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Ulcerative Colitis
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Posted 7/20/2016 3:10 PM (GMT 0)
I need encouraging news. Anyone get rid of cdiff after just ONE course of Vanc/flagyl ? I'm driving myself insane reading about the difficulties and complications. Everyone's hard long journeys make me feel so bad for them and nervous for myself. Since being diagnosed with IBD last November this has been worse and worse and worse. It's the worst year of my life. Hoping to atleast be rid of my GI bugs (have both cdiff and cryptosporidium currently) sooner than later so I can stop stressing and worrying about giving it to my 3 very young babies at home , one of which is only 3 months old.

Post Edited (GMSAF) : 7/20/2016 9:19:25 AM (GMT-6)

Posted 7/20/2016 4:16 PM (GMT 0)
Sorry to hear your are struggling. If uc is one thing, then it's certainly difficult and unpredictable. Cdiff isn't my area of expertise, so I'll defer/punt.
Posted 7/20/2016 5:06 PM (GMT 0)
I have done some reading on this so I will share what I know. Whatever you do I would work with your doc. My guess is the antibiotics will knock it out and I wish you the best. Hopefully others with experience will share.

Berberine has been shown to prevent CDiff relapse in animal models treated with antibiotics. Some people use it for colitis. I tried this for my active UC but didn't stick with it, it seems to increase my bowel movements and it gives me insomnia. For that matter berberine is very antibacterial. There are numerous studies published in the national library of medicine on this topic.

There is a non virulent "probiotic" form of clostridium (clostridium butyricum miyairi) This bacteria has been tested in laboratory and clinical settings for years. It has been shown to be quite safe, it does NOT produce botulins or neurotoxins, etc that other clostriduim species produce. In hospitals in Japan, it is standard practice to give this probiotic during and after antibiotic administration as a prophylaxis against Cdiff infection. It is thought to work by competing with or displacing CDiff. Wikipedia has a good wright up on C. butyricum or CBM 588.

I ordered CBM 588 off of amazon, not for cdiff, but because I am experimenting with different probiotics for my active UC and because it produces Butyric Acid. I ordered from Japan, delivery is quite slow even with the very expensive expedited shipping.

Sorry to hear of your struggle and hopefully the antibiotics knock it out.

Post Edited (muddytoes) : 7/20/2016 11:10:12 AM (GMT-6)

Posted 7/21/2016 2:12 AM (GMT 0)
I had c-diff and ulcerative colitis at the same time. I was on vancomycin for 14 days, then 5 days later the c-diff was back, tested positive for it, and the doctor said that I can try a different drug the second time around. It was dificid. Worked like a charm. Was on that for 10 days, and the c-diff never came back. I think I caught c-diff from my doctors office. I try not to touch anything there now and wash hands very thoroughly after leaving, etc. Was told dificid is a newer drug that isn't so hard on the gut flora. It wold be expensive without insurance, but on their website they have a copay assistance paper that your doctor can fill out for the pharmacy. With my insurance that brought it down to $15, otherwise my copay would have been $75. My prescription for dificid said that my insurance benefit saved me like $3000 or something crazy. For 10 days of pills! But I was so glad it was finally gone. I've been c-diff free for 6 months now. I think the 1st round of antibiotics was important to kill off a bunch of it, then let whatever bugs are still there re-populate in the gut, then hit them again with another round of antibiotics. Because dificid is so pricey, I don't believe it is ever prescribed at the first option. Only if the c-diff recurs, is it considered by doctors I think. Hope this helps you! Good luck!
Posted 7/21/2016 4:07 AM (GMT 0)
I was able to be clear of cdiff after one round of vanco/flagyl. I got it after being an inpatient and having all of the risk factors. That was Dec 2013 and hasn't reoccurred since. Good luck!
Posted 7/21/2016 11:23 PM (GMT 0)
Another newbie here.
I was diagnosed with Lymphocytic Colitis in 2011. Was put on steroid, not prednisone and it worked. LC free until April 30 of this year. Was diagnosed with CDiff. CDiff was due to over use of antibiotics for UTIs. I'm on a daily regime of cranberry/noni/zinc/manganese for it. Did a round of Metronidazole. Watery stools never quit. Then started a 4 week round on Vanco. Finished it a week ago but they have to wait 2 weeks off meds to test for cDiff. I was still having 5-6 watery stools every day. I read up on the Redmond healing clay, got it and started drinking it. Then read where it isn't as good as Terramin. I started the Terramin 2 days ago and think it is helping. I've only had one rush to the bathroom today. I'm praying to the colon gods this is going to work. I think the CDiff is gone but then the LC flared up due to the irritation of the intestines from the CDiff. Redmond Bentonite is really gooey where the Terramin mixes in water instantly. I don't mind the taste at all. I tell myself it's Cocoa! ANYTHING THAT WILL HELP. I've been making my own kefir, take a lot of probiotics as well. Anyone else have results from the clay?
Thanks!
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