momto2boys said...
my oldest is thinking of going into research for auto immune conditions so I can be "cured" some day. Or he might just design video games, he isn't sure yet;)
I chuckled at that too.
I don't really have much advice for you as I don't have kids and I never experienced it. But maybe someday you can sit down with them and show them with illustrations how the body works and how yours doesn't and why you need medication. I'm sure kids can take a lot more than we think.
I had my surgeries and I loved showing illustrations to friends and family to explain what they're doing so they can clearly picture it. Illustrations work for all ages ☺️