UC remission?

what type of pain are you dealing with? You shouldn't have any pain while in remission. Remission is the complete absence of symptoms. What medication are you taking for maintenance?

Please be careful with members who say they have a "Cure" and pressure you to have one on one conversation. Sounds like a spammer to me.

He's told his story quite a bit. In fact, he told it in each and every post in multiple forums for quite a while. He needs to start his own topic (or bump an old one) where interested parties can participate instead of chasing people down and pressuring them to email him.

Cured - if you continue to dangle unfounded claims of "forever remission" in front of people and pressure them to email you, you will be banned.

This is the 2nd warning I've given you & I know I am not the only moderator to warn you.

Did you have this pain before this flare or is it new? High doses of pred is very good at stopping pains from all over the body, and as we get to lower doses that pain might return.

Here's the thing. The internet is a place where you can express yourself in many ways. If you really want to get out there and help people, you should volunteer, start a blog, or website and promote it through resources that are freely available to you. For instance, twitter, facebook, instagram, youtube... You could build your own network, you can sell whatever you want, email with whoever you want, recommend whatever you want to whoever you want, without moderators nagging. Here, you are not welcomed if you're constantly repeating the same thing in unrelated topics.

Everyone appreciates alternative ideas and potential treatments, but that doesn't mean they want to be barraged with the same information over and over again. In the past, members have experimented with FT or cactus pads.. Those threads went on and on and still bump up here and there, because people are interested. You're welcome to start your own thread - or bump and old one where you've explained your strategies, but please, do not keep repeating, hijacking and bumping threads if no one is participating or interested. That is spam.

I encourage you to start your own youtube channel or facebook group as an outlet. Maybe you can get some people to follow your protocal and respond with their findings.

What you're doing here is not productive and it's bothering people. Please have some respect.

You realize you just managed to do it again in the post above?

and tbh, TLDR;

notsosicklygirl said...
Here's the thing. The internet is a place where you can express yourself in many ways. If you really want to get out there and help people, you should volunteer, start a blog, or website and promote it through resources that are freely available to you. For instance, twitter, facebook, instagram, youtube... You could build your own network, you can sell whatever you want, email with whoever you want, recommend whatever you want to whoever you want, without moderators nagging. Here, you are not welcomed if you're constantly repeating the same thing in unrelated topics.

Everyone appreciates alternative ideas and potential treatments, but that doesn't mean they want to be barraged with the same information over and over again. In the past, members have experimented with FT or cactus pads.. Those threads went on and on and still bump up here and there, because people are interested. You're welcome to start your own thread - or bump and old one where you've explained your strategies, but please, do not keep repeating, hijacking and bumping threads if no one is participating or interested. That is spam.

I encourage you to start your own youtube channel or facebook group as an outlet. Maybe you can get some people to follow your protocal and respond with their findings.

What you're doing here is not productive and it's bothering people. Please have some respect.

You realize you just managed to do it again in the post above?

and tbh, TLDR;

ya, you're not winning many friends with your presentation - or convincing anyone at this point - give it a rest for a bit maybe -

I feel bad for the new member who started this thread. It has veered way off topic. This is precisely why we don't need people reposting the same stuff over and over. Now the thread has turned into a thread about spamming and how to run a proper personal blog, how to spell.

Many apologies Jillyclink.

Please feel free to continue here, or start a new thread if you prefer.

We need to know what medication you're planning to take for the long-term treatment of your UC. The prednisone is good for a rescue drug, to jumpstart healing, but once you're off, you will need something to keep the condition in remission. Remission doesn't typically last forever, unless there is a potential misdiagnosis... It makes sense that when you discontinue the steroids, if you're untreated, you are likely to have increased symptoms.

Hmm it really sounds like you've maxed out the anti-inflammatory mesalamine with 12 of the 400mg asacol (4,800mgs daily), pentasa enema, and pentasa suppository. The next stop is to add immunomodulators like azathioprine/imuran or 6MP to your current treatments.

Notsosicklygirl/Ipoop..Thankyou so much for your replies. Low down burn type pain is usually every other day and starts by lunchtime and can last for rest of day. Usually take Bentyl and sometimes add a co codamol 8/500. Doc has suggested upping my Amitriptyline from 20 mg to 30mg to see if it helps with pain. Will see gastro in March and see what he suggests re meds, thankyou all that responded xx