Exhaustion while in remission?

Hi everyone, I've been in a fragile remission for 7 months now after a year and a half flare (Been on Azathioprine for a year along with Pentasa and mesalazine enemas which I've been on for just over two years). My symptoms have been on and off all 7 months, it feels like I'm constantly on the edge of a flare up even though i haven't seen hardly any blood since March.

The past few weeks I've been feeling absolutely wiped out, I have Indeterminate Colitis and have pain from my top to bottom on an almost constant basis. I'm feeling sick after i eat, I'm losing weight, i have absolutely no energy and just feel as though i have slight permanent flu. I know my colitis quite well and it feels like I'm flaring, but my bowel movements are normal with no blood or mucus. I rang my GI/nurse before who told me that because my bm's are normal right now and inflammation levels are only slightly off what they should be, there's not much he can do. Does that sound right? How I'm feeling is really affecting my day to day life and I'm struggling with work. I feel like a flare must be coming but it's been two months now and nothing. any tips or ideas?

Post Edited (LeanneRachel) : 12/28/2015 3:23:58 PM (GMT-7)

What does your blood work say? Chances are you're low on iron? Flares can come in all forms, do you have frequency and urgency issues? Inflammation can bring on fatigue as well so it's not surprising you're not feeling full of energy. If you know your blood levels and happen to be low on iron or possibly B12 then you can try bringing those levels up and see if that helps.

I am exhausted all the time, too.

My guess it may be from all the drugs.

My first thought is maybe it's the Aza. I was on 6 MP years ago and had similar symptoms (joint pain, fluish, fatigue). I had to come off it. The only thing is you have been on it for a year. My reaction came 1-2 months on the drug whereas it sounds as if you have been ok on it for a year up until recently.

As far as fatigue goes...I deal with that constantly even when in remission. It's part of IBD for me. Could be that you are starting a flare & it hasn't come out full force yet. I would get your blood tested again including making sure your body is tolerating the Aza properly.

I don't think we'll ever be the same, whether you're in remission from drugs or you have surgery - i don't know about other diseases, but it seems to me that UC just whacks the hell out of a person like nothing else. but what are you gonna do but accept it for what it is - it does indeed suck !