the negativity on this forum

Great first post.

You need some more context when reading these posts. Limited/mild UC vs moderate/severe UC. There is a different treatment progression for these levels of disease. Diets to stop a flare for severe UC is an effort in futility. Diets to treat moderate UC may help.

I don't think anyone ever says something won't work for someone, I often state it didn't work for me, but I always encourage people to try whatever they want, perhaps it will work for them.

There are some members who manage with alternative treatments, including diet, but in reality, every case is different, and you need to look out for you.

This is a board full of opinions, and everyone is free to give theirs whether it is negative or positive. We can't stop people from telling you that with a moderate/severe diagnosis, you need to follow the advice of an experienced IBD specialist - and they would be correct to say this in my opinion, but you shouldn't let that opinion stop you from trying whatever you desire.

I don't post in threads about diet/alternatives anymore myself, for the exact reason you stated. I don't want to take people's hope away, but it's interesting, if we all didn't post, it would turn into a bunch of hype & propagate bad advice that would cause people harm. I avoid it though personally, so as to keep people hopeful. Seems like that's what people want, hope, not reality.

We had a member pass recently, and I feel like his hope in treating himself was probably a contributor in his case.

Thank you so much to all of you for such meaningful and wuick responses. Its really made me feel better alrrady joining this forum and gives me hope for others recently joining also. Hope the best to you all and hopefully we can all be in remission one day or even better find a cure in the near future.
Dante Briones-Clarke

I personally dont believe diet or supplements do a thing for my UC, other than help me waste money. I believe in eating a healthy diet for overall good health. It is frustrating to see people come on here and tell you if you eat 100 bananas a day or 3 lbs of spinach and sunflower seeds a day, that you can be CURED. Yes, those posts frustrate me because one,
they are not based on science, two, they are somewhat offensive, because I feel like they dont take into consideration the severity of this disease for many of us, and three, I think they are dangerous for newcomers who may read them and decide to ditch all their meds. I am vegan and I get pissed off when I see plant-based vegans saying if I would only eat plant-based, all my symptoms would magically disappear and I would be cured. That is sensational nonsense. So I guess here is some more negativity for your negative post.

It is what it is and totally depends on your reasons for being here.

My observation is that it's interesting your first posts are to slam the forum.

q

I've discovered almost everything that's ever helped my UC through this forum, in one way or another, and I've always got the impression that people here are very kind and helpful.
Also funny, that always helps.

I love you guys and have found the site EXTREMELY helpful.
Thank you for being here.

I have the same thoughts that Q stated. People tend to stay middle of the road in this forum. But a newbie coming along talking about how negative the forum is, what was the purpose of joining??

"am i just being delusional?"

quite possible but maybe too soon to tell for sure -

and i agree with a few others in that i question your motivation - are you seeking help or just sharing your discontent ?

Certainly a very odd first post. Not sure if the OP is overly sensitive in general, referring to a specific thread that got out of hand, or just upset that not everyone agrees with his/her treatment philosophy with an unquestionable and great gusto/enthusiasm (we have many opinions and beliefs and never say one is 100% right all of the time)? The debate of why a treatment might be right/wrong is part of the interesting bit, to see both sides, have a healthy skepticism and weigh them for yourself. The mods do our best to keep things tame, on-topic, and friendly. There's items that people do get occasionally get snippy/rude about, but we cannot nit-picking-ly edit everything that's posted lol.

There's many differing individual opinions and solutions each of us have here on healingwell. Much like a large, extended family there's occasional squabble and disagreement when you get us all together here, due to some people's passionate belief or experience with a given treatment/suggestion. I think it is that variety that brings folks here, as there's lots of treatment options discussed, often things your gasteroenteroligist may not say or even consider, and double-checking "does this sound right?" has value. There's those you will agree with and those you will not, but at least you get a variety of perspectives to decide however you choose to!

Welcome dantebc. I could not agree more with what you wrote. There are trolls who have haunted this forum for years spreading negativity and resisting change or new ideas. The pro surgery group is especially vocal and vicious at times.
UC is bad enough without the extreme negativity, snarkiness and sniping that goes on here. I came here a few years ago desperate for help and was attacked immediately. I found a routine that all but cured my UC but am always shouted down when I try to tell people here about it. This forum is like a high school class of mean girls most of the time. That being said we must not give up and keep trying to find things that work against this horrible disease. Best to you in your search for a personal cure.

Diet is the only thing that worked for me, so don't let the negativity get you down. Look at both sides and try things yourself. Everyone will respond uniquely. It's very tempting to say what worked for you will work for everyone.