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I guess all good things come to an end :(

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Ulcerative Colitis
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Posted 6/2/2019 12:20 PM (GMT 0)
I haven’t been on here for quite a while because everything was going so well. I’ve been on Remicade and Aza for the last 5 years and no flares. This week my stomach was cramping a bit and lots of gas and this morning a bit of blood but no urgency. I really don’t want to go on pred. I will make an appointment next week with my GI. What other meds is there to try after Remicade? This really sucks sad
Posted 6/2/2019 12:42 PM (GMT 0)
Sorry to hear your symptoms are acting up again. First, everyone flares eventually and that doesn't necessarily mean your meds have failed you. Second, I'd get a c diff stool test to make sure it's not that. Third, get a blood test to check for anti-remicade antibodies and remicade concentration.

Your symptoms sound mild, so treating with mild meds, like reintroducing mesalamines might be enough. Or use a pred-alternative like entocort EC, Uceris, Buedisonide might be enough.
Posted 6/2/2019 1:54 PM (GMT 0)
Humira, entyvio, xeljanz are other options to name a few.

If you really don't want to go on pred you don't have to, as long as the symptoms are manageable - that means getting checked by a doctor and running the relevant blood and fecal tests ASAP to determine the cause of your symptoms.
Posted 6/2/2019 5:51 PM (GMT 0)
There are options. Try not to stress out. Just because you've had a few questionable days doesn't mean things will continue to be the way they are. Fingers crossed that you get better.
Posted 6/3/2019 4:54 AM (GMT 0)
Hi Cyn one time blood doesn't necessarily mean flare. I traveled and I had bloody poop I panicked and called the GI on call and he told me to wait. When I arrived at my destination I was sick for a few more days with some sort of stomach virus which then finally passed and I was OK again. So hopefully this is not a flare.
Posted 6/10/2019 3:58 PM (GMT 0)
little update:

last few days have been a bit weird. my symptoms are not really getting worse. saw a bit of bloody mucus on Friday and Saturday but never any loose stool. Sunday and today no symptoms at all not even a cramp. very weird.
Posted 6/10/2019 5:25 PM (GMT 0)
Could you try adding mesalamine or steroid enemas? Have you used those in the past? Sorry to hear your symptoms came back. I can only imagine how devastating that could feel after a 5-year remission.
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