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Ulcerative Colitis
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Posted 4/13/2017 7:01 PM (GMT 0)
Woke up this morning and had to run to the bathroom. My "no symptoms" are gone, replaced with D and horrible cramping all morning/afternoon. Dr is fitting me in today. I still have not decided between Humira or Entyvio, have a bunch of Q's for the doc before I decide.
And then while I was in the bathroom out my 4 year old decided to give my 1 1/2 year old markers to play with. They are the washable kind, thank goodness, and he was nice enough to draw on only one wall. I had to laugh (and move all markers/crayons to a higher shelf!).
Posted 4/13/2017 7:29 PM (GMT 0)
I just started Entyvio and had my 2nd loading dose yesterday. Feeling really optimistic today, and even had Mexican food last night (chips and salsa!) which I've avoided for quite a long while. Still on prednisone taper, so hard to tell yet, but I'm feeling really strong today so went down to 20 mg pred and will see what happens. Using Canasa suppositories every night for the last month or so, too, so symptoms are really under control right now. After my 1st infusion, I was feeling tired a lot, but the symptoms were also getting a little stronger, so hard to tell if the tiredness was from the infusion or just good ole UC playing around with me.
Posted 4/13/2017 11:37 PM (GMT 0)
I'd try not to panic over 1 days worth of symptoms. We can get stomach bugs like normal folks do.
Posted 4/14/2017 11:19 PM (GMT 0)
I hope your flare ends QUICKLY!! I'm in the dumps right now because I too, had a flare this week, after such a LONG TIME in remission. Good luck to you and God bless you.
Posted 4/15/2017 2:13 AM (GMT 0)
Thanks iPoop, my Dr said the same thing, lol. But I'm continuing to have UC symptoms so I don't think it's a bug, unfortunately.

Gizmo, thanks for your kind words. I'm so sorry to hear you are flaring! I hope we are both able to get back to remission quickly.
Posted 4/15/2017 2:15 AM (GMT 0)
FlowersGal, please let me know how you are doing on Entyvio. I think that's what I am going to try.
Posted 4/15/2017 5:09 AM (GMT 0)
I have a thread "entyvio" that I just updated tonight. 2nd infusion was 2 days ago. Feeling very strong and upbeat since then. I'm daring to hope its the entyvio. My symptoms have been under control since I've been on prednisone. 1,-2 formed BMS a day. No cramping but occasional tenesmus. Cut my pred back to 20 mg yesterday so a few more days will tell if symptoms return.
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