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Mucus and gas...whats up?

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Ulcerative Colitis
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Posted 11/17/2015 2:42 PM (GMT 0)
So it seems like I am finally starting to heal since my flare started in July. I got a double dose of remicade 5 weeks ago.

A week after the infusion the blood stopped. I still see pink mucus every so often on the end of the stool. Frequency is averaging around 2...some days 3, some days 1. I get some cramps before I go with slight urgency. So I know I'm still healing.

My only concerning issue is mucus. There are days when there's a decent amount on the stool and then some days none. Every once in a while I pass mucus before the stool or with some gas. Plus my gas has picked up majorly. It's like 5 pm hits and I fart all night long.

I have never had a flare like this and I have never healed like this. Any insight?

I am tapering uceris...1 pill every 3 days. And I am doing cort enemas every other night. Will taper enemas after I'm stable off uceris and after my next 10mg/kg infusion in 2 weeks.
Posted 11/17/2015 3:27 PM (GMT 0)
You can try to limit some complex carbs and see if that helps with the gas
Scd usually helps gas but it only helps symptoms and doesn't heal inflamation and if it is going to prevent you from getting a good balanced diet than it may not be worth it.
Can you try using your rectal meds to help with mucous
Posted 11/17/2015 5:41 PM (GMT 0)
I would say normal during healing because you still have inflammation. I'd suggest upping the enemas since you're tapering the Uceris.
Fibre supplements could help with the possible spasming that could have a hand in the mucus production.
q
Posted 11/17/2015 5:44 PM (GMT 0)
Sounds familiar. I have had the gas thing. Some nights more than others and often to the extent that I can't sleep. It starts out as quite funny but quickly gets un-funny after about the 100th fart. I haven't found a way to fix it, there doesn't seem to be a pattern. I tried eliminating foods to no avail.
Posted 11/17/2015 5:50 PM (GMT 0)
I have the gas thing too. I started using extra strength Gas X (as recommended by my gi) and it's not quite as bad as it was, but from late afternoon on I fart quite a bit. I get pressure from the gas and then when I fart it feels really good. I have zero other symptoms so am just chalking this up as the new normal. Doesn't seem be caused by diet from what I can tell.
Posted 11/17/2015 6:33 PM (GMT 0)
Thanks guys.

@quincy- should I be doing nightly enemas? For how long? I've been doing enemas since July and they never got me into remission. I was nightly til a few weeks ago. It's been remicade at a double dose that's turned the corner on the flare.

I take benefiber every am and pm w my Vsl. Should I try another fiber? Also I take 20mg bentyl for the spasming.
Posted 11/18/2015 6:01 PM (GMT 0)
Hi...I'd suggest you at least try the enemas nightly. Start with 2 weeks and go from there. Have you been on mesalamine enemas?

I've never used Benefibre....but if you're not having any cramping or discomfort, then continue with it. Have you tried psyllium in the past?

q
Posted 11/18/2015 9:20 PM (GMT 0)
Hi Quincy. I used to love rowasa. But during my second pregnancy I had a bad reaction to them. I tried them again after but they exacerbate my symptoms now so I had to stop.

I used psyllium fiber until my last trimester but then couldn't get it down. I even tried the pills. I started benefiber then and have had no issues with it.
Posted 11/19/2015 10:34 PM (GMT 0)
TotesMagotes,
Are you avoiding FODMAP foods?
Posted 11/20/2015 12:46 AM (GMT 0)
I can handle some things high in fodmap and can't handle some things low in fodmap.

Diet wise I steer clear of the obvious things but definitely have some things I can't handle when flaring. My diet has always been pretty bland and on the healthy side. Since getting diagnosed I've had to drop raw veggies and change my fruits. But for the most part I don't think food has a large effect on my disease. I may take in too many carbs!
Posted 11/20/2015 12:37 PM (GMT 0)
Bummer about the mucus still. It could be food, or it could be inflammation, it is so hard to tell. I second Q's suggestion for nightly enemas for two weeks. It might be all you need to kick this flare up to the curb for good. Hope it goes away soon!
Posted 11/20/2015 7:58 PM (GMT 0)
Def taking q's advice. Started nightly 3 days ago. Things are getting better. Now if my period would just get here so things could balance again! I hate hormones.

12 days til my next infusion. Let's go let's go let's go!
Posted 11/20/2015 9:13 PM (GMT 0)
I hear you. I am ovulating and feeling pretty crummy today after having had a fabulous week. I have ovarian cysts on my left ovary and that is the one working now and I am sore and bloated today. Such a pain. Hope you stay on the up and up u til your next infusion.
Posted 11/21/2015 2:06 PM (GMT 0)
I get weird around ovulation too! I'm glad you are feeling good otherwise. How is the taper and your symptoms?

If I take weekly look backs I'm doing better each week. I'm grateful. I still can't believe how long it takes to start to get better. This disease is just awful.
Posted 11/21/2015 6:52 PM (GMT 0)
Glad to hear you are getting better. It is a really slow climb back this time. I am doing pretty well with the taper, I am going slowly. Down to 15 mg now and strangely I am getting the shakes from it now. But the puffiness has really gone down.
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