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what do you do for Tenesmus?

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Ulcerative Colitis
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Posted 2/13/2017 5:43 PM (GMT 0)
This sucks, i get it in the afternoon lately. I dont sit on the toilet but its like these waves that come and go, like cramps too. I guess this is the word
Posted 2/13/2017 9:28 PM (GMT 0)
Tenesmus is not fun. Are you still on the Canasa?
Posted 2/13/2017 9:28 PM (GMT 0)
You could try bentyl, it is supposed to help with the cramping. I tried it once and didn't find it that effective and it made me feel like I was in a fog with a decrease in my IQ. I think with tenesmus the main thing is to get the rectal inflammation under control. You should consider a mesalamine or steroid enema if the cramping is low. Good luck
Posted 2/13/2017 9:44 PM (GMT 0)
UC medications treat tenesmus, especially rectal-route ones. Rowasa enema is stronger dose and goes further than canasa suppositories do. Steroid foams, enemas, and suppositories can also help. Ask your gasteroenterologist.
Posted 2/13/2017 9:50 PM (GMT 0)
I find that steroid based rectal meds work best for tenesmus, but Rowasa also helps.
Posted 2/14/2017 1:40 AM (GMT 0)
ok thanks everyone, yes im still on Canasa, just at night though. Maybe i need to do it during the day too. Actually the one thing that helps is smoking or eating medical marijuana but i dont want to do that really during the day. this is such a strange flare, i dont really bleed. I had blood a few times, its more cramping, loose and solid stools. More like an IBS having to go after i eat definitely rectal inflammation. it sucks.
Posted 2/14/2017 1:52 AM (GMT 0)
I wish I knew the answer to this! Idk if there is a magic pill- wish there were. It's the inflammation that's causing the rectal issues. the more inflammation the harder it is to have control and get rid of that "gotta go/no control" feeling.
Posted 2/14/2017 11:15 AM (GMT 0)
So sorry- it really does suck. I have alternated between steroid supps in the day and Canasa at night. I hope you feel better soon.
Posted 2/14/2017 3:11 PM (GMT 0)
Id suggest you start on the enemas at night and use the supps during the day.
I use an antisposmodic...Bentylol which is same as Bentyl in the US. Started with 10mg, but now use 20mg.


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Posted 2/14/2017 5:24 PM (GMT 0)
Isn't there a prescription medicine specifically for tenesmus? I think it was available about 5 years ago. Sorry I don't know more.
Posted 2/15/2017 3:39 AM (GMT 0)
Nothing ever worked for me, I tried rectals and bentyl, and all the options. In the end, I would just stay on the toilet for prolonged periods to try to head it off. Sometimes it worked. If I rushed, I would always end up back on the toilet 5 minutes later.
Posted 2/15/2017 12:42 PM (GMT 0)

notsosicklygirl said...
Nothing ever worked for me, I tried rectals and bentyl, and all the options. In the end, I would just stay on the toilet for prolonged periods to try to head it off. Sometimes it worked. If I rushed, I would always end up back on the toilet 5 minutes later.

Amen to this. I can't rush being on the toilet, which is infuriating when I'm in a public place and just want to get out as quickly as possible, particularly if the toilets are in a grim state.

I've got a new, fun symptom to deal with now: anal itching. Well, it's not really new but it's been happening a lot more often lately. Had an Entyvio infusion yesterday, so I'm hoping that will make things better.
Posted 2/16/2017 12:28 AM (GMT 0)

NiceCupOfTea said...

Amen to this. I can't rush being on the toilet, which is infuriating when I'm in a public place and just want to get out as quickly as possible, particularly if the toilets are in a grim state.

I've got a new, fun symptom to deal with now: anal itching. Well, it's not really new but it's been happening a lot more often lately. Had an Entyvio infusion yesterday, so I'm hoping that will make things better.

Fun times! I've experienced my share of butt itch. I used to use wet wipes often because I thought they helped prevent butt burn, but the truth is, it was making it worse. Now I powder and try to keep things drier. I've also had it where a hemorrhoid/fissure (i've had it with each) healing, itches like mad. The crap we deal with... redface
Posted 2/16/2017 1:35 AM (GMT 0)
It's rubbish, isn't it nssg? :-/

I think I've got a haemorrhoid or possibly a skin tag. That might be causing the itching. At any rate, I never thought to try powder - I will give that a go! I use calmospetine for butt burn, which does help when things get really sore. But not itching or the minute amounts of leakage that I get.
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