Almost as bothersome as bathroom trips

PLEASE HELP! for the past 3 weeks straight my skin has been so itchy that I am bruised and scabbed ALL OVER. It started a few days after my 3rd Entyvio treatment so I thought that I was dealing with a side effect or allergic reaction. I treated with hydro cortisone cream and benadryl and it has not eased at all. I told my GI and she only said to continue with the current route I was taking. 2 weeks later I checked back in to let her know nothing has changed and of course, I have not heard back from her.

Doing my own research I came across a possible cause being low iron. Which I know last time that was checked my levels were dangerously low at 2%. I have only been on tablets and have no idea if the levels have come back up. It also mentioned low iron could cause a "whooshing" sound in the ears which just last week I was complaining to my husband that it sounded like there was a fan going off in my head. All of these issues make it very hard to function! As though running to the bathroom in pain isn't enough! I JUST WANT TO SLEEEEEEEP.

Anyone experience anything like this ever? Any other ideas what it could be or how to soothe it? I am about to rip my skin off.

Thank you!!

2%? how are you functioning? You need blood asap or your organs will fail. After you get blood, you need to be on iron therapy - Inectifir

if your UC doc is ok with you being at 2% then you need to re- evaluate him/her. Go see your primary care physician and have him/her get you some blood asap. have you started to loose your hair?

My hair is falling out like crazy. My doc only put me on iron pills and my GI told me my CBC came back "stable". No one has ever mentioned checking my liver counts? This itching is so unbearable at this point I don't know if an ER trip is worth it. I feel like I need some serious help but I don't know how to get it!

I appreciate you all so much!

i agree with the other folks - you really need to get some blood work done - and while you're at it, get some new docs - it does seem like you are not being treated by professionals -

at this point, i wouldn't hesitate going to the ER - just make sure they give you some answers before you leave -

good luck -

JennaLeigh,

Please consider taking iron supplements. I had very low iron (lost a lot hair as well). Product that saved me is Spatone - iron in liquid form, made in UK, easy on stomach, no taste at all...Speaking about skin issues...looks like it is from Entyvio. https://www.entyvio.com/ It is true that people who have UC have skin issues but invasive reaction like this must be body's answer to the ether food or medication/supplements. For now try to apply coconut oil. Also, try to put small amount of apple cider vinegar on affected area (first try only at one small part and see how it works). Hope you'll be better soon.

JennaLeigh said...
Just got some results back from bloodwork that my primary doc ordered and iron has only come up from 2% to 3% in 3 months. Is t appropriate to request iron transfusions rather than oral tablets?

Yes it is.

Oral iron is often poorly tolerated and poorly absorbed by IBD patients. Request an iron transfusion and don't take no for an answer. They're fast, they're safe (at least the newer formulations are; older ones can cause an allergic reaction), and they raise the iron levels incredibly quickly compared to oral iron.