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6 yo w/ uc

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Ulcerative Colitis
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Posted 11/5/2007 11:33 PM (GMT 0)
My 6 yo was diagnosed w/ a mild case of uc in March (still not 100% sure i believe diagnosis).  He was on pentassa but relapsed.  we tried 2 kinds of enemas before the gi put him on prednisone.  he was on a low dose of this for about 3 months w/ out a problem.  We introduced imuran about 7 weeks ago and stopped the prednison about 3 weeks ago.  The last blood test showed the imuran wasn't kicking in yet.  He's been fine since June.  How long til the prednison is out of his system?  i'm so nervous every time he goes #2. 

Does anyone know anything about the possible links to food allergies?   friend went to a ped conference and heard that research is being done but didn't have any other info.

thank you for any help you may throw my way

    

Posted 11/6/2007 12:55 AM (GMT 0)
I am so sorry about your little one. When my first kiddo was diagnosed, I didn't really believe it either. It wasn't until a big flare a year later that I finally accepted that he really had it. When my second child was diagnosed this Aug. I just wanted to lay down and die. I couldn't eat or sleep. I cried all the time.

For my kiddos there really doesn't seem to be a link to food that we can tell. My daughter is lactose intolerant, but even that doesn't really cause any problems for her (she's never been a milk drinker, but does fine with cheese and yogurt). I wonder about seasonal type allergies as my son flare every spring or summer of every year since he was diagnosed and in hind sight for a couple of years before he was diagnosed.

There is a site for parents of IBDers that is wonderful. Check it out at: http://www.dragonpack.com/ibdsupport/parents/ They are a great group with lots of experience!

Again, sorry about your little one!!
Posted 11/6/2007 12:59 AM (GMT 0)
Oh that is awful...I am so sorry! I couldn't imagine my little ones having this "crap" lol. I hope your baby gets feeling better SOON!
Posted 11/6/2007 2:47 AM (GMT 0)
So sorry, and I understand.  My daughter was 5 when she was diagnosed with UC.  You should think about putting your son on probiotics and extra calcium.  It sucks, I know.

Posted 11/6/2007 3:26 AM (GMT 0)
My son's UC, he's 8, isn't related to food. We tried SCD, we tried everything. During his several hospitalizations, the doctors had him on bowel rest, no food, just IV saline, and he was still out of control. He had subtotal colectomy 7/07 with ileostomy. We've preserved some of his rectum (1/3) in order to keep his sphincter muscles for possible j-pouch construction years from now. His UC was so severe he is not a good candidate at this time for j-pouch.

He still has UC in the remaining portion of his rectum. No food required. We have him on cortifoam, which we are hoping to reduce and vitamin e mixed with probiotic enema. It seems to be helping.

Probiotics worked well for my son, but only for a couple of months. They were a great couple of months though. Perhaps you might have better results. It was VSL #3, when mixed with yogurt, my son took it very well.

good luck, your in my prayers,

Jsmom
Posted 11/6/2007 4:08 AM (GMT 0)

Please have them do a blood test to check for celiac disease.  It is easy to live without gluten if you get a positive result on that test. 

hopeso

Posted 11/6/2007 3:00 PM (GMT 0)
Thank you for your replies. 

You see, my son doesn't seem to have uc the way some of you have described.  That's what is so confusing.  Aside from the initial onset, he's had one relapse that we now think was because we were opening the capsule of pentassa into peanut butter and it turned out he's very allergic.  The relapse came about 6 weeks of being on pentassa.  then pentassa was reintroduced while he was on prednison at 2 different times w/ the same negative results.  Other than that, nothing (thankfully).   He's never had  to miss a day of school and is very active.  I don't know if I am in denial or not. 

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