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Ulcerative Colitis
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Posted 8/14/2016 7:50 AM (GMT 0)
So I have not been taking my medicine for about 3-4 months. It makes me a mean person. Weird side effect. I find that if I do all these things in a day I feel great:

1. Drink bone broth
2. Drink homemade kefir from raw milk
3. Drink carrot juice and ginger shots
4. Take beta d Glucan
5. Take vitamin D
6. Don't eat gluten
7. Eat mainly plant based foods
8. Drink Essiac Tea

The tea saved my life. I was in so much pain and couldn't eat for a month. After 3 days of the tea I got my appetite again. This has been what's working for me. The less I do this stuff the more pain I go to sleep with.
Posted 8/14/2016 11:02 AM (GMT 0)
glad this is working for you - but a little reading tells me that for many folks with UC, this tea may not be exactly helpful - but we're all different, so do your research -


what is the extent of your UC teacher ? what meds were you on ?
Posted 8/14/2016 12:56 PM (GMT 0)
It's good that you found something that works for you. It's always a good idea to be on a ulcerative colitis maintenance medication like mesalamine, if for nothing else, to reduce your colorectal cancer risks (mesalamine lowers CRC risks, uc increases CRC risk).
Posted 8/14/2016 2:36 PM (GMT 0)
I was taking delzacol for about 6 months. I'm not sure to the extent I was. Basically I had a colonoscopy. Doctor said I had UC AND told me I had to take pills everyday for my whole life. I don't like that idea that much. My wife was ready to leave me because those pills made me soooo short tempered
Posted 8/14/2016 3:21 PM (GMT 0)
Hi ScienceTeach

Thanks for the essaic tea info. I'm always interested in natural treatments because RX oral meds did nothing to help me. 95% Curcimun/Turmeric caps have been a great inflammation lowering supplement for me.

Please continue to get colonoscopies every 2-4 years to make sure you don't have a colon cancer issue. We need science teachers :-)
Posted 8/14/2016 4:06 PM (GMT 0)
Hi all. I am new. My son was dignored with severe u.c. and is on remicade. He is under the age limit to join these groups so I am learning for him. I am told to absorb as much info as I can. He was in the hospital and then good for a month. Just this past week, I believe we are seeing a flare. Bloody stool, pain and frequent bowel movements (type 5-6) upto 6-7 times a day. Trying to modify his diet, any advise? I know everyone is different but there must be some common distinct foods which I should stay away from or try. Any info is great....thanks
Posted 8/14/2016 4:13 PM (GMT 0)
Thanks for sharing your story. I hope you're bale to stay well with your current treatment plan.

Teacher, did you ever see your scope pathology report? I wonder if it was conclusive. Perhaps you're the lucky one who had Colitis and not UC and it's been eradicated. I hope so.
Posted 8/14/2016 4:28 PM (GMT 0)

Jsson said...
Hi all. I am new. My son was dignored with severe u.c. and is on remicade. He is under the age limit to join these groups so I am learning for him. I am told to absorb as much info as I can. He was in the hospital and then good for a month. Just this past week, I believe we are seeing a flare. Bloody stool, pain and frequent bowel movements (type 5-6) upto 6-7 times a day. Trying to modify his diet, any advise? I know everyone is different but there must be some common distinct foods which I should stay away from or try. Any info is great....thanks

Hello & Welcome! I recommend you start a new thread. Your situation sounds quite different from the one presented by ScienceTeacherJrHigh - as he has never been beyond the first level of meds and your son is on biologics. It's great to try diet, but in many cases, diet isn't the answer. That said, I would definitely give it a try. Many people try SCD or gluten free. However, there is absolutely no proof that gluten or grains have anything to do with UC. Has he been tested for Celiac? I know in my case, I saw zero improvement from changing my diet. I think the best thing you could do would be to go to an IBD center and work with a GI to seek out options. IBD centers have GIs who are often ONLY seeing IBD patients. Sometimes they can offer solutions that other GIs wouldn't be familiar with, often they administrate clinical trials... Sadly, I went to an IBD center and there was still no stopping the progression of my UC. I had j-pouch surgery a year ago and I am thankful to be done with it all.
Posted 8/14/2016 4:42 PM (GMT 0)
"However, there is absolutely no proof that gluten or grains have anything to do with UC. "


just curious K, what's the point of that statement ?
Posted 8/14/2016 6:05 PM (GMT 0)
I am sorry new to this I did not mean to jump on someone else's thread. My apologizes. Thank you for the advice.
Posted 8/14/2016 6:11 PM (GMT 0)
Jssson Google "CBD ulcerative colitis" there are a lot of parents like you who had kids like yours find relieve with CBD. It's cannabis but without the THC. The THC causes the getting high.
Posted 8/14/2016 8:33 PM (GMT 0)
essiac tea sounds interesting, it's the first time i've heard of it. But doesn't it give u diarrhea? one of it ingredients, Indian rhubarb, is a laxative
Posted 8/14/2016 8:41 PM (GMT 0)
Ya there's a lot of stuff out there about Essiac that could tell me it might not be good. I don't have diarrhea problem though. I know some UC patients have diarrhea so I'm not sure if it's good or not. But I will never forget the night, after eating nothing all month and having that tea for two days, when I looked at my wife and said "wow, I'm super hungry ". Appetite came back with a vengence
Posted 8/18/2016 3:17 PM (GMT 0)
@ScienceTeacherJRHigh- Its good that these things are helping you but my personal advice, please don't stop Delzicol. It is the safest medicine for UC. It does not go in your blood. It works Topically. Also reduces colo-rectal cancer risk. Like lot of people take aspirin daily for heart health take Delzicol for your colon. Mood changes can not be side effect of Delzicol. We get depress because of UC and it reflects in our behavior. Try to meditate or do yoga. It might help with depression and overall health.

For me, Asacol was working fine and I made mistake stopping it. Now I have to take 6mp and had to take prednisone for 1 yr which gave me diabetes.

I know when you first get diagnosis, it is hard to accept that you have to take medicine for the rest of your life. I wish I had spent more time getting information about different medicines and what happens if one does not work.

You can keep doing diet changes, probiotics, vitamins with medicine.

Wish you long remission.
Posted 8/18/2016 5:20 PM (GMT 0)
I was fine off meds for 3-4 months doing nothing different at all, I was just living life as normal (less than ideal diet and all). A few more months went by and my flare started and got worse. It's still not gone. I don't think coming off meds is a good idea, just because you have managed 3-4 months doesn't mean that the inflammation isn't there, in fact it could be getting worse, and it doesn't mean that you won't start flaring. Anything's possible, I guess ... and it's good to stay positive about it. It just didn't work for me is all when I tried it once.
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