6/2015 8:17 PM (GMT 0)
I have a nice thing to share. I know it's not exactly what you asked for but...
My sister ( who doesn't live at home anymore)
Is making me salmon for dinner tonight.
Isn't that sweet?
Posted 11/6/2015 11:15 PM (GMT 0)
I have two to share:

I had a flex-sigmoidoscopy today and my gastroenterologist said it's the best I've ever looked, only a little bit of redness which was likely just from the prep.

He just got my Prometheus ansr ifx results back and they were excellent. I had zero antibodies to remicade. My remicade concentration was 15 the day before my infusion (anything over 3.7 is great).
Posted 11/7/2015 2:06 AM (GMT 0)

iPoop said...
I have two to share:

I had a flex-sigmoidoscopy today and my gastroenterologist said it's the best I've ever looked, only a little bit of redness which was likely just from the prep.

He just got my Prometheus ansr ifx results back and they were excellent. I had zero antibodies to remicade. My remicade concentration was 15 the day before my infusion (anything over 3.7 is great).

Congratz! I am glad you're doing better.

And Dikid, any positivity can be shared here. I love me some salmon. Bed of white rice, some flax seed, salmon, Texas Pete Hot Sauce, boy howdy. turn
Posted 11/7/2015 2:52 AM (GMT 0)
Awesome, iPoop!
Did kid, hope you had a yummy dinner!
Posted 11/7/2015 3:57 AM (GMT 0)
What a fun idea!

Today I was able to go to my college campus for class for the first time in 3 weeks! I have practically been on my death bed (not really, but it felt like it!) for the past few weeks and it felt great to be out in public again! It was nice being out in the fresh air and having the company of others around me!
Posted 11/7/2015 4:32 AM (GMT 0)

Jan12 said...
What a fun idea!

Today I was able to go to my college campus for class for the first time in 3 weeks! I have practically been on my death bed (not really, but it felt like it!) for the past few weeks and it felt great to be out in public again! It was nice being out in the fresh air and having the company of others around me!

First time I went back to class after my hospitalization was a disaster. I was soo tired and had to run to the bathroom multiple times it was just, ugh.

It does feel great getting that fresh air, that sunlight, and that feeling of freedom again!

Great work on getting yourself out there again. Take it one day at a time and always tell yourself "tomorrow will be even better!"
Posted 11/7/2015 8:51 AM (GMT 0)

MarsRover said...

Jan12 said...
What a fun idea!

Today I was able to go to my college campus for class for the first time in 3 weeks! I have practically been on my death bed (not really, but it felt like it!) for the past few weeks and it felt great to be out in public again! It was nice being out in the fresh air and having the company of others around me!

First time I went back to class after my hospitalization was a disaster. I was soo tired and had to run to the bathroom multiple times it was just, ugh.

It does feel great getting that fresh air, that sunlight, and that feeling of freedom again!

Great work on getting yourself out there again. Take it one day at a time and always tell yourself "tomorrow will be even better!"


do you go to college too right now? we should share horror stories!
Posted 11/7/2015 8:03 PM (GMT 0)

Jan12 said...

MarsRover said...

Jan12 said...
What a fun idea!

Today I was able to go to my college campus for class for the first time in 3 weeks! I have practically been on my death bed (not really, but it felt like it!) for the past few weeks and it felt great to be out in public again! It was nice being out in the fresh air and having the company of others around me!

First time I went back to class after my hospitalization was a disaster. I was soo tired and had to run to the bathroom multiple times it was just, ugh.

It does feel great getting that fresh air, that sunlight, and that feeling of freedom again!

Great work on getting yourself out there again. Take it one day at a time and always tell yourself "tomorrow will be even better!"


do you go to college too right now? we should share horror stories!

I do! I am four weeks away from graduating...well possibly. The week in the hospital and the following 3 weeks I was useless put me so far behind I am not sure I am going to pass two of my classes. sad
Posted 11/7/2015 11:17 PM (GMT 0)
At work On Thursday, I defecated 5 times, and made it to the toilet each time! I also managed to sleep for 4 straight hours last night.

I'll take victories like that any day of the week.

Booooyaaahhh!!
Posted 11/7/2015 11:47 PM (GMT 0)

MarsRover said...

Jan12 said...

MarsRover said...

Jan12 said...
What a fun idea!

Today I was able to go to my college campus for class for the first time in 3 weeks! I have practically been on my death bed (not really, but it felt like it!) for the past few weeks and it felt great to be out in public again! It was nice being out in the fresh air and having the company of others around me!

First time I went back to class after my hospitalization was a disaster. I was soo tired and had to run to the bathroom multiple times it was just, ugh.

It does feel great getting that fresh air, that sunlight, and that feeling of freedom again!

Great work on getting yourself out there again. Take it one day at a time and always tell yourself "tomorrow will be even better!"


do you go to college too right now? we should share horror stories!

I do! I am four weeks away from graduating...well possibly. The week in the hospital and the following 3 weeks I was useless put me so far behind I am not sure I am going to pass two of my classes. sad



Oh wow! You are lucky that you are so close to graduating though! What is your major?
Posted 11/8/2015 12:23 AM (GMT 0)

Phunky_phresh said...
At work On Thursday, I defecated 5 times, and made it to the toilet each time! I also managed to sleep for 4 straight hours last night.

I'll take victories like that any day of the week.

Booooyaaahhh!!

Booyah Kashah! Sleep. Ughhh. The worst feeling in the world is that freaking 45 minute intercept. Sleep for 45 minutes, wake up to the bathroom, 45 minutes...bathroom...it seems just as as you fall asleep your body says "J/k lol" and forces you up again!

Congratz on both fronts. Hopefully you'll be able to get a full 7 hours in good time :)

Somebody said...
Oh wow! You are lucky that you are so close to graduating though! What is your major?

A B.A. in Organizational Management and Leadership. Not quite sure where I am going to take it yet (I was going to apply it towards a career in law enforcement but this condition is an instant medical disqualifier according to the state). So, now I'm taking a step back and re-evaluating. I may be applying for a graduate MBA program or something similar.

What about yourself? What are you in for? What do you want to do? And how has your UC affected it?

Posted 11/8/2015 1:32 AM (GMT 0)
A B.A. in Organizational Management and Leadership. Not quite sure where I am going to take it yet (I was going to apply it towards a career in law enforcement but this condition is an instant medical disqualifier according to the state). So, now I'm taking a step back and re-evaluating. I may be applying for a graduate MBA program or something similar.

What about yourself? What are you in for? What do you want to do? And how has your UC affected it?

Oh cool! You should email me so we don't get this thread super off topic! Were you recently diagnosed with UC? I have had UC since I was a junior in high school and it has greatly affected my studies
Posted 11/8/2015 2:13 AM (GMT 0)

Jan12 said...
A B.A. in Organizational Management and Leadership. Not quite sure where I am going to take it yet (I was going to apply it towards a career in law enforcement but this condition is an instant medical disqualifier according to the state). So, now I'm taking a step back and re-evaluating. I may be applying for a graduate MBA program or something similar.

What about yourself? What are you in for? What do you want to do? And how has your UC affected it?

Oh cool! You should email me so we don't get this thread super off topic! Were you recently diagnosed with UC? I have had UC since I was a junior in high school and it has greatly affected my studies

Agreed. I sent you an e-mail.
Posted 11/12/2015 11:48 AM (GMT 0)
I've been going through a rough time lately, and last night we went to my brother-in-laws for a few oard games and something to eat. They all wanted Indian, I resigned myself to some salted plain rice confused When it arrived I just thought bugger it, nothing's making me feel any better right now, so I had some veggie Korma, mushroom fried rice, half a peshwari naan and a popadom, all washed down with a coke zero! In my eyes I had nothing to lose, I've been living on cup-a-soup and crackers for too long, and it's making me miserable. Plus I have pred hunger!

Granted last night I had a gripey, growling tummy, but only slightly more than normal. I didn't wake up in the night, and this morning I had the most 'normal' BM I've had in months! Seriously, no blood, no mucus, a little urgency, no pain, and I've only been once!

I'm now seriously considering a diet of veggie korma for the foreseeable! turn yeah
Posted 11/12/2015 2:11 PM (GMT 0)
Some of my mini-victories are seen in the rear view mirror (so to speak). When flaring I had to severely control when I could eat anything if I needed to leave the house and drive anywhere, as much as an hour or more in advance which was so difficult. And OMG getting on a plane required days of preparation.

I realized a few months ago that I hadn't been restricting food/liquid intake any more when I ate some ice cream (known trigger for me) and then went out for the day.

Those types of stresses have been slowly disappearing from my mind and I realized that they lived in my mind longer after being gone in my body because UC built up so many walls due to it's unpredictability. My gut has become more trustworthy.

PS to aimz: my gut loves Asian veggie stir fry, not exactly sure what korma is but coconut milk, turmeric and garam masala are like an RX for my gut. Note to self: make it for dinner.
Posted 11/12/2015 8:35 PM (GMT 0)
I'm in remission for a few months now. It's great!
Posted 11/12/2015 10:33 PM (GMT 0)
Despite flaring, actually having and accident today and high anxiety over travel, I got in my car and drove 20 min to my mechanic this morning! You know, like a normal person getting their car serviced. I did it without an accident and in spite of high anxiety. Anxiety and 1 accident didn't keep me from doing normal today. Go me!


This is an awesome thread!

Great news ipoop!
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