Frustrated

I'm having an emotional morning , my kids are tired of me being sick and are eager for their usual energetic mom. They keep telling me how badly they want me to feel better it's breaking my heart.

I started having bloody D in the second trimester of my third pregnancy which was around thanksgiving 2015. Had a flex sig (which I offered to do without meds) instead of a full colonoscopy due to the pregnancy. They leaned towards crohns given the appearance of ulcers and some skip lesions. Mri enterography negative. Prometheus labs ($700) said ulcerative colitis.

Anyways after weeks of switching meds and feeling awful I ended up on a long course of delzicol and prednisone while pregnant I tapered it off around the time of delivery (April 11) so I could breastfeed. Symptoms started coming back a little. I don't have much confidence in my GI bc she seems more into hepatic diseases so I paid $350 for an out of network IBD specialist who I met with last week. He said he thinks I have ulcerative colitis, not crohns, and stuck me on Lialda w Rowasa enemas (I could only afford the generic enemas). Have been doing this for four days and feel worse. This morning I've been having horrible cramps. All I do is lay around. I have a newborn a 2 and 4 yo and an active life and husband I can't afford to be like this for weeks. Help? Advice? Im so sick and tired.

Mesalamine is the safest and most effective UC drug, so be very sure before you decide you have a reaction or intolerance. Some do, but the number fo reports here far exceed published data on side effects (even form Independence sites)

The enemas are for urgency and inflammation near the rectum. Depending on your urgency and what they saw on the scope, you might be able to cut down on ememas.

I think a mesalamine usually take 1-4 weeks to do what it is going to do, but can take longer. I got my right an transverse colon cleared by Lialda in about 6 months, but it did very little for my left colon. Slowly over the next 18 months it helped manage my left colon. I did enemas for a while, and when symptoms picked up I did a course of Uceris.

From bleeding I got anemic, and had some iron infusions that helped a lot.

Both UC and CD are generally chronic debilitating disease. Some get early and long remission - most do not. Your active husband is going to have to get more active with the kids, and yall are going to have to plan for months or even years of chronic illness - even if you get managed, there will likely be occasional flares.

It sucks, but the family will need to become a source of support and not one of anxiety. You and you husband might see a counselor on keeping a marriage healthy in the face of chronic illness.

good luck

Cortenemas? stronger then rowasa works for me

HI we suffered very badly for years..kept reading about food..and like Brian above we found wonderful success with this against uc. Its the food you eat and the food you don't eat we found that won the day for us..its just so amazing..its alm,ost hard to relate to you We are down to one med left now,,we got all our ideas on food from uc internet sites like this...so ...we found that it looks like that there is one big group of uc people but within this there are many little sub groups all of which aredifferent but actually can overlap in what they eat...so ies the food you can eat and the food you cant eat. Slowly but surely we gathered a list of foods suitable for our uc or our little group.from other uc people on the net..it took nearly eight months to perfect but it worked..slowly the adverse effects of uc dissapted its the med the food the supplements and the exercise that won the day for us...find the range of foodas to suit you and your body but very importantly find the foods to keep away from...see what people can eat and try these yourself ...some work many don't...carrot appears good for many uc people..look above see the food spoken of here and give it go..at first it should look a bit like baby food a uc gut system needs almost hospital care...try steamed little shards of carrot on their own on a good uc day see if it works...go on net and find others like we did you must exercise..use the net to find what other uc people eat..for food for supplements..uc is extremely reactive to food and it is extremely sensitive to what you eat..its amazing it works..we can run five miles ride ten miles swim surf board ride..anything and all coming from a background of twenty to thirty times a day toileting...the food you eat and the food you keep away from...we got all of this from the net so you can also slow and steady wins the race....

sorry almost forgot...after the worst accidents on the planet ...for years and in sheer desperation we went to food..we thought it was a miracle...but really it was not it was the correct food the correct supplements the exercise and our outward life style of sport and exercise that did it for us...Ok I will give you perfect example of uc sub groups...we use aloe vera serrapeptase and a few other supplemnts but kept seeing uc people who use turmeric as a supplement....we tried turmeric for a week and the guts almost exploded..so turmeric was out for us...that's how all food or herbs is with us..we can only eat some of the things brian eats but would be quite sick from the others...see that's uc..we can now eat a t bone steak and salas vegies with sauce but the right vegies and the right sauce. but you must start off with virtually pulped food...like we did....if you are new to uc and I can only urge you most strongly to at least think about this..i kept seeing this on the net but kept ignoing it for four years...did you know my luved can calmly eat chilli peppers and bell peppers...then we laugh long and loud...how can a uc person eat these...I think its like celebratory victory dance... its the food you do eat and the foods you kep away from...its trial and error..its the supplements you use...and the exercise life style..do everything uc does not want you to do...us wants you to sit in your room in despair so jump up and hug the kids..uc hates the sun outside so go out into the sun its the vitamin d...uc does not like exercise so do a little exercise..uc wants you to be unhappy so grab husbanmd and kids and be happy.....actually you sound just like us.. but hey don't wait 4 years...