HealingWell
Search Close Search
☰

Is it in my head?

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 5/18/2017 1:25 AM (GMT 0)
My Alblumin levels aren't low, Remicade blood test came back adequate levels of treatment and everything else is looking good.

But, I had an accident last week, went about 6-7x yesterday (less today. Stool is formed sometimes and full blown D other times. Today I woke up with blood mucus and no stool. Feel really sick to my stomach when I have to go to the bathroom, have urgency and feel like I am pushing..but nothing is coming out but I feel like I have to evacuate (is that the right word?)

I was finally down to 5mg of pred but doc bumped it up to 10. Now I'm not sleeping (even tho is not horrible - it's been way worse before). I feel like I can't shut my brain off. Is it just me? Maybe this is the new normal for me. Since my tests are coming back normal maybe it's just stress?

My doc sent me a message telling me we should discuss my pred dosage and ongoing symptoms. I feel like I'm in trouble. I just wanna get off this. Is it in my head?
Posted 5/18/2017 5:10 AM (GMT 0)
Can i ask from out of the blue, what are your eating habits like? How many meals and snacks per day and at what times?

And yes stress is intertwined with the gut. Most of your serotonin is produced in your gut. When your microbiome is out of whack naturally your emotions and stress follow. Do you meditate? Exercise? What do you do to get your mind off of "being a sicko". Excessive worry doesn't help, imho.
Posted 5/18/2017 8:24 AM (GMT 0)
Hi I went through the same thing I was on pred aswell and had alot of side effects aswell!! It's really horrible going through all this but just know you will get through it in the end smile I went off pred onto a medication called Imuran and pentasa for UC and it has been a life saver for me! I have no symptoms what so ever and my tummy is feels perfectly normal now. Just hang in there because everything will work out soon!!
Posted 5/18/2017 9:49 AM (GMT 0)
Is it in my head? Absolutely not.
Posted 5/19/2017 1:09 PM (GMT 0)
My diet? It sucks. I rarely eat a regular meal, eat Mac and cheese once or twice a week, minimal protein. I actually started yesterday eating a little better. Had salmon for dinner with white rice and cooked veggies, made a salad today, grapes for a snack and stuff. Still had blood this am though.

Livv- sounds like this really worked out for you. So glad to hear there are good stories out there!

I don't exercise but I plan to change that and starting today. I know I've said that before but I really need to. My body can't carry this extra weight even if it is just 20-25 lbs. It's time!
Posted 5/19/2017 1:18 PM (GMT 0)
I've deceased my pred down to 15 and am hoping tobringtdoanto0 by next week. I know it's bad to do it myself but I'm just tired of being on it!!!
Posted 5/19/2017 3:36 PM (GMT 0)
"Feel really sick to my stomach when I have to go to the bathroom, have urgency and feel like I am pushing..but nothing is coming out but I feel like I have to evacuate (is that the right word?)" - that sounds like tenesmus. I would recommend a steroid suppository or enema. My GI has given me bentyl before but I didn't feel like it helped - just made me feel foggy.
Posted 5/19/2017 3:38 PM (GMT 0)
Diet absolutely makes a difference. Most people are too stubborn to acknowledge this thinking that if they just keep upping the ante with stronger and stronger meds they'll eventually get better, never bothering to take into account the foods they react to. Diet has become a backburner topic in this forum and it really shows.
Posted 5/19/2017 6:03 PM (GMT 0)
I've found that going on an scd or paleo or whatever diet doesn't put me in remission, but eating off said diet will make my symptoms worse if I'm flaring. Have you tried cutting out all grains nuts dairy and sugar for awhile?
Posted 5/19/2017 9:46 PM (GMT 0)
Diet did nothing for me.
Posted 5/20/2017 4:45 AM (GMT 0)

iPoop said...
Diet did nothing for me.

What exactly did you try iPoop, over what period of time?
Posted 5/20/2017 10:54 AM (GMT 0)
I've been at this UC gig for many years and can't say i remember everything I've tried. I've most certainly tried the most common described diets here and given them ample time to work. I've seen many examples of diet doesn't work for everyone, and it isn't a lack of trying, dedication, or willpower that's the culprit in it not working for us lol (a common claim). UC is extremely individual, and there's no universal treatment for everyone. Everything is hit or miss smile
✚ New Topic ✚ Reply