STORY TIME!

I think the things you do are more about symptoms than underlying auto-immune and inflammation. probiotics that suit you, and anti-inflammatory foods can combat mild inflammation, and can be a maintenance regimen for some.

but advising people that most supplement/vitamin sites, stores, books ... are all a scam is not that far form the truth. maybe it is not about her not know pain. ... and you cannot know what struggles she had overcome.

being a self advocate is important. learning is important. finding what works for you is important. ... your instinct over science viewpoint could kill one of those kids you want to inspire. you sound dangerous to me.

"I think the things you do are more about symptoms than underlying auto-immune and inflammation. probiotics that suit you, and anti-inflammatory foods can combat mild inflammation, and can be a maintenance regimen for some."




and yet all science has done over and over is present us with more drugs ....... to treat the symptoms -

The supplements, diet etc does not have the evidence base that the medicine does. But that does not mean that the evidence base of the medicine is perfect, we know that there are many problems with the pharmaceutical industry, doctors, hospitals and so on. I still think it's our best bet, but I have to say that if diet / supplements / etc works for you, then that's great. I am sure that it will help some people, really as usual the thing that would help all of these arguments is for more large scale and honest research to be done.

I know there are strong feelings from both med-free versus pro-med people here. Let's try and avoid a messy fight and keep it civil in this thread. I'm all for what works for each of us as individuals. And I encourage everyone to at least be on a mesalamine maintenence med in addition to their other treatments.

There are some small scientific studies for various supplements and diets (vsl, tumeric, and others) and some are referenced in our resources thread at the top of this page. It'd be great if there was more study done, but it isn't as thorough.

In the end, if someone is feeling great then let's celebrate as we all know what it's like to suffer with horrid uc symptoms.

Fletch10 said...
if someone is feeling great, then let's be happy for them, no matter what's working! I'd do headstands every day if it made my UC go away ;)

I agree, "no matter what's working" and whether or not it is now considered "scientific".

The reason why I shared this story was because we tend to trust society to hold our hand and guide us in life and do all the dirty work for us... Take this, eat this, etc etc.. Doctors are mostly great at what they do but are still run by pharm/insurance companies.. I don't know about you but I don't want to suffer the rest of my life with these type of symptoms. I want to find a way out without worrying about when my next flare up is. And I want to help you as well.

and many people are dead because of it -

Not on the same page. I don't worry about my next flare because my meds work magnificently. Ive never thought to be cured....because its controlled well.

Regarding death and meds. Absolutely people die from them as they do from using supplements alone and deny themselves meds.
Ive declined certain meds in the past, but that wasnt without an alternative.

q

I never see posts of alternative people judging those who need pharmaceuticals and found success with them. But we need to defend ourselves when the same pro-med posters continually put us down for following “unscientific” alternatives. A good example is just look at the posts in this thread and see how the controversy came about.

Fletch10 said...
imagardener2 is right on. My GI told me early on that "food doesn't cause a flare, but foods can cause symptoms, and symptoms can trigger a flare.

Food can also heal. My liver enzymes were sky high due to some meds I was using and I treated it with plain old milk thistle for 6 weeks----BOOM-----right back into normal range.

I had a bacterial infection and chose NOT to use RX prescribed antibiotics and instead used oregano oil and BOOM---3 weeks later, no infection to speak of.

All of our pharms originally came from natural sources. The word "aspirin" wasn't a coincidence. It comes from Spiraea, a biological genus of shrubs that includes natural sources of the drug's key ingredient: salicylic acid.

Even out strongest opioids come from poppy plants......

There are still many, many great things out in nature yet to be discovered. Let's hope one of them has a CURE and not just a treatment for the symptoms

EDIT:
PS
As much as I love alternative medicine, I have surrendered to the fact that I may just rely on pharms with no judgement on myself.

I spent an entire year trying every single natural remedy under the sun----TWICE-----to no avail. It was a mild flare and was just chronic mucus, but when it turned to blood as well a month ago, I called my GI and agreed to meds. Now, 3 weeks later using rectal and oral mesalamine? a week with ZERO symptoms.

Both have their places......I am never going to limit myself to only natural supplements again. I never should have allowed that inflammation to go on a year, as I now understand doing so is dangerous to my cancer risks.

Post Edited (Katie222) : 4/8/2017 7:08:25 AM (GMT-6)

soynomore said...
" please don't judge those of us who need pharmaceuticals "

please show us where in this thread

Please see my point about no finger pointing and starting wars.

CureUC123 said: "She kept telling me, no research proves it. I told her about this site I'm on and she said, you should probably stop using it, it doesn't have valid information........................"

If you want medical professionals to believe you offer to send them links to research papers online from NIH or other respected sites. When you respond with facts you'll find out whether they are closed-minded. And you will establish you are fact-based in your statements, not blindly believing everything you read on the internet. Some medical pros quit learning the day they got their degree, helps to know who those people are.

As Katy222 correctly points out many RX and OTC meds are based on natural sources.