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I oopsed...how long do I have to suffer for it?

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Posted 12/26/2015 11:07 PM (GMT 0)
3 hours of retention is awesome.

Did you ask the doctor to prescribe you steroid enemas? because that's the least he could have done for you. idiot (edit: meaning the doctor, not you).

methscopolamine bromide....are you still taking it? It will help with gut discomfort and slow some of the peristalsis. You have it in your list of meds...

q
Posted 12/27/2015 11:39 PM (GMT 0)
I was never a big drinker, but would drink socially - if out with friends, or at a friends house for a glass of wine, etc. Now, I pretty much avoid alcohol because I noticed that even one drink or one glass of wine made me tipsy and I felt like crap afterwards and sometimes the next day - even though it was just a small amount. I don't know if it is related to my UC/IBS or my age - 42, but I just don't think it is worth feeling yucky.
Posted 12/27/2015 11:44 PM (GMT 0)

quincy said...
3 hours of retention is awesome.

Did you ask the doctor to prescribe you steroid enemas? because that's the least he could have done for you. idiot (edit: meaning the doctor, not you).

methscopolamine bromide....are you still taking it? It will help with gut discomfort and slow some of the peristalsis. You have it in your list of meds...

q

I'm glad 3 hours is considered good. Last night I was only able to do an hour and 15 minutes. I went to bed, woke up, and hoped that when I looked at the clock it would be like 4 in the morning or something. Nope, I had only been asleep for an hour. I thought it's only hard to hold them in when you're very inflamed, and I can't possibly be THAT inflamed already. But who knows.

I totally forgot to even ask the doctor about the enemas. I think I was just like, "Okay, clearly this guy isn't gonna help me" and gave up.

Oh okay, I didn't know that was an antispasmodic. Yes, I'm still taking it. It didn't seem to make that much of a difference, but then again, I've felt that way about pretty much every med I've tried so far.
Posted 12/27/2015 11:56 PM (GMT 0)
"I totally forgot to even ask the doctor about the enemas. I think I was just like, "Okay, clearly this guy isn't gonna help me" and gave up."

trusting your doctor is very important. if you do not trust your doctor it does not matter what his or her credentials are
I see you are located in the midwest and being that the midwest is large it is hard for people to give you recommendations for a GI
if you are near Cleveland I would recommend Cleveland clinic, mayo clinic in Minnesota is amazing too, if you are near Chicagoland I would recommend University of Chicago specifically David Rubin. Peter Higgins practices out of University of Michigan and he is supposed to be excellent.
these places might all be very far from you so the recommendations might be totally off target...
Posted 12/28/2015 12:08 AM (GMT 0)

Dikid said...
"I totally forgot to even ask the doctor about the enemas. I think I was just like, "Okay, clearly this guy isn't gonna help me" and gave up."

trusting your doctor is very important. if you do not trust your doctor it does not matter what his or her credentials are
I see you are located in the midwest and being that the midwest is large it is hard for people to give you recommendations for a GI
if you are near Cleveland I would recommend Cleveland clinic, mayo clinic in Minnesota is amazing too, if you are near Chicagoland I would recommend University of Chicago specifically David Rubin. Peter Higgins practices out of University of Michigan and he is supposed to be excellent.
these places might all be very far from you so the recommendations might be totally off target...

Hi Dikid, don't worry, that wasn't my actual doctor, I guess just my doctor just had him there to answer emergency calls. My doctor will be back tomorrow. Interestingly enough, he always does talk about the University of Chicago, and I had been wondering who exactly to contact from there, so thank you!
Posted 12/28/2015 12:16 AM (GMT 0)
im glad that is not your regular GI :) I am very happy with the care that I have been receiving from U of C. my previous GI was a disaster.
to make an appointment with Dr. Rubin call 773-702-2950 (773-702-1000 is the main line)
Posted 12/28/2015 12:54 AM (GMT 0)

Dikid said...
im glad that is not your regular GI :) I am very happy with the care that I have been receiving from U of C. my previous GI was a disaster.
to make an appointment with Dr. Rubin call 773-702-2950 (773-702-1000 is the main line)

I really appreciate it!
Posted 12/28/2015 1:22 AM (GMT 0)

Circe said...
I was never a big drinker, but would drink socially - if out with friends, or at a friends house for a glass of wine, etc. Now, I pretty much avoid alcohol because I noticed that even one drink or one glass of wine made me tipsy and I felt like crap afterwards and sometimes the next day - even though it was just a small amount. I don't know if it is related to my UC/IBS or my age - 42, but I just don't think it is worth feeling yucky.

I don't think it's worth it either, not at all.
Posted 12/28/2015 1:31 AM (GMT 0)

Cadillacwomen said...
I drink NA beer or orange juice. That keeps people off my back usually. They think I'm drinking. Kaliber is really good.

Oh yeah, sometimes I forget that NA beer exists. The one time I tried beer, I didn't like it, so I probably wouldn't like the NA version! After this episode, I've decided that I'm not going to let that happen again. I don't care whether I fit in or not.
Posted 12/28/2015 1:35 AM (GMT 0)

sherbear46 said...
I myself seem to have more issues with the soda. Fizzy stuff just makes me feel like hell unless of course I'm feeling nauseous from something else and then ginger ale is my best friend in small doses. I certainly can't chug a can of it.

Wine doesn't seem to bother me, I can have one or two mixed drinks and not have too much of an issue since fountain soda seems to be less fizzy.

Some people just can't drink alcohol period. I'm lucky in that I do enjoy a drink occasionally but if I had to cut it out completely it wouldn't be an issue.

I do crave fizzy stuff sometimes! I've been trying to stay away from it ever since my dx, but every once in a while I give in. Like you, if someone told me I could never drink alcohol again, my reaction would be "*shrug* Okay."
Posted 12/28/2015 1:38 AM (GMT 0)

Poppie said...
Yeah, cherries often contain a lot of sulfites, it could have been that. Your story is exactly why I don't want to socialize at this time of year, as people seem hell-bent on shoving drinks at you. I am sure you will be fine in no time at all.

Yeah! I don't know why they insist on it. I mean I do, but come on, just leave people alone if they say no
Posted 12/30/2015 11:09 PM (GMT 0)
Just want to give you guys an update: it's c diff. This is my first time getting it. Feeling bitter and worried, and yes, relieved that it wasn't a flare.
Posted 12/30/2015 11:26 PM (GMT 0)
That's a shame, but at least now you know. I've never had it, but with the right treatment you should soon get it under control.
Posted 12/31/2015 7:13 PM (GMT 0)
c.diff will definitely trigger a flare, so still take the enemas.
What antibiotic are you on?

q
Posted 12/31/2015 7:16 PM (GMT 0)

quincy said...
c.diff will definitely trigger a flare, so still take the enemas.
What antibiotic are you on?

q

Nooo! Really?? I skipped the enema last night. I was so glad not to have to keep doing them. You think it's highly likely that I'll flare now? Even my doctor said "This is a blessing in disguise because it means the Humira is still working." He didn't seem to think I was going to flare after the c.diff cleared up. confused

I'm on vancomycin.
Posted 12/31/2015 7:23 PM (GMT 0)
Up to you.....I like to be prepared just to keep the status quo.

Maybe just do every second night till you're off the vanco.

Keep us updated for sure...

What's the schedule for the vanco?

double your probiotics at bedtime about 2 hours after antibiotics.

q
Posted 1/1/2016 3:40 PM (GMT 0)

quincy said...
Up to you.....I like to be prepared just to keep the status quo.

Maybe just do every second night till you're off the vanco.

Keep us updated for sure...

What's the schedule for the vanco?

double your probiotics at bedtime about 2 hours after antibiotics.

q

The schedule is supposed to be 4 pills a day, 6 hours apart. But it ends up being 4 hours apart if I want to take them all during waking hours. I hope that's okay. I mean, it's not the end of the world if I have to get up in the middle of the night and morning to take them, but I have to have food in my stomach, and right now my stomach does not LIKE food, so I'd rather just take them during the day.

If my probiotic says to just take 1 a day, is it okay to take 2?
Posted 1/1/2016 5:46 PM (GMT 0)
I take 2 of the same, so no problems...they do make 100 billion one as well ;-)
If you can get the reuteri one, that would be a plus for you...eventually.

I've never taken every 4 hours. something to look into. But with food, that'll slow it down a bit, so probably OK.

How long on the vanco?

q
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