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Rectal steroid foam?

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Ulcerative Colitis
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Posted 8/27/2007 8:34 PM (GMT 0)
Hey all...

Havent writen in a bit cuz Ive been sicker than a dog.  I finally tried eating very mild foods (ie. white rice, potatoes/no skin, unseasoned chicken, eggs, white bread, you get the picture) and I became very ill.  My mucos and blood output shot up and when I started to feel very queezy and sweaty I knew there was a quarter size nugget coming through.  I even tried actual organic baby food last night and holy hell am I paying for it today.  Anyways, I talked to one of my doctors this morning and he told me to go back to the liquid diet of Ensure and soup broths. (yee freakin haaa) I am still on Asacol 2 / 4 times a day and the doctor has now given me a prescription for a Cortezon Foam Enima to do once a day for 2 weeks.

Has anyone else tried these? Results? Side effects?  I tried seaching the sight but didnt have any luck.

Posted 8/27/2007 9:12 PM (GMT 0)
Cortifoam (10% steroid) is usually very helpful in reducing inflammation of the rectum. It shouldn't hurt you to use it for 7-10 days, then you will see whether it helps reduce urgency + no. of bms daily. Good luck! / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 X 3 Colazal daily for July flare in descending colon, which is responding)

Posted 8/27/2007 9:16 PM (GMT 0)
Yeah i take it daily. I have found it really helped me. No real side effects for me though. It does help ease the pain down there and decrease the urgency. I really hope this helps. I really sympathise with you in relation to your ongoing problems with food. I was really ill 2 years ago and i lost over 100lbs(i was a big guy) in weight because every food was causing me ridiculous pain and problems.
I hope you are taking a good food supplement like Vivioptal.I started eating small plain biscuits and corn snacks regularly( not really that healthy but they were very easy on my bowel) and then started adding bread very gradually and then pasta and rice. It took me a long time to add veg without problems and even longer before i could take A beer, but i did it.Meat was a big no-no.I still have problems with Vegetables like Potatos. Not a good problem when you live in Ireland.:) It is really important that you try and eat something evryday, i became really ill due to malnutrition and it wasn't nice.
Marty
Posted 8/27/2007 9:54 PM (GMT 0)
Thanks for the reply's people....its greatly apprecialted.

OLD HAT....My hat is off to you for being able to manage this for 30 years....I might be coming to you for more info if you dont mind.

FATBOYSLIM....When you say that you had to work your way through different foods slowly....How slow is slow? Did it take 1 month to get up to normal or 6 months? approx. What is Vivioptal? What are corn snacks? chips, nuts, candy?

By the way FATBOYSLIM...I checked out your myspace link.....Love the music. **applause**
Posted 8/27/2007 10:04 PM (GMT 0)
For me it took over a year.I could not eat any big meals without major pain. I survived on energy drinks, tea, coffee and biscuits. I am one of the few that coffee doesn't cause me problems.Corn snacks are crisps/chips that aren't made of potatoes. Vivioptal is probably the best multivitamin and food supplement pill on the market and its not expensive. When we aren't getting enough minerals from important that we are getting them from supplements.
Posted 8/28/2007 1:19 AM (GMT 0)
You'll likely have to use it for more then 2 weeks, that does not sound like it would be long enough especially if you're having alot of inflammation in the rectom.

:)
Posted 8/28/2007 2:12 AM (GMT 0)

I used to use it and it helped with the pain and the irritation.  I have not have that bad of a flare in a long time though.

Best of luck to you.

bob

Posted 8/28/2007 7:45 AM (GMT 0)
I find it does help me, sometimes have trouble keeping it in though, it comes straight back out if you get me!

If it stays in it does help, seems to have less side effects too.
Posted 8/28/2007 9:03 AM (GMT 0)
FosterDad

I haven't been visiting this forum for a while and just saw your post.

Since you have been diagnosed recently and you are having problem in finding the food that affects your IBD the least, I felt I had to tell you about my own expereince.

I have UC since 2002. about 18 months ago I found about the SCD (Specific Carbohydrate Diet), bought the book Breaking the Vicious Cycle, found it to make a lot of sense to me and decided to jump 100% into this diet (in fact the only way it may work) and about 6 months later I was better than ever and today I still am 100% comitted to the diet and strongly believing the diet has done more for me than any of the meds (that I still take, although in very small doses).

I don't know whether you have already heard about the SCD but if you have not and are interested I suggest you google SCD, or Breaking the Vicious Cycle and learn about it.

I know, if I was to eat now, rice, bread, potatoes, corn, I would flare immediately.

I hope my two cents may be of good use for you to heal.

bob59

Posted 8/28/2007 2:07 PM (GMT 0)
I have used Cortifoam (the foam not the enema) for 9 years and it does seem to help me control the symptoms.  However, I did try mesalamine enemas at one time, and they irritated my GI tract.  Originally, my disease was confined to 15 cms of the colon.  about 1.5 years ago, it progressed to pancolitis (the whole colon).  After much research on my own, I asked my doctor about trying Rifaxmin.  It is an FDA approved drug used for traveller's diarrhea and is in clinical trials for crohns and uc.  Google it and studies will pop up.  The drug has changed my life.  It got me off the prednisone. It is a non-systemic, antimicrobial antibiotic.  I have been on it since Jan and the longer I am on it, the better I get.  I take 400 mgs twice a day.  I still use Pentasa 500 mgs -4x's per day and the Cortifoam daily.  I am well controlled and functioning almost like a "normal" person.  BTW - Pentasa worked MUCH better for me than Asacol.  The doc kept increasing my dose and I kept getting worse.  It might be worth a try.  Good luck and keep us posted.
Posted 8/28/2007 2:39 PM (GMT 0)
FosterDad: I did better at managing UC after I found a gastroenterologist who subspecializes in treating IBD patients. A lot of GIs can mess patients up because they're obsessed with gall bladder function or such & do not really know much about the intestines. Recommend that you look at the Archive on Salix Pharmaceuticals Newsletter (.com). These articles have been written by subspecialist GIs (mine among them) & cover the topics most commonly problematic to IBD patients, including diet. Basically, I try to eat a balanced diet & avoid known irritants like food additives (dyes), butterfat, heavy spices, junk snacks overly salted or sugared, caffeine, & roughage like seeds & wheatberries. I do fine with lactose-free dairy & also soy products for calcium. I also take a dye-free multivitamin daily. Hope this info helps you out. UC can really be hard to deal with when one is newly diagnosed, but most patients can get a handle on it & improve their situation day-to-day. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 X 3 Colazal daily for July flare in descending colon, which is responding)

Posted 2/12/2013 3:02 AM (GMT 0)
has anyone used pramoxine-hydrocortisone (EPIFOAM) 1-1% foam? My doctor prescribed that for my rectal sigmoid inflammatin but it sounds like everyone is saying cortifoam is better?
Posted 2/12/2013 7:12 AM (GMT 0)
this is a 2007 thread....better to just ask your question via thread of your own.

q
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