Harpo, are you taking Liada yet?

Harpo,

Did you start Liada yet? Last you wrote you were going to ask the doctor about this. I'm 35 days off meds still. I'm meet with my Natural Path on Monday next week, it will be 2 months and 2 weeks on his supplement protocol. Here's what I wish. I wish I had my own personal chef to make me gluten free and dairy free foods! Eating this way, does help my symptoms that's for sure. I actually have gluten free bread too that I eat. It's just hard to be diligent.

There's a spa in Ohio, 1 hour S. of Detroit called the Kerr House and I'm thinking of going there for a week. You do yogo every day and they serve food that is all natural, no preservatives. I just want to try for a week and see if my symptoms improve dramatically. I seem to go about one day of gluten/dairy free and then fall of the wagon. I do believe foods can irritate the symptoms.

Hope you're doing great.

 

Lialda is as worthless as the others for me. Did nothing for my symptoms, however, when I stopped it I got worse. Not sure exactly what caused it, but I plan to be off it in a few months.
Miracles, I have two SUPER great cookbooks called "Grain-Free Gourmet" and "Eat Well, Feel Well" both available on Amazon and at B&N. Granted you have to cook it all yourself, but you can make it in bulk and freeze it. It's the scd, so it's grain and dairy free. Really good food. Makes it all VERY doable! I was dying before I found them, and the first month I had them I gained a ton of weight!

A couple of things, one it's snowing here in northern michigan! Yikes it's too soon!

I'm going to a retreat where they cook your meals (5 night/6 day) all natural, no preservatives, colors or dyes. You can ask for gluten free and dairy free all week long. I want to see if diet has a lot to do with the symptoms. There's other accommadations as well. It's called the Kerr House and they only take 8 people at a time. It's suppose to be very theraputic. It's been in numerous magazines and on Good Morning America for being one of the top spas.

I'm noticing some symptoms now being off the medication. It's been a month, but you wrote (Harpo) you do seem to be worse when you get off the anti inflammatories and what, you hope that your body corrects itself? I hope so too. I met with my natural path on Monday so I will see what he recommends. Harpo what symptoms are you experiencing now? I'm a little freaked about the post where if you don't control the inflammation your at higher risk for colon cancer.

My friend who's been on pentasa for a year and half is now down to taking 2 pills a day per doctors order, still have long skinny stools and some urgency. So he's in what you call remission? I can't believe basically you never go back to normal fat dryish stools with no urgency? This sucks and I can't accept that. It's so funny and I post where I see my dog go poo, poo and I say "pookie, mommmy only wished she had a nice turd like that" He looks like, what lady...you're weird quit looking at my butt and give me some privacy!

 

about 30 days is when the effects of getting off the steroids kicked in for me. I think that's a good general number of when the snit will hit the fan. I was in remission for a year and a half and I had normal everything with no urgency. You CAN get back to that. Whether any of us WILL is another question. I'm so paranoid now though. I would get little tiny flares and it was no big deal so I didn't treat. This last time I got a minor one (not really little I guess) and thought it might pass so I didn't treat. It blew up on me litterally. I was sleeping on the bathroom floor b/c I was going every 5 min seriously. I couldn't have gotten to the emergency room if I'd wanted to.
And I totally do that (about the dog). Isn't that horrible? What's even more sad is that I get all depressed when I hear my hubby fart (which he does all the time). Wouldn't it be nice to be able to fart again and not have to worry about something else coming out? How depressing. I hope I can get back to that one day.
I'd go to a retreat like that if 1) I could afford it, and 2) I didn't have little kids that need 24 hour care. I REALLY wanted to go to a fasting ranch here near where I live and fast for about a month. No way with little kids though.
But I did do really well on that scd for a good long time. It's definately worth a try. I could eat anything on the diet, even fruit, all the time. Now I think I just can't eat. If I eat I get bloated and feel like I'm dying at night (but am fine during the day). If I don't eat much I seem to be better at night and have minimal bloating.

Have you guys been tested for gluten and lactose? I don't think I was ever tested for lactose (based on what this doc says the test is like), but I'm going to try and do it in another 2 months. My gluten came back at 20.07 (or 20.7 maybe) with 20 being the high end of the "normal" range. Not enough for me to flag it, but maybe enough to make it worse.

therearemiracles said...


So Harpo, you're not on meds what are your symptoms now?

A few traveling pains and a very little blood on the "wipe" Formed bm's though once a day.

Any blood still freaks me out....

I'm highly sensative the all medications and they give me bad aniexty, fear, panic attacks.

Harpo I'm glad you did what you had to do even if it's taking medication. I know how frustrating making that decision can be.

I'm almost 2 months off meds. I'm doing great. I'm not a 100%, I don't have all formed stools, but I truly feel I'm improving each week.

Thanks for keeping us informed, I was just thinking of you this morning! Seriously, I was wondering about you!