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Terrified of starting enemas

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Posted 12/17/2015 12:46 PM (GMT 0)

Dreadsteel said...
@ipoop Very Big difference


I know. I already clarified/corrected it, and apologized sad
Posted 12/17/2015 1:07 PM (GMT 0)

iPoop said...
Sure thing NCOT. Ack it was able, crap, not unable. Big difference... Sorry...

"At least 80% of patients intolerant of sulfasalazine are able to tolerate mesalamine preparations."

www.ncbi.nlm.nih.gov/pmc/articles/PMC3104151/

Crapp0rz. But in a way that makes more sense, since I have heard that the (relatively newer) mesalazine formulations are much better tolerated than sulfasalazine.

Dreadsteel said...
@NCOT how about using a steroid suppository in conjunction or in alternating days with the mesalamine one ?

No. I'm not talking something which is a systematic poison to my system, I'm just not doing it, not now, not in 10 years' time. I'm not having a go at you personally, but I'm sick of nobody really believing me. You trying to persuade me to take mesalazine shows that you don't really believe me either, just like every doctor and nurse I've spoken to about it.

I'm not keen on steroid suppositories either. I actually tolerate steroids very well, but they stop working 2 seconds after I come off them, so what's the point of them? I can't take them as maintenance meds and the relief just doesn't last.

Edit: Okay, I've tried another suppository. Again, no problems with insertion or keeping it in. If I have no issues with this one, I'll carry on with trying suppositories. If I have no issues with suppositories, I'll try an enema. I'm not optimistic, but I'm at least giving this sh!t a go before ruling it out.

Post Edited (NiceCupOfTea) : 12/17/2015 6:53:20 AM (GMT-7)

Posted 12/17/2015 11:24 PM (GMT 0)
I think you do very well under the circumstances, really, you must be quite a strong person. I hope you had a great day out with your Mom!
Posted 12/18/2015 7:04 PM (GMT 0)
ncot...love the edit. I knew I had it in you! ;-) Keep us posted.
q
Posted 12/19/2015 12:50 AM (GMT 0)
Poppie - Thanks :p Yeah, the Italian restaurant meal was worth the pain - would actually eat there again if I could, the food was excellent.

quincy - I literally had it in me, I might add <_<.

The results weren't encouraging, although - like the first time - just about within the bounds of normal crappiness. I felt like utter turd and passed blood again, although not immediately - I had a few 'normal' BMs first. I just can't help finding it a bit suspicious that the only times I've passed bright red blood in I don't know how long is a few hours after taking a mesalazine suppository. I know fresh blood isn't a particularly alarming symptoms unless there's loads of it, but I'd still rather not have it than have it.

Not really sure what to do next but early signs are I won't be able to tolerate the rectal meds.
Posted 12/19/2015 2:59 AM (GMT 0)
All you can do is continue them for a few days and then stop for a few days.
What were the symptoms why you were starting them? I know you have the rectum intact, but were you bleeding before you started them?

q
Posted 12/19/2015 8:57 AM (GMT 0)
@NCOT too late to ask this but are you allergic to aspirin ?
Posted 12/19/2015 11:41 AM (GMT 0)
quincy - symptoms were urgency, 15-20 BMs a day (I'm guessing a bit really, but I do go many times a day. And night.), abdominal cramping/pain, and generally feeling like crud. Like I've said, bleeding is not a common symptom for me, it never has been. If I had any bleeding at all it would be pinkish-red, not the bright red stuff I saw after the suppositories.

Dreadsteel - I dunno, can't remember the last time I took an aspirin.

I'm starting to become convinced mesalazine intolerance needs to be more widely known about by the doctors and nurses who prescribe this stuff. If it's true that 8% of people have an intolerance reaction, that's not exceedingly rare at all. In fact, that's about 1 person in 12. In the meantime it's not like the mesalazine is harmless to the mesalazine-intolerant person, because it isn't - not even if they are in remission.

www.wjgnet.com/2150-5349/full/v1/i6/132.htm

So yeah, I'm not experimenting with making my rectum even more inflamed by taking drugs I can't tolerate - screw that.
Posted 12/19/2015 6:55 PM (GMT 0)
It's your butt and you know it better than anyone.

Of course, it's widely known people can have salicylate allergies or intolerances or can have serious issues. It's the same with any medication or supplement. It's an option that's available and so much better they've found a way to separate the 5ASA from the sulfasalazine, don't you think?
They've been my miracle med for 27 years.

So you can't use them....a few on here cannot and have had serious kidney issues.

Don't use them and try steroid enemas or suppositories.

q
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