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ulcerative proctitis

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Ulcerative Colitis
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Posted 3/29/2017 9:33 PM (GMT 0)
In a flare right now. I was doing great for 3 months, couldn't have been feeling any better. Went on vacation, exercised by walking every day. All of a sudden, whammy, it hit. Urgency, bleeding and mucous. Going to bathroom about 3-4 times a day. Taking Canasa suppositories at bedtime. Asacol HD 800 mg. three times a day. It just seems I can't get it under control. I take a probiotic also on daily basis. I really can't tell avoiding any foods seem to help. I have tried avoiding milk products, wheat products and nothing really makes a difference.

Probiotic--Prescript Assist
Vit D3
Asacol HD 800 mg 3 times a day
Canasa 1000 mg at bedtime

Anyone have any suggestions? I am due for a scope this year. Have been diagnosed with ulcerative proctitis in the past, but I wonder. I just don't see that anything really helps and can't really tell what starts the flareup.
Doctor just says keep using the medicine. Will be getting scheduled for the scope soon. There has to be something that can get this in control.
Posted 3/29/2017 10:59 PM (GMT 0)
Better call your doctor. I know some people have been successful with food modifications, but I don't think it helps me either. I went gluten free and dairy free at least 6 months ago with no remission except when I'm on prednisone. At the first of the year, I cut out all grains, sugars, and nuts, eating basically meat and cooked veggies, while paying attention to Low FODMAPS, SCD, and the AIP (auto immune protocol) diet lists. Still no remission without prednisone. Not that I don't think restricting my diet didn't help, because it seems like it does, but it doesn't get me to remission.

Everyone here swears by the rectal meds -- the enemas or foam. I haven't tried the enemas, but am in process of getting the foam.
Posted 3/29/2017 11:17 PM (GMT 0)
I second that you need to call the Doc and get in. If youve been on vacation they may also want to do blood work and such to make sure you didn't catch anything viral, bacterial etc.
This is my 2nd major Proctitis flare, this one started in January. I did nothing wrong to bring it on, it just happened. Ive had what Id deem as mini flares, a few days of off and on stuff happening but Id up the Canasa to 2 times a day and it would help...not this time, no not at all.
With any of the UC's everyone responds to food differently. I know that doing a low residue diet has been a help - not a cure, but at least it helps some. Tonight is baked fish and white rice. Woo. its boring as all get out, but this way of eating for me means less trips with the urgent bathroom stuff.
I'm pretty new here so other Veterans with great info will probably pop in.
Good luck to ya
Posted 3/30/2017 11:16 AM (GMT 0)
You are taling asacol 800mgs x 3 = 2,400mgs a day. That's considered to be a maintenance dose. A flare dose is 4,800 mgs, so I'd call your doctor and ask for an increased dosage.

Canasa is 1,000mgs. I'd ask for a rowasa enema instead as it's 4,000mgs and a whole lot stronger. I'd ask for that instead.

Have you used steroid suppositories or enemas? That's another possibility.

Diet modification did absolutely nothing for me. Others swear by it. Results will vary.
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