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Bad Dexa scan

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Posted 3/23/2018 7:55 PM (GMT 0)
I had my Dexa scan today. Feeling angry, upset, and worried. Ostopenia for my hips and so close to osteoporosis in my spine the report actually said osteoperosis. I have been taking calcium supplements the whole time and am on 50k IU of vitamin d already. I told my GI last week I wanted to start coming of the Prednisone, and he said no.
Posted 3/23/2018 8:02 PM (GMT 0)
How long have you been on pred and how much?

I think that's way too much vitamin D. If you have an excess of vitamin D it can actually take calcium from the bones. Also are you getting enough magnesium? It has to be taken with calcium or bone growth won't happen. I've also read that Boron is great for halting osteopenia.
Posted 3/23/2018 8:16 PM (GMT 0)
Sorry. Did they give you the final numbers or is that only an estimate? When I last had a dexa, I had to wait a week to get results...Curious.
Posted 3/23/2018 8:43 PM (GMT 0)
i'm sure you already know this, but just in case ............ you decide what drugs you take and when to stop - not your doc -
Posted 3/23/2018 10:16 PM (GMT 0)
I am sorry. That is heartbreaking. I agree with Turd. I said no to pred and had surgery. I didn't want to end up with long-term issues from steroids. I probably don't have the best bones either at this point, but at least I will remain pred free. Scary that a lot of doctors don't even check bones.

There have been some posts in the past from members who have had bone issues, like Andrina, and bananagirl (bacongirl).

Hopefully they see this and pop in.
Posted 3/24/2018 3:35 AM (GMT 0)
My vitamin D was low, so my GI did a 7 week prescription for the high dose and then I am supposed to drop to 2 or 3 k a day. I had been taking a boron magnesium calcium combination, but grabbed just calcium a couple of weeks ago. I need to get the other stuff again.
I am aware I can say no to meds, and had pretty much decided to push the issue when I had my upcoming appointment. This seals the deal for me.
The technician just showed me the chart, so I don't have the lab numbers. She told me my spine was right on the border between ostopenia and osteoperosis so she hadn't been sure what the report would say, but she looked and it was just over the line. I just didn't expect it to be so bad already. To answer the question, I was on solumedrol for a week in 2017 and went home on 40 but tapered by 10 a week right away. I spent 3 weeks on Uceris after that. Then in November of last year I was sent home on nothing but steroids, and have been on 20 to 40 mg since. I wanted to come down off of them because I have felt in the last week that I am not just going to spiral down if I do go off of them. I think the Rowosa enemas have helped, and I think the Entyvio is finally starting to help some.
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