HealingWell
Search Close Search
☰

Remicade Hair Loss

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 11/9/2019 9:42 AM (GMT 0)
Has anyone else experienced major hair loss on Remicade? After my first infusion I noticed larger amounts of hair falling out, especially during shampooing and styling. I now have bald patches on both sides of my hairline in the front. I was hoping Remicade would be my saving grace after Entyvio only lasted 4 months, but that doesn't seem to be the case. If this has happened to anyone, have you experienced hair loss with other Biologics as well? The hair loss is a big thing for me and is causing a lot of stress. Any input is helpful, thanks in advance!
Posted 11/10/2019 3:01 AM (GMT 0)
Hi. I don't have an answer to your question, but I was wondering what do you do since the prednisone is no longer effective for you? It's becoming less and less effective for me. Do you just suffer while waiting on biologics to hopefully work? I, too, was diagnosed at age 23. I'm sorry you're having to deal with this.
Posted 11/10/2019 12:38 PM (GMT 0)

Sara14 said...
Hi. I don't have an answer to your question, but I was wondering what do you do since the prednisone is no longer effective for you? It's becoming less and less effective for me. Do you just suffer while waiting on biologics to hopefully work? I, too, was diagnosed at age 23. I'm sorry you're having to deal with this.

Good question about the prednisone. I’m not sure what to do about it. I just noticed that the last 2 times I’ve been on it, it hasn’t really worked. I’ve been on it 4 separate times in the span of a year because I’ve been battling on and off flares since April 2018.
Posted 11/10/2019 12:57 PM (GMT 0)
We are in really similar situations. I've been battling a flare pretty much since May 2018, with a few brief periods of what I felt like was remission. Hopefully someone else chimes in to answer your original question.
Posted 11/10/2019 1:19 PM (GMT 0)

Sara14 said...
We are in really similar situations. I've been battling a flare pretty much since May 2018, with a few brief periods of what I felt like was remission. Hopefully someone else chimes in to answer your original question.

It’s been rough! I’m hoping the hair loss is a delayed response from being in a flare this August. I have bits of hair that are growing in different places on my scalp so I’m assuming I’m not going to go bald haha. It’s just super frustrating!
Posted 11/10/2019 1:43 PM (GMT 0)
From what I've read on the forum, my guess is that it's a delayed reaction from your flare. That would be frustrating for sure. It often feels like we just can't win with this disease!
Posted 11/10/2019 6:26 PM (GMT 0)
,Yes I have hair loss. It started on Lialda, and got worse on the Preds and later the Biologics. Not sure if there is anything we can do about it though.
Posted 11/11/2019 1:21 PM (GMT 0)
Sorry, I know hair loss and thinning hair is very troubling. The remicade is not causing your hair loss. Most likely the hair loss is a delayed reaction (about 3 months) from the worst of our flare and hair regrowth is a delayed reaction from recovery from our flare. Hair loss or thinning hair happens to those who are not on any medications for their UC. Hair loss happens to those that are on the anti-inflammatory mesalamines, the thiopurines (like 6mp/imuran), to those on biologics (like humira or enyvio) despite those medications having very different active and inactive ingredients, and despite them all having very different mechanisms of action. Here's a good watch for you:

Video 205 – Telogen effluvium (hair loss in IBD)
http://www.med.umich.edu/ibd/school/video205.html

Are you anemic, low in vitamin D, B12, or B (all things we are more prone to getting) as any of those can cause thinning hair? I would certainly get testing on the above, and address those problems if present. Heard some say that biotin-based shampoos help with hair regrowth and thicken hair.
✚ New Topic ✚ Reply