What are your thoughts

I just went to the er in begining of September because hadn't been to a dr for uc in about 5 years and couldn't get an appointment until the end of September. I was about 30 bms a day, urgency, accidents, dehydrated, anemic, down to 92 lbs and I knew I couldn't wait any longer, I begged the Dr office for an appointment and they just said the end of September or go to the er. Well my CT scan showed pancolitis and when the Dr saw my stool sample he asked what it was it was all liquid but dark black. I ended up being admitted and not have a dr that knew much pumped me so full of fluids that I weighed 112 in 3 days from the 92 I was admitted all fluid because I still could not eat anything but stil having about 15 bms a day. My potassium which is usually low that I have to take 3 potassium pills a day every day to being to high. The Dr told me infant of my daughter that I now have a 100% chance of colon cancer. He was going to keep me another day but when I asked about fluid intake I had no ankles or wrist I was so bloated and about my potassium being so high he came into my room after lunch was delivered but I still couldn't eat but I was drinking some ginger ale hoping I could hold that in he just said oh good you're eating you can go home today even though I was borderline transfusion for amenia, but I had the meds I needed prescribed so I left knowing I can take care of myself. 3 days later I was at 102 but able to walk because with all the fluid I could barely walk. The gi dr I went to isn't much better he put down mild ulcerative procolitis even though the colonoscopy he did he put

MILD ULCERATIVE COLITIS LEFT INVOLVED MORE THAN RIGHT COLON.
The perianal and digital rectal examinations were normal.
Inflammation characterized by erythema, friability, granularity,
scarring, aphthous ulcerations, serpentine ulcerations and shallow
ulcerations was found as medium-sized patches surrounded by normal
mucosa in the rectum, as medium-sized patches surrounded by normal
mucosa in the recto-sigmoid colon, as medium-sized patches surrounded by
normal mucosa in the sigmoid colon and as medium-sized patches
surrounded by normal mucosa in the descending colon. This was mild in
severity. Biopsies were taken with a cold forceps for histology. FROM RT
COLON AND LT COLON.,

Impression: - Inflammation was found in the rectum, in the
recto-sigmoid colon, in the sigmoid colon and in the
descending colon secondary to ulcerative colitis.
Biopsied.
Recommendation: - Use Asacol 800 mg PO TID.
- Use budesonide 9 mg PO one time per day.
- Follow up with me in 2 months.
So I really don't know another dr looked at the report and couldn't believe he put mild, and does that sound like ulcerative procolitis to you?

Sorry about the ramble I guess I'm upset that flare was my worst and I had been told I needed to be be hospitalized before but if I followed his orders exactly he would let me stay home. I used to just show up at his office and he would get me right in because he knew I didn't go unless I was bad I was able to handle it on my own for the most part but now with the urgency so bad I know I can't but I don't have a good dr anymore the other one moved away hence my 5 year stay away.

I think it might be called UC instead of UP because it seems to go past the lower sigmoid.

But whether it is procto-sigmoid involved or left sided the treatments are very similar. You are more likely to get rectal meds with a UP diagnosis. Make sure you get oral med too.

Mild/moderate/severe does not relate to the extent of inflammation, but to how angry it is. Your inflammation was in patches (surrounded by healthy tissue) and looked mild.

Mild/moderate/severe describes inflammation, and may not line up with symptoms experienced.

Since your inflammation was patchy, I would have someone look close at the biopsy results to give an opinion on whether you have Chrons-colitis.

Thank you all. I really wish my first Dr. that diagnosed me was still close enough to see but I lost track of even where he went. My town is very small so I will have to search for a dr elsewhere. This Dr saw I could barely get myself up on the table because I so weak and he asked me sarcastically if I was weak, but I knew I needed meds and had no choice at that moment plus I was so weak I had to pull myself up my stairs at home that I didn't walk out. I feel much better now the pain is gone, still have some urgency but not each time and the accidents have stopped which I never had before. I still have about 10 bms a day mostly liquid haven't had formed in years, so I guess that's just me. I was off all meds for about 9 years with diet and stress avoidance I was able to keep flares to a minimum which I thought this one I could also and it just went from me trying tips manage to being the worse I ever was. I now know I will stay on the meds and I will get a better gi that I will see more often. Thank you again for responding it helps to get it out because I am a private person and don't talk to anyone about my uc so I guess I ramble when I get on here.

Coral,

I think you said in another Thread that you live in Upstate NY, I'm guessing that we're not too far from each other, I live in the Hudson Valley. I go to NYC for my GI, he is at NYP Cornell. I've also gone to Mt Sinai but I really prefer Cornell for a lot of reasons, mainly because they take most insurance plans.

Seems like you are flaring, you should add a treatment to your regime like a steroid, either oral or rectal.

No, it's the name of the hospital in NYC, part of the New York Presbyterian hospital network. The 2 major NYP hospitals are Cornell (NYP Cornell) and Columbia (NYP Columbia).

NYP Cornell is affiliated with the Cornell University, the NYP Cornell residents graduate with a Cornell University degree.

That hospital doctor sounds like a total ass. If it was me I'd report his terrible bed side attitude to whomever takes such information. The closest experience I've had to that in an ER was up north YEARS ago when I was getting X-rayd for a nail in the foot and they refused to look at the foot that was bleeding because someone said it was the other foot. They got a talkn' to ;-)

Also, how does he know there is a 100% chance of colon cancer? Sure he wasn't a carnival mind reader? :-D

I agree with the other posters though. It is your health and you have to be responsible for it. Please take care of yourself!

Doesn't sound like UC with patches like that surrounded by normal mucosa.

Is tthe budesonide rectal liquid or foam?

q

I agree with DB with UC.....Crohns colitis fits patchy with clear/visual mucosa symptoms you have. And it's not one area..it's consistent throughout your diseased areas.

Hopefully the biopsies will give more insight.

Do you have copies of your original c-sxope biopsies results?
q

anything from the sigmoid and rectum?

IBD is one of a few.

q

When you see a new doc he might want to take another look and scope you to determine if you have UC. They might also want to do an endoscopy.

As others have mentioned, Based on the patchiness of the inflammation it seems more consistent with Crohns like inflammation.
It is possible to have Crohn's disease that causes colitis.
The medications are very similar for both types of Ibd

Have you scheduled an appointment with a new doc uet? Or at least called your doc to discuss what is going on?

I don't know of any in Ft Meyers.
Try posting it on the Crohns board as well as this board. Hopefully someone will come along from the area with a recommendation.