IBD (autoimmune) versus Hypersensitivity/Allergy

I can't help feeling you've been trolling me for the last few posts; I literally do not know what you are confused by.

I remember trying the SCD diet and it just didn't work for me for various reasons, one being that I didn't like the food, it was terrible. However, one of the worse aspects of it, and one which people are probably unaware of is that you are constantly COOKING!! yeah, always, every day, its a nightmare! and one good reason not to do it in my honest opinion, because you spend so much time preparing food that you never manage to get out and socialise with friends.

Lifes too short, I would try some other Meds.

Jane its Poppie not Poopie! ha ha ha

Okay, I hear ya, but all I remember is that for three meals a day I was cooking a LOT, maybe I didn't use my freezer enough, but I didn't like the food much either, and then it turned out I had odd food sensitivities (like salicylates intolerance to name but one!) and so there wasnt much in the SCD diet I could actually eat, so I couldn't stick with it, but I'm glad its working for you.

Poppie said...
Jane its Poppie not Poopie! ha ha ha

Okay, I hear ya, but all I remember is that for three meals a day I was cooking a LOT, maybe I didn't use my freezer enough, but I didn't like the food much either, and then it turned out I had odd food sensitivities (like salicylates intolerance to name but one!) and so there wasnt much in the SCD diet I could actually eat, so I couldn't stick with it, but I'm glad its working for you.

Hehe....you know you have UC when everything starts to sound like Poop!

I agree with you if you don't like the food, it's not going to work. I happen to like the food anyhow. Butternut squash is one of my favorite veggies and I love putting olive oil on everything.

Don't be blue soy...i can still see you!
q 👻

Jane974 said...

I haven't heard of those symptoms from SCD before, including the muscle cramps and dehydration. That does not sound like a typical reaction on the diet. Have you checked your vitamin levels? I can understand some fatigue if you are eating almost no carbs, but aside from that you should not have a lot of fatigue on the diet. The fatigue may be there if you still have inflammation. Have you done a stool test to check for inflammation? Of course the colonoscopy would be even better.

Yeah, I know not all people on SCD get these symptoms. For some reason I do. And again I know it's from SCD because I've been on and off the diet over 20 times. I did have plenty of blood tests and they really only showed a deficiency in iron and hemoglobin levels. Unfortunately, iron supplements never helped, and it is strange because you get plenty of iron on the SCD diet from meat. And your'e right, shouldn't really have fatigue, because you do get plenty of carbs on the diet. I eat fruit and drink plenty of the grape juice, and even vegetables. It's something more to do with biochemistry of the carbs that is affecting me. As I said, if I cheat, those symptoms go away with the regular starches. I had done stool tests too, and the crp levels vary. If I keep taking the mesalamine enemas the crp level is basically normal. But that still doesn't get rid of the diet symptoms. And of course I've tried all the potassium, magnesium, calcium, etc, etc, supplement, but none of it works. If fatigue and dehydration were alleviated I would be okay staying on the SCD.

boris_badenof said...
brucen36: Like others have mentioned there are things on the SCD diet like the Yogurt that I couldn't handle. It seems suitable for you though, except for the "side effects". I would speculate it has to do with the current balance of your microbiome. I couldn't handle resistant starches either, because as I discovered from a stool test, I had pathogenic levels of Klebsiella pneumoniae, among other things.
A cheap shot in the dark ($9 a bottle) would be to try Grape Seed Extract, which can help lower Firmicutes and raise Bacteriodetes. GSE immediately firmed up my stools and allowed me to expand my diet some. When I do introduce new foods to my diet that I am determined to make work, I do in small portions at first and then only every 3 days or so to allow my body to get used to it.

Hey thanks for the suggestion. I already tried the GSE about 6 months ago. As well as another histamine blocker. Unfortunately neither made any difference for me.