I cant stop the diarrhea and urgency

Why didn't your doc order a stool test? Is it a GI? That is usually the first thing to check and from what I've read here C. difile can be hard to detect, false negative sometimes. So if you did one a week ago it should be repeated.

2nd question: what RX meds have you been taking before this? You say this is the worst flare so you're not new to UC and should have been taking RX of some kind. Is the Asacol an increase in your dosage? In any event you need a stool test because anti-inflame RX (Asacol, etc) don't fix bugs).

Steroids also don't help C. difficile (if you have that infection) or other gut bugs so if you've tried oral steroids recently and not gotten better that's another indication it may be bacteria.

Fill in the rest of your story by using the "Profile" feature in upper left of the page. That way we don't need to ask basic things each time like: what is your diagnosis, what meds do you take now and tried/failed in past.

Welcome to the forum.

Hi Imagardener2,

I have been able to control the UC naturally. I would sometimes take salofalk suppositories but that would be the extent of the medication I would take. I started a new job this week, and I was worried about the urgency, diarrhea and stomach cramps. So, I thought if I went on some medication it would help with the inflammation. I asked my family doctor to prescribe Asacol. The dosage was way too much for me to tolerate, that's why I stopped it.

Today on my way to work I had to run to the washroom but I was about 3 seconds too late and i went in my pants. It was terrible. I've had this happen multiple times before.

The blood isn't that bad, the diarrhea is very soft stools and the urgency are my main problems. I've had these symptoms for about a year and half and the urgency has gotten worse.

I did a blood test when I saw my family Doctor and the only thing that was low was vitamin d. I honestly am so fed up with this. Yesterday, I had to go to the bathroom at work about 10 times. And each time, it was just a little bit. I was so sore from all the wiping that I couldn't walk properly. I needed to put Vaseline on the area when I got home to have some relief.

I'm sorry if this is tmi

Post Edited (cs2390) : 4/7/2017 8:52:08 AM (GMT-6)

OP: you are undertreating your UC, basically "not treating". I've been in your state of denial in the past and it does not help. Get back to your GI who diagnosed you (who should have scope on file) get a new scope scheduled and then the GI can start you on a new treatment plan since salofalk supps not doing enough.

In the meantime try and get an RX for salofalk enemas and use them nightly. These treat a larger area than the suppositories and should help until you get scope results. Hard to say why you had reaction to oral Asacol, it might be too high a dose to start or just the way your flare is going. Asacol is not an immediate answer for flaring and as Fletch10 said you may need prednisone.

Stop going to your family doc unless they are trained in UC (unless you can get the salofalk enema RX from them right now). Get to a specialist and find out how to get things better.

When you say "the blood isn't bad" that sounds like me (again in denial) because you are focussed on the urgency not blood. The blood is telling you you have high inflammation which is causing the urgency. Fix the bleeding and inflammation and then urgency will lessen.

I'd see a gasteroenterologist to get on some meds you can tolerate and continue your alternatives. As what you're doing now isn't working enough on it's own. Having accidents is a sign of severe inflammation and isn't something to be taken lightly. Accidents and urgency totally suck, I've had my unfair share of them, myself.

Just an update.

I've been able to reduce the urgency now. I stopped taking asacol and resumed the salofalk suppository. I started taking more turmeric which has been helping to reduce the inflammation. I take about 9 capsules a day, 3 with each meal. I don't have stomach pain now, and I have 5-6 bms a day.

I have been trying to drink more smoothies to help gain weight. I've been adding 2 cups of cooked rice, 3 cups of rice milk and 1 banana - 2 times a day. This has caused urgency and very loose stools. I don't know why it's causing me problems, since I'm not adding any gluten and dairy. Any thoughts on why this is happening?

Being intolerant of oral mesalamine (Asacol) but OK using rectal salofalk is confusing. Not doubting you but IMO you should try a different oral med because the oral RX plus rectal RX plus diet modification may all be needed. Don't try to do this the hard way if you can get help using RX meds.

As mentioned earlier perhaps you should try a course of steroids, it doesn't have to me prednisone, there are types like Entocort that target the gut and don't give bad symptoms by being systemic.

Having said that I agree with Jane that removing fiber could help. My gut HATES rice, white or brown (esp.brown) and hates bananas. Two foods that lots of people here swear helps them. But my gut rules so I removed them and other high-fiber foods and life got much, much easier. Just lately I discovered that rice noodles don't cause problems but you should for the moment eliminate rice altogether.

Have you tried potatoes? My gut loves resistant starch (without the fiber in banana) and potatoes are fun to make/eat in many ways. Good luck.

I have made an appointment with the GI for May 16. I'm constantly worried about having to run to the bathroom after eating.

My bm are very soft with a small amount of blood. I'm fortunate that bleeding isn't that bad.

I used to be able to drink a shake with gluten free oats, peanut butter and bananas. That really helped me put on weight. I would drink 2 of these a day. However, after a while i would get extreme urgency and soft stools. After having an accident going to work, I decided to back off them. My weight started to drop so I decided to replace the oats and peanut butter with rice and almond butter. That didn't help.

I don't know why I can't tolerate these shakes anymore. Is it the carbs I can't tolerate anymore?

Hi Everyone,

I went to the GI and was put on asacol tablets 2 x 2 a day. I was also prescribed 4g of salofalk enema. Since the colitis is not that severe, I wasn't put on prednisone. Due to the side effects, they are reserved for more severe cases.

Last night I tried the enema for the first time, it was difficult at first. I was able to put 3/4 of the enema liquid in, but stopped after feeling the urge to go. I was able to retain the enema for a few hours but woke up to use the bathroom.

This morning, however, i was experiencing extreme urgency - more than usual. Am I reacting to the enema? I hate this urgency, it's preventing me from eating and going out. I want to eat, but I'm scared of running to the bathroom after eating.

Enenas often make my 1st bm of the day a little more urgent and loose as not all of that liquid is absorbed. Afterwhich other bms are fine. That's perfectly normal.

Enemas contain sulfates as preservatives and some have intolerances to them. It would be a lot worse. If it happens several times in a row then skip a night and see if the next is better. See if a sulfate-free version is available in your area. I know of sf-rowasa which is sulfate free.

I live in Canada. I hope this will help the urgency, it's the worst !

I'm so sorry for you. I've been there too. My G.I. doctor prescribed Hyoscyamine for the sudden cramps. They worked GREAT in my case...along with my normal Remicade, Delzicol....replaced Asacol, and Dicylomine. They're not intended for long term use I don't think, and they do cause extreme dryness of mouth and eyes. Just put two under my tongue, in my case; but the cramping and urgency would stop very quickly. May wish to ask your doctor about it. Best of luck

Cs.....tell me how many times a day diarrhea. Were you having urgency before the diarrhea started? And how long has this been going on?

Are you still using the enemas? What dosage are they?

q