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Smelly loads of gas , last advice !

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Posted 12/20/2019 6:56 PM (GMT 0)
Hi guys , I am in a mild flare....can anyone tell me the reason for smelly gas which smells like rotten eggs? Can it be some food intolerance or is it something normal? I have proctitis.

Post Edited (GodLevel) : 1/8/2020 12:36:45 PM (GMT-7)

Posted 12/20/2019 11:52 PM (GMT 0)
I think the smelly gas is a byproduct of the inflammation. I have it with every flare. It should disappear once you get rid of the inflammation.
Posted 12/21/2019 7:36 AM (GMT 0)
Flaring, yes.
What meds are you on?
Are you taking probiotics?

q
Posted 12/21/2019 8:39 AM (GMT 0)
No probiotics ....I takeazathioprine 100 mg, 4800 mesacol , multivitamin daily.
Can I eat yogurt everyday for probiotic? Can it problem as it is also a dairy food?
Or should I add a good probiotic supplement for a month like vsl3 ?
One more thing, I feel cold or chills when release too much gas?
What is the reason , is it some anxiety or the gas is hot when in body?
Posted 12/21/2019 11:37 AM (GMT 0)
No, that smell is hydrogen sulfide, which is an indication for me that I am going to flare. It also indicates that the gut flora has shifted for worse.

STOP dairy, you can try good probiotic like Visbiome (VSL#3 is not the same as the old one anymore but Visbiome is old VSL#3). I personally load up on soluble fibers and increase the Sulfasalazine dose.
Posted 12/21/2019 6:04 PM (GMT 0)
GL...you have got VSL rx?
Why not on rectal meds?

q
Posted 12/21/2019 7:23 PM (GMT 0)
In india , any med can be taken over the counter no matter it requires rx or not. I hv also started mesalamine 500 mg suppository this week.
I think I should also start physlum husk/seeds as it is good for gut bacteria.
I checked visbiome , but its not available , any other good probiotic?
Posted 12/21/2019 9:21 PM (GMT 0)
It is dubious whether visbiome is any more effective than vsl#3, a few posters on here have even said they got sick after switching from vsl to visbiome.
There was a law suit against the makers of vsl after they changed the formulation but continued to make scientific claims based on proven results of the old formulation. The new one varies only in the Inactive ingredients and not the active ingredients. It's broadly like the difference between brand and generic versions of a drug.
Regardless, visbiome is not available everywhere; in Europe the equivalent is called vivvomixx.
I've said it before, your symptoms sound poorly managed and more than a mild case of colitis. You mentioned urgency and requiring diapers - I'd be surprised if mild proctitis can do that. Are you consulting with a doctor? UC is very difficult to navigate without an expert opinion to guide you - as well as making sure your blood and stool tests are up to date.
The number of cm inflammation is not fixed. I was diagnosed with pancolitis but I've had several scopes subsequently in which the inflammation was limited to the rectum and sigmoid colon only.

Post Edited (poopydoop) : 12/21/2019 2:26:00 PM (GMT-7)

Posted 12/22/2019 3:48 PM (GMT 0)
C-diff creates a foul smell too. Have you been tested for that? Of course that would only be necessary if you are having diarrhea.

Post Edited (C_G_K) : 12/22/2019 8:53:12 AM (GMT-7)

Posted 12/22/2019 4:03 PM (GMT 0)
Not yet tested for it. Yes I vave some diarrhea. Can c-diff be treated with probiotics?
How is c diff tested?

Post Edited (GodLevel) : 12/22/2019 9:08:30 AM (GMT-7)

Posted 12/22/2019 6:04 PM (GMT 0)
No, c diff. can't be treated with probiotics. It's treated with specific antibiotics (Flagyl, vancomycin or Dificid). It's tested via stool sample. You would most likely be severely ill if you had c diff. though. Have you been in touch with your doctor?
Posted 12/22/2019 6:25 PM (GMT 0)
For the dr --I am in his touch once every two months.
He is a very ignorant dr . He feels like the only reason for my illness is stress which I am taking about every possible thing happening in this globe. He never asked me to test for c diff or any other virus. He feels that the conventional medicines can cure my symptoms. Thats why I ask you people and convey the same to him...like my friend is GI and he advised me this that!

2nd thing - I am facing issues for the past 1-2 months. I feel more gas and bloating when at home , as compared to when I am out.
Posted 12/22/2019 6:39 PM (GMT 0)
Hmm, he does sound ignorant if he is blaming stress for your UC. Is it possible to switch doctors? I don't know what it's like in India. You would most likely be tied to the toilet, seeing a lot of blood and in a lot of pain if you had c diff. infection. It's probably just your UC. Doctors in the U.S. usually test for c diff. just to be on the safe side every time we start having flare-up symptoms.
Posted 12/22/2019 11:10 PM (GMT 0)
Well conventional medicines might cure your symptoms if you're on the right dose and they are the right drugs for you...have you have blood tests for 6MMP and 6TGN to test if the azathioprine is at a therapeutic (and safe) level? There are many other drugs available to treat UC these days beyond azathioprine but they are rather expensive and not sure how the health system works over there. You need to see an IBD specialist if you possibly can. Sounds like your current dr is not an expert in this area.
Posted 12/23/2019 7:12 PM (GMT 0)
I dont have bleeding issues and also have very mild pain. The main problem with me is smelly large amount of gas production and urgency.
And yes , I sometimes eat outside food , so maybe it can be the reason .
One more thing , my diet includes everything except dairy ( I eat cottage cheese sometimes ).
In india wheat is our staple food , so I can tolerate any type of flour or rice easily.
My GI says that I can eat whatever I want , he is mad.
2ns changing GI is not possible , so can you tell some med which has no or rare side effects that can kill the bad bacteria and promote good gut bacteria?
Tell me names of some very strong probiotics I will ask my GI to prescribe me....someone told that the new VSL 3 formula is not that effective....is that true?
Posted 12/23/2019 8:26 PM (GMT 0)

GodLevel said...
...someone told that the new VSL 3 formula is not that effective....is that true?


I would say that's not true
There was lawsuit by someone with a vendetta against the manufacturers of vsl, the manufacturers lost...just try it and see if it helps

Urgency is a sign of rectal inflammation
Posted 12/24/2019 7:33 PM (GMT 0)
It means too much proteobacteria. They're the ones that eat meat and then eat the blood that you bleed when you flare. When their numbers get too high, the other good bacteria that make butryrate start to die, and then you are left with too mich proteo and you flare.

When I start getting reeking gas I know I have maybe 2-3 weeks before flare hell starts. I usually start taking prebiotic fiber like guar gum, step up the anti-inflammatories, and cut back on meat.
Posted 12/24/2019 7:59 PM (GMT 0)
Those of us who don't eat meat have gas, too. Lol.
Posted 12/24/2019 8:11 PM (GMT 0)
It's not just meat, proteobacteria go for protein. If you eat too much protein that'll make it happen too because protein contains sulphur and that's why the gas reeks. I said meat because most ppl aren't veg and a lot of ppl eat too much meat anyway.
Posted 12/24/2019 11:24 PM (GMT 0)
What kind of meat and what is too much?
q
Posted 12/25/2019 6:48 PM (GMT 0)
Ok , I will start taking vsl 3 (112 billion cfu )capsule twice a day , will also add some more fruits and psyllum husk(pre biotic) to my diet . Will cut back on meat also for some time.
Currently , I hv only stopped dairy , I have never made a dairy or tested for the foods that may worsen my disease.
I think eggs can be , so will stop eating them , for a while.
Posted 12/25/2019 8:07 PM (GMT 0)
Maybe try other rectal meds?

q
Posted 12/27/2019 4:16 PM (GMT 0)
One thing I found is that if rectal mesalamine is not clearing up the inflammation, switching to a steroid enema temporarily can really help clear it up.
Posted 12/27/2019 6:00 PM (GMT 0)
Or use both...steroid during day and mesalamine during night.
q
Posted 12/28/2019 1:17 AM (GMT 0)
Quincy, I have used both at times, just like you said and had great success. I actually find the steroid enemas easier to retain, and can usually retain all day, as long as the overall flare isn't too extreme. I was looking back at old studies with steroid enemas, and many had remission rates over 70%, and that was probably before the widespread use of mesalamine as a concurrent treatment (in the 50's and 60's). It did mention that the average absorption rate is equivalent to about 10 mg of prednisone, so they can suppress your adrenals, and should only be used short term and then tapered ASAP.
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