whining

Well, I've been in a flare for around 2 months now. Doctor did some tests and found that I've antibodies to Remicade. I completed a prednisone taper, beginning with 60 mg., use Colocort enemas, mesalamine, and Donnatal. The urgency, spasms, blood, and diarrhea, are a little better, but still there. So...he was going to switch me to Entyvio. He put me in contact with Option Care. A wonderful program where a nurse comes to your home and gives the infusion. Supposedly, it's much less expensive than going to a hospital. Option Care was in the process of scheduling it. Even with three 'good' insurances, they denied it. So, doctor is now trying to get me approved for Xeljanz. In the meantime, while my insurance and doctor bicker, I'm still in a flare. I understand; UC biologics are expensive! I realize that medical research and the process of just getting a new drug approved is an expensive process for the drug companies. But I'm beginning to wonder if a person in the US isn't better off with minimal insurance. THEN the drug companies will 'work with you' on the price. I'm sorry for another babble, but am just a wee bit frustrated by the medical care process. My gastro doctor is a really good one; and his office staff are working hard in my behalf. It's sad that good doctors prescribe the best medicine available for their patients; but their work is overruled by insurance companies. I'll just continue to use the regular meds prescribed and hope for the best. I HATE UC!!!

Thanks Partly...yup, totally denied it...home or hospital. BlueC/BlueS I hoping they'll approve Xeljanz, but I won't hold my breath. LOL I think they're trying to be rid of old people!!! ROFL

Has your insurance said what they want you to do (other than just suffer without treatment because that would be so much more affordable for them)? My insurance made me try Humira before I got to Entyvio. If Remicade had been working for you, Humira would probably be a good option since they are so similar.

Ugh, keep pushing, sometimes insurance companies need the letter rewritten, just a word or two, to get a drug approved. See if you can get someone helpful to critique the letter your doctor wrote for the medication approval.