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Starting CCHerbal Today:

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Ulcerative Colitis
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Posted 10/16/2013 5:52 PM (GMT 0)

Lialda has a pharmacy card that will cover some portion that your insurance doesn't. search on-line. For me, it made it cost $10/month where my co-pay would have been $100.

Posted 10/16/2013 6:09 PM (GMT 0)
@jc Thanks! Just signed up now and will bring prescription and the printed out temp card and see what kind of magic we can do. Really really appreciate your help on this!!!
Posted 10/16/2013 7:00 PM (GMT 0)
Still comes to $267 with my insurance with the manufacturers insurance? Wonder why. Will try another pharmacy and see if there is a price difference, otherwise just pray new insurance is better that I'll have in two weeks.
Posted 10/16/2013 8:28 PM (GMT 0)

plumsmom said...
Checking in with an update here- had my GI appointment yesterday. Plan is starting today to taper to 30m of prednisone for two weeks, then to 20 then I see him on the 14th. I got a prescription for lialdia. Will see how much it is with current insurance and either start today if it's reasonable or wait two weeks into my new one kicks in if it's a lot cheaper. Current one only covers 80% so if lialdia is as expensive as canasa or asacol - $800ish - then I may hold off just two weeks. Feeling good. Finally had my first stool yesterday after having not gone since Thursday. Very backed up but hoping since I went yesterday it will start to all flow again. Going back on the triphala today since it's a colon cleanser. On fence with CCHerbal. Doc was in the camp of saying didn't think the herbs hurt, didn't push them either. One important thing is that I was told I was taking pred wrong. Was doing half in morning, half at night which is a huge no no. Supposed to all be done in morning. Slept like a champ last night.

Wow, I really need to talk to my GI about taking the pred half in the am and half in the pm. Thats what they told me to do.
Posted 10/16/2013 10:14 PM (GMT 0)
Doctors prescribe prednisone and prednisone tapers all kinds of different ways. I'm not sure there is any right way or wrong way but more seem to suggest taking it all at once in the morning.
Posted 10/16/2013 10:19 PM (GMT 0)
Definitely for me taking it all in the morning meant I slept the full night through for the first time since taking it, which was a week and a half ago. I'll see if the time of dosage change alters how effective its been for me overall. Today, so far, so good so fingers crossed.

Researched my new insurance which will cover 90 days of any med with copay at the very highest ever being $120, so I'll be in good shape to start the lialdia then and just hold status quo with the pred and other stuff I'm doing since I'm feeling good. Of course, if things gets worse, I'll buck up the cash, but if I don't have to, I'm going to wait.
Posted 10/18/2013 3:02 AM (GMT 0)
I'm taking Pred once a day per my instructions. Have been backed up also, finally had clean out yesterday, with some burning & discomfort, tho it was softly formed. Spinach & a few prunes did the trick for me.
Posted 10/18/2013 4:04 AM (GMT 0)
@juklie will up my spinach intake and pick up some prunes to try an help. Already ratings a ton of fruit and veggies but yeah, pretty backed up and not sure what to do. Only one real BM since Thurs. I thought today would be the day since I was home and relaxed and had nothing but time, but no. Started the triphala again which hopefully helps too. Funny how much things can change from going every 15 min to nearly six days...hang in there and keep sharing updates!
Posted 10/22/2013 1:02 PM (GMT 0)
Update on my end: going well with prednisone, since taking it all in the AM sleeping through the night until at least 5A each day. No flare symptoms. Going to start taking Lialda once new insurance kicks in in two weeks.

Only issue is I am very constipated. I only have a BM once every three days. This is not ideal and when I do go it is certainly not 3 days worth of stool. I have tried upping my intake of veggies and drinking plenty of water. I think I'm actually going to start taking the CCHerbal today to see if that makes any changes to my system. I will post updates here. I'm really curious to see if that does anything. I'm not crampy or uncomfortable, it just is very strange.

How is everyone else doing?
Posted 10/22/2013 1:13 PM (GMT 0)
I stopped CCHerbal. It seemed to make me better the first couple of weeks but then I got worse. Since being on pred my days have been completely normal. I go 12 -18 hours all day now without a trip for a bm at all but then I have several bouts of gas in the evening with about 3bms first thing in the morning. After that another completely normal day for 12 - 18 hours again. Even though this has been fantastic I am very disappointed that I don't seem to be heading for a complete remission as I had hoped. To me that is a sign as the pred is decreased I will return to where I was previously.
Posted 10/22/2013 6:00 PM (GMT 0)
I started 20 mg Pred today and taking 3 Lialda per day. I've been having a BM without the help of prunes lately. I did buy enzymes yesterday to try, suppose to help with digesting fat & carbs, did have a 2nd BM after taking one with dinner last nite. Took another with lunch today, so will see if these help or make matters worse, as I taper the Pred.
I've had much better appetite and gained 2 lbs on Pred, having No blood has been wonderful, but am also concerned about my symptoms returning as I taper off it. Thinking about trying CC Herbal again along with Lialda, when I'm down to 10 Pred next week. CC did stop majority of my blood whereas Lialda alone didn't.
Posted 3/26/2017 8:16 PM (GMT 0)

plumsmom said...
My CCherbal came in the mail today and I took the first pill. Will use this thread to post updates.

Currently taking only alternative herbal remedies, slowly trying to get out of 4-5 month flare. Still have b, m, d and some urgency. Some days better than others. Looking forward to see if this helps with some of that in addition to what I'm already doing [see bio below].

thanks for posting this. I'm going to give CCherbal a try. Do you have severe UC?
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