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Colon looked good on colonoscopy still having symptoms?

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Ulcerative Colitis
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Posted 3/15/2016 3:20 AM (GMT 0)
So, I was having streaks of blood on my stool, occasional diarrhea, increased frequency (4x everyday, once a week 6 or more), thin stools, and some mucous on my stool since november. I tried hydrocortisone enemas for 2 weeks and then started on rowasa which I've been on since december. Although i feel like the enemas stopped it from getting worse, it didn't stop any of the symptoms. I also tried to miralax for awhile too in case it was just a fissure. Anyways fast forward to today...I was rescoped and i was told that my colon looked great from the naked eye (last year inflammation was clearly visible). I'm obviously very happy, but I'm confused as to what is causing my symptoms?? Sorry if this is a dumb question, but can you have a clear scope and then the biopsies come back and show i do still have inflammation?
Posted 3/15/2016 4:06 AM (GMT 0)
there can be microscopic colitis, or IBD-D, or hemorrhoids, or a temporary food intolerance due to gut microbes out of balance ...

specifically ask the GI about symptom control
Posted 3/15/2016 7:16 AM (GMT 0)
Thanks but wouldn't they of seen hemorrhoids on the scope ?
Posted 3/15/2016 11:33 AM (GMT 0)
If you are still having blood showing this is a question for your GI to answer because everything else could be explained by IBS. If your GI does not have an answer that would make me question whether an adequate scope was done from bottom to as far as necessary.

The darker the blood the higher up it came from (generally). My gut bleeds if I eat too much fiber or eat gluten and while this may be called a food intolerance it is UC not IBS.
Posted 3/15/2016 11:34 AM (GMT 0)
Yes, hemorrhoids would've been visible. Ask if anything bad was seen.
Posted 3/15/2016 12:45 PM (GMT 0)
Yea ill ask I had an EGD and a colonoscopy so he definitely saw everything
Posted 3/16/2016 10:51 AM (GMT 0)
I've had this happen too. During my next scope, they took biopsies and found inflammation at the microscopic level. My doctor referred to it as "mild," but apparently, it's enough to cause the exact same symptoms you're describing.
Posted 3/17/2016 11:03 PM (GMT 0)

L Rachel said...
I've had this happen too. During my next scope, they took biopsies and found inflammation at the microscopic level. My doctor referred to it as "mild," but apparently, it's enough to cause the exact same symptoms you're describing.


Thanks! what did your doctor do?
Posted 3/17/2016 11:19 PM (GMT 0)
Did you get the results of the biopsies?

It could also be IBS related. Some people have both conditions.
Posted 3/17/2016 11:26 PM (GMT 0)

notsosicklygirl said...
Did you get the results of the biopsies?

It could also be IBS related. Some people have both conditions.


I got a call Wednesday but I missed it so hopefully tomorrow. I thought that as well but then what would be causing the blood....
Posted 3/17/2016 11:31 PM (GMT 0)
If there were a hemorrhoid or fissure, I would think they would have seen it with the scope (or with their eyes on the outside). If there were inflammation that was extensive enough to cause blood, I would think it would have been visible too. Unless it was a tiny 1cm spot or something along those lines. My first scope ever, I had a 1cm spot that was inflamed in my rectum and it caused bleeding. My GI had to search for it. I am thankful she did because I was bleeding and I wanted to know why. I bet if she did limited biopsies, she may not have gotten that spot and the pathology might have come back normal.
Posted 3/17/2016 11:35 PM (GMT 0)

notsosicklygirl said...
If there were a hemorrhoid or fissure, I would think they would have seen it with the scope (or with their eyes on the outside). If there were inflammation that was extensive enough to cause blood, I would think it would have been visible too. Unless it was a tiny 1cm spot or something along those lines. My first scope ever, I had a 1cm spot that was inflamed in my rectum and it caused bleeding. My GI had to search for it. I am thankful she did because I was bleeding and I wanted to know why. I bet if she did limited biopsies, she may not have gotten that spot and the pathology might have come back normal.


Thanks! Ya I'm just really hoping if there is anything at all it will come back on the biopsy results. If that's my case as well do you think they would just increase the doses of what I'm already taking?
Posted 3/18/2016 7:56 PM (GMT 0)
Biopsy results came back normal...so looks like I'm back to where I started. The nurse said my doctor thinks the blood is from constipation but I have it even when there is no straining. Ugh. Happy biopsies were normal but sick of wondering what's wrong.
Posted 3/18/2016 8:02 PM (GMT 0)
You might have IBS and uc. The blood is puzzling if there's no active inflammation (not even visible in biopsies). Did you ever ask if they saw hemorrhoids? There not far up, even a general practitioner (family doctor) could tell they are there with a white glove...
Posted 3/18/2016 8:10 PM (GMT 0)
Yea.... I guess it's the blood that I really wanted an answer for. There was no hemorrhoids or fissures. So I have no clue!
Posted 3/18/2016 8:16 PM (GMT 0)
What color is the blood, is it bright red or darker in color?

The tips of the enemas can cause cuts when you insert them. Make sure there are no sharp/uneven edges on that tip, and add a little Vaseline/petroleum jelly to make it less likely.
Posted 3/18/2016 8:20 PM (GMT 0)
Bright red.... And the EGD biopsies came back normal as well. Ok thanks i will. But I don't think that's it because it was going on a month before I even tried the enemas :(
Posted 3/18/2016 9:03 PM (GMT 0)
Doctors can miss seeing things, they aren't infallible.
notsosicklygirl's post seems to point in the direction of your bleeding coming from a small spot your GI missed. It's gotta come from somewhere, right?

Several years ago I had terrible vaginal bleeding and saw 5 gynecologists, had many tests, X-rays, ultrasounds. None of them could give answers and I became clinically anemic, needed an in-hospital transfusion. Finally the last gyn found it with his finger, a fibroid. Surgically removed it, problem solved.

There are good, bad and excellent doctors in every specialty.
Posted 3/18/2016 9:10 PM (GMT 0)
ugh... yea. I guess I'm going to wait it out. It's only streaks on the stool so idk. i have a follow up with my doctor in 4 weeks and ill see what he says. I really like him a lot. hopefully he'll make more sense of it then the nurse.
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