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End of Prednisone taper-- Shaking , muscle cramps , anxiety and fasciculations!!!

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Ulcerative Colitis
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Posted 11/25/2013 7:03 PM (GMT 0)
Hey everybody!!!! So im currently almost at the end of my prednisone taper and did things completely by the book , i took my time at every dosage level and i am currently doing the 5mg one day, 7.5 the next and i am planning to go down to 2.5mg and 5mg every other day starting tomorrow... the problem is im having a lot of anxiety , mini muscle cramps ,shaking and fasciculations and im driving myself crazy with worry , i also have a lot of stress due to exams and final papers coming up, not to mention i keep self diagnosing and making myself believe i have serious diseases confused , i have also been on remicade for 2 infusions ... Anyways just wondering if any of you experienced the same types of things while getting on the lower doses of prednisone?? it would be great to get some reassurance lol

Oh and my UC is feeling great!!! my stomach feels better than it has in a long long long time!!!! so ya it seems like the remicade is really working!! :-)
Posted 11/25/2013 7:11 PM (GMT 0)
Well, if you are doing great, then don't let fear and anxiety take that away from you. As the associated stress can make your uc symptoms worse. It's best to find ways to lower your stress levels when things get to you: exercise, go for a walk, read a good book whatever works for you. Anti-anxiety meds are also available if things are just unbearable.
Posted 11/25/2013 8:32 PM (GMT 0)
Sounds like anxiety and it is normal. The Remicade did the trick. Just get lots of rest and let your body heal.
Posted 11/27/2013 12:35 AM (GMT 0)
Well im really not doing so great , i cant stop shaking and my muscle spasms keep occurring.... Is it possible it's because of the pred taper??? Again , has anyone experienced the shakes , higher heart rate , fasciculations and possibly tremors while on a low dose of pred after tapering??
Posted 11/28/2013 12:25 AM (GMT 0)
Really nobody??? please somebody answer, im desperate for someone who has experienced the same or similar things that i am at the end of the prednisone taper
Posted 11/28/2013 12:30 AM (GMT 0)
Maybe try calling your pharmacist about possible side effects.
Posted 11/28/2013 12:53 AM (GMT 0)
Those sound more like symptoms you would get on starting pred, not stopping it. Check with your doctor to be sure everything is ok.
Posted 11/28/2013 1:14 AM (GMT 0)
are you prone to anxiety type issues normally ? cuz i'd say it's probably the pred - I've only been on pred twice, but it seems like the side effects never went away - at least not nearly soon enough for me - everyone is gonna respond differently, but I don't think what you're experiencing is that unusual -

your body in general is just whacked - uc + freaky drugs = total body weirdout !

I agree with kp - rest is awesome when you can get it - hopefully this will pass soon -
Posted 11/28/2013 3:44 AM (GMT 0)
Get some exercise. Lift, run, whatever, get a good sweat on. Exercise is the best defense against side effects. And anxiety for that matter.
Posted 9/4/2018 1:59 PM (GMT 0)
Josh did you get any answers from your doctor? Because I’m currently having fasciulations in my elbow and my left eye. These never happened before and I don’t know what’s wrong.
Posted 9/5/2018 5:37 PM (GMT 0)
Prednisone always drives me insane whether I'm first going into it or coming off of it. I *always* get out of control anxiety and muscle cramping.

Go grab yourself a bottle of CBD oil. It helps.
Posted 9/5/2018 8:10 PM (GMT 0)
I ended up at the doc twice in one week when I was tapering off Pred convinces I had contracted chicken pox. The anxiety and worry was overbearing. I did not have chicken pox, on either occasion. If you are prone to anxiety then I would imagine it is the Pred and at those levels your own adrenal glands start firing up again. Look at the positives and try focus on them. It’s great your UC seems to be under control.
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