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Ulcerative Colitis
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Posted 2/6/2017 4:42 PM (GMT 0)
I was diagnosed in 2006 6 months after I stopped smoking, I have to be fair quit a good run with the odd little blip. My gp just used to put me on a five day cause of steroids and it used to settle. In November last year I felt with a couple of stressful situations at work was also advised by the doctor to take ibuprofen for a sore throats and also antibiotics so had a few contributing factors but I started with flare up only low key to start with now I'm going 20-30 times passing mainly blood I have also developed BAD piles which is adding to my misery I saw my specialist last Monday who increased my steroids to 40mg per day for two weeks to then reduce by 5 per week but stressed that if no improvement by today I was to phone which I did cause there has been no improvement I'm worn out as up most of the night I keep trying to work but struggle I now have to go for a endoscopy tomorrow with a possible stay to go on steroid drip. I have a seven year old so obv I don't want the stay. Just wonders if anyone else had experienced piles by the constant toilet visits and also if anyone else got diagnosed after stopping smoking! Sorry for the long post and thank you for reading xx
Posted 2/6/2017 5:08 PM (GMT 0)
After I stopped smoking, I got diagnosed with UC. I have been in remission now for a couple of years but I also started smoking again.
Posted 2/6/2017 5:14 PM (GMT 0)
Thank you for replying. I must admitt I have been thinking of trying it I have read a few story's of where it has worked! Obv I know it's not good for you but UC isn't either and I really don't know how much more I can stand xx
Posted 2/6/2017 7:31 PM (GMT 0)
I have never smoked, but every time I flare I want to do it just to see what happens. Just can't justify it though.
Posted 2/6/2017 7:42 PM (GMT 0)
I know what you mean, I have read up about it think I'm trying to clutch at anything
Posted 2/6/2017 7:59 PM (GMT 0)
Good luck on your endoscope tomorrow. Do you have an Ulcerative Colitis diagnosis? Have you had a stool test to check for infectious causes to your symptoms?

Some were smokers quit and then got UC, as smoking likely masked the UC symptoms. Smoking tends to thicken the mucosal walls of the intestine, a problem area that is often thinner in UC patients and therefore problematic. However, once the pandora's box of UC is opened up, there is no closing it up again and making it go away. Sometimes reintroducing smoking helps some with symptoms, but it doesn't stop UC or work as your only treatment. Sometimes it helps, other times it makes no difference.
Posted 2/6/2017 8:16 PM (GMT 0)
Than you, yes I was diagnosed 11 years ago done samples showed infection went on steroids and antibiotics re checked and no infection but it's slowly got worse mainly passing blood but also developed bad piles from excessive toilet use. Since I was diagnosed this is my first really bad flare up! I have always taken my medication. I'm from the uk and there has been a story here regarding a young man who never smoked and was on the brink of loosing his bowel he took up smoking 4 cigarettes a day and is completely symptom free I have read a lot for it and obv against thank you so much for your response x
Posted 2/7/2017 3:56 AM (GMT 0)
the smoking generally masks the uc, so quitting is not so much a trigger, as removing a treatment you did not know you had. some can start smoking again, or use a patch, but some get no benefit form going back.

avoid nsaids and take lots of probiotics if you have to take an antibiotic. since you got worse after antibiotics, there is some hope that you could get relief from probiotics - but which ones is trial and error.

good luck
Posted 2/7/2017 6:39 PM (GMT 0)
Hi Becky,
I'm so sorry. I recently went through a really bad flare with bad piles and it was the worst experience of my life. I took the prednisone, 6 mp, smoked a lot (weed and cigs), started the SCD diet and followed it strictly for several weeks took L-glutamine an NAG supplements and finally saw improvement. I quit smoking a few months after recovering from that and am seeing some minor symptoms again. I know the link between smoking and UC is real unfortunately its a double edged sword for us. I think L-glutamine and NAG supplements might help you. Good luck. Hang in there.
Posted 2/7/2017 7:08 PM (GMT 0)
Thank you. Sadly been admitted to hospital today just been told that if I don't respond to treatment I loose my colon so fingers crossed I respond x
Posted 2/7/2017 7:29 PM (GMT 0)
Best of luck to you
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