My remission

Hi Dentinn

Why would you want to go onto pred if the other drugs you were on put you in remission?  Hopefully, they will do the same this time round and you wont have to use pred. I am steroid dependent now and If i were you, I would avoid it all costs!

Yes, proctitis is the same as UC but I believe it only affects the rectum area.

Its interesting you mention you think doxycyclene caused your UC.  Well guess what - I took Doxycyclene for an infection 7 years ago and it caused my first ever UC flare! Landed me in hospital for 4 weeks and I almost lost my colon.

Im still suffering now, cannot get into remission.  Doxycyclene is a product of Satan

A sulfasalazine dose of 500 mg 4x a day is considered to be a maintenance dose... a dose patients are put on indefinitely to maintain remission. Twice that dose, 1,000 mg 4x a day is a common therapeutic dose. I'd ask about increasing your sulfasalazine dose before trying pred or immunosuppresants. Sulfasalazine is relatively safe for long-term use in comparison with steroids and immunosuppresants.

Quincy - I just stopped using them.  Yeah I checked with my GI and he said it is not considered an IBD.  I guess I just don't understand what even the difference is then between ulcerative proctitis and just proctitis.  Aren't they the same symptoms?

Well I have bleeding so wouldn't that mean I have ulcers? No he does not know what caused it. The official diagnosis was non specific Mild Chrnic Proctitis. Like I said in an earlier post I think it was being on an antibiotic for 6 years. I'm wondering if I don't just have a bacterial infection that could be resolved with antibiotics. Im thinking I need a second opinion. In fact I would just like to get a whole new colonoscopy and start from the begining. Thanks for the link to the article, great read!

Bleeding can be coming from irritation in the rectal mucousa not necessarily from ulceration. But I think that if you're not happy with your doc or need more clarified answers then it never hurts to get a second opinion. I can tell you this though, when I was first diagnosed, I had only UP and slowly over the years it had progressed to left sided UC. The pain that I got from the UP was more intense then what I experience with a more advanced form. So I can sympathize with anyone that has either proctitis or UP.

dentinn..did the doctor do a swab to see if you have an infection? Recently, there's been a bit of information regarding Fusobacterium Varium...maybe discuss it with your doctor to see if you could have that happening.

q

Please, please try to use steroids as little as possible. I was steroid-dependent, on Prednisone for almost a year, then changed to Entocort (another steroid) because "it doesn't cause so many side effects." In addition to the usual weight gain in my face and abdomen, facial hair growth, thinning hair on my head, irritability and inability to sleep, I got the bad side effects. I got osteoporosis and broke both of the bones in my lower leg, developed diabetes and got a disease called anoxic necrosis in both shoulders (requiring two surgeries so far.) All of this was after four years on steroids, because before Remicade it was the only way my disease could be controlled enough for me to function.

For short term use to zap a flare, they're a miracle. For long-term use, they're from the devil.

ulcerative proctitis is ulcerative colitis.  no cure.

but....

Proctitis is a general clinical term for inflammation of the rectum. The proctitis that's cured as per your reading would not be of the ulcerative colitis form  from whatever...bacteria infection or sexually transmitted disease, etc....depending on what's actually going on.

Never assume, because from what I've read on this board in the 4 years...more than not have had their's spread to pancolitis...that's waaay beyond limited.

I will say the probability is because of ignoring symptoms and not being on the proper meds..both oral and rectal ...my opinion on that.

Never, ever, ever assume or take any stats for gospel. They just aren't true...because a state that's not in our favour doesn't do us any good.

quincy

 I have been dx with ulcerative proctitis 3 days ago and am freaking out.  My GI gave me cortiform & canasa suppositories and said he'd see me three months.  He acted like this life long chronic illness I now have is no big deal!  I am so depressed and feel terrorized by the thought of my future.  I have a demanding job, a beautiful, active 2 year old to raise and a husband that depends on me as well.  How am I going to be alright?  I am curious as to why I was not prescribed pills v.s suppositories?  My GI said that the ulceratice protitis ( which is the same as UC) was contained to my rectum 4- 5 inches so far.  I have no diarrhea, just blood and mucus in my stool.  So why do I have no appetite and am losing weight?  I am 5'6'' and down to 115lbs.  I normally weigh around 122-125lbs.  I have never had stomach or diagestive problems until july 2007 when I first notice the blood.  Can a person have UC for a longtime before the blood comes?

Hi maddi, welcome to healingwell. I know how overwhelming this all seems but you have come to the right place. Our docs don'thave this disease so they don't understand,, everyone here does. Chronic illness is a big deal no matter what your gi says. It will take time to get used to the idea that this will be a part of your life.

This disease is cyclical. There will be bad times and good times.

Your GI prescribed you suppositories instead of pills becuase since you have UP (ulcerative proctitis) the suppositories and foams can reach the area directly and be more affective. Pills would have to disolve into your system and very little would affect the bottom portion of your colon.

Look around the site and try the google search at the top. Post new threads for any questions you don't see answers for in the search. Take a deep breath. This will get easier

Hi maddi!

Yes, this disease can leave you feeling super embarassed, depressed, miserable, etc. However, now that you've found people who understand, it's not as hard! Nothing you can ask is going to be too much! Chances are - someone has asked it - or wanted to ask it - before.

I take Forvia for a multi-vitamin. It's specially formulated for IBDers. You can only order it online. If you google it, the site should come up.

Many people her also use a probiotic - there are several posts about them if you look through the forum.

Rectal meds aren't fun, but they really do work!

Hang in there!