Posted 11/4/2017 8:09 PM (GMT 0)
A little back story on me:
Started having symptoms in Feb 2017.
Saw a GI, got scoped started on mesalamine March 2017 with UC diagnosis
Kept getting worse, added budesomide
Ended up hospitalized in late June 2017
Started Remicade in hospital 1st week of July
Restarted Lialda and prednisone upon discharge from hospital
Immediately started getting worse again.
discontinued Lialda and have been pretty good for the past few months
Recently tapered off prednisone
Now diagnosed with Drug induced Lupus and doc does not want to continue remicade.
Here's my question. I am starting to believe I only got so bad because I am intolerant to mesalamine and after taking it daily for several months it put me in the hospital. I think the Remicade brought me out of that massive flare.
I will be starting LDN once it arrives in the mail from the pharmacy. I am thinking of not starting Entyvio as recommended and just see how I do on the LDN.
The two colonoscopies I had both stated I had mild UC. But my symptoms were severe, once again I believe due to the mesalamine.
Any thoughts from any of you experts??
Any other treatments I could add to the LDN to improve my chances of staying off the biologics if possible?
I really don't have anything against the biologics, but would love to avoid them if I can for a few more years.
Thanks so much!