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Ulcerative Colitis
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Posted 2/3/2018 2:51 PM (GMT 0)
I am on Day 11 of diarrhea, foul smelling, appearance of c-diff many times, sometimes very dark. Took stool specimens in yesterday. I had the symptoms for 8 days before calling my GI Doc. Apparrenty I am just never going to give in to the idea that I have UC, I just keep ignoring everything, hoping it will get better, and it just gets worse...

So what do you do? If you start with diarrhea, do you give it maybe 2 days and then call the Doc?
I hate the idea of jumping to conclusions, but I am TIRED of paying the price for waiting to see if things get better....

Feeling sad, and bored, and sick...

Deacon
Posted 2/3/2018 4:11 PM (GMT 0)
Be prepared with a med regimen....what I do is in my siggie.
Are you on probiotics?
q
Posted 2/3/2018 4:32 PM (GMT 0)
Probiotics- Since my first bout with c-diff I have been taking oral probiotics and eating yogurt consistently....doesn't seem to be helping at all :-(...

I am so exhausted. I typically ride my bike 20-30 miles per day, but haven't been on my bike in 5 days. No matter how much rest I get, it isn't enough...

At least I know when the stool LAB's come back I will know what i am going to do to fix myself. Whether it's Vancomycin for c-diff, of prednisone for a flare, I will at least have some answers. So darn depressing...

thanks
Deacon
Posted 2/3/2018 4:35 PM (GMT 0)
Removing denial was important to my getting better, made me stop making excuses and workarounds that did not improve my quality of life. But it takes time to get to the point of putting your foot down and saying "I will deal with this and if things don't get better then here's my plan."

Many GI's will not have a solution if you call them with "2 days of D" so you should have a plan of action that you know has worked for you in the past, then tell them what you need. Getting that action plan is important. My action plan rarely involves calling a doctor, I have enemas on hand because that's what works for me along with diet mod. Your needs may be different.

Start keeping track of what works for you and denial fades away.
Posted 2/3/2018 7:09 PM (GMT 0)
ya, i rarely ever call the doc - pretty sure as a guy that is the way i was programmed - and the reality is, there really aren't too many options acceptable to me that the doc can offer -

BUT, in the case of a possible c-diff encounter, then ya, seek medical treatment - at the very least, get tested and then decide your course of action -

with UC it's hard to know sometimes when to stay or when to fold -
Posted 2/3/2018 7:33 PM (GMT 0)
If you have C diff again then I would push for an FMT this time. I had C diff and if I ever get it again my plan is one round of antibiotics (Dificid) and if failed then onto FMT. I would hope that it may help the colitis. Also I am relatively new to things so I do notify my doctor within a few days and I have gotten scopes done pretty quickly.
Acceptance is not something I have not conquered yet. I do not want to be on strong medications and that is part of the problem. I am currently trying SCD and Acupuncture for awhile to see if it helps. I think it gives me the feeling that I have some control. It's hard when you don't know what action plan will work for you as I thought I had one in place, but it failed me so I ended up on stronger drugs. You are not alone in this.
Posted 2/3/2018 9:31 PM (GMT 0)
I wait 4-6 days or longer before calling the quack. Want to make sure it isn't a stomach bug.
Posted 2/4/2018 12:12 AM (GMT 0)
NEGATIVE result for C-diff.
Waiting for Calprotectin result to come back.
Still continuing with diarrhea, sometimes very dark, sometimes light and c-diff appearance...
Idk...maybe a stomach virus? It's been 11 flippin days!!
Have seen increasing malaise over the course of this thing...maybe it is a flare...waiting

Deacon
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