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Mouth problems with UC.

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Ulcerative Colitis
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Posted 12/16/2007 7:48 PM (GMT 0)
Hi, diagnosed a few weeks ago with Indeterminate Colitis, but 'they' seem sure it's UC. Anyhow, I'm still in my flare and notice that when I have a bad day, my mouth gets inflammed and sore, particularly the palette. Anyone else find this?
Posted 12/16/2007 7:52 PM (GMT 0)
Early in my flares,  I get bad canker sores all over my mouth,  until I"m on the prednisone.   The canker sores are so bad, it affects my glands as well,  my glands will get sore and swollen as well.   I was told its because of my UC.     But I'll tell ya,  it really sucks!!  Especially when I get them on my tongue!     So I feel for ya!!  
Posted 12/16/2007 7:57 PM (GMT 0)
I've had the same problem whenever I get tired/run down. My gums bleed, palette gets inflammed/sore as hell, get loads of 'tingling' feeling on one side (changes which side) of my head/face, sore throat, feel like total craqp, etc. It lasts for a few days and goes away. Had this for years, but now noticing it more with the UC. Felt crap when I woke up today, bleeding worse at toilet and palette inflammed thing!

When I was 21 (few years ago now!) I had a routine blood test which showed my neutrophil count at 0.2. I was rushed into hospital and they thought I had cyclic neutropenia, but it's very hard to diagnose.
Mentioned all this to my consulatnt in the hospital and he didn't seem interested.
Posted 12/16/2007 8:32 PM (GMT 0)
I have chronically inflamed gums. The dentist advised me in 1990s to get fanatic about flossing between teeth & using an interdental brush, + warm salt water and/or peroxide-mix rinse. "Think of flossing as a new hobby", he said. This works well for me, plus I get dental hygiene 3 times yearly instead of twice. It stopped the bleeding gums and restored stability to a loose premolar. I recommend this regimen heartily to reduce oral irritation + to save one's natural teeth in the long run. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily; seem to be back in remission)
Posted 12/16/2007 8:48 PM (GMT 0)
Thanks mate, but I've tried all that. I've had dozens of courses of Corsodyl (chlorhexidine), flossing, etc, etc over the last 13 years but it just comes back as soon as I get run down/tired every few weeks.
Posted 12/16/2007 11:32 PM (GMT 0)
What about your vitamin/mineral intake? That can have a big impact on fatigue, if you think these cycles are causing your mouth problems. Have you been checked for anemia, etc.? / Old Hat
Posted 12/17/2007 8:03 AM (GMT 0)
Ditto Christie. Mine gets so bad during flares that I have trouble eating.
Posted 12/18/2007 1:54 AM (GMT 0)
I have had mouth sores on a few occasions and my GI thinks it is UC/Chrones.  I never have been one to get canker sores, until diagnosed with UC.  I choose not to think about the Chrones aspect, as I don't know that I have any other symptoms.  However, he did prescribe a grainy ointment to put on the sores---it seems to help, although it is somewhat "gooky" to deal with.  It provides a barrier and reduces the soreness, as it always seems that I get a sore on my tongue right near my teeth!  Ask your doc!  Hope you feel better.  Those sores are just irritating on top of already dealing with the flare.  :)
Posted 12/19/2007 10:02 AM (GMT 0)
Seen consutlant yesterday and he has halved my pentasa dose as still having D and some bleeding. Also testing for Celiac deisase due to mouth problems. Anyone have both UC and celiac's?
Posted 12/19/2007 6:40 PM (GMT 0)

Oh yes I have them every few weeks or so also.  My gums swell up and my whole mouth feels it and I do get ulcers on my tongue and gums.  I also get the extreme fatigue coming on after that also.  Weird isn't it?  my GI didn't seemed surprised.

Stacy

Posted 12/20/2007 6:40 PM (GMT 0)
i had this. when my uc got to it's worst point (twice this year), my tongue became swollen and painful to the point where it was difficult to talk. i think this pretty much means things are not okay with your gut. in my case i was also found to have cytomegalovirus (CMV) in my gut. apparently this complicates UC symptoms, especially if you're on immunosuppressants (ie remicade and prednisone). I was given a course of antivirals, and as a result of a combo of things my recovery is much better than the first time around. another thing that helped the tongue swelling was getting off grains. i'm currently following the maker's diet. i also take two probiotics and some supplements. though I have minor setbacks here and there i am much better. for me this means no blood, and mostly no mucus (though occasionally if i do something wrong it will return), no urgency (again unless i do something wrong diet wise/med wise). i also went from having to take emergency steroids and remicade to only asacol/canasa.
Posted 12/20/2007 6:58 PM (GMT 0)
Taking a good probiotic daily (even in remission) aids with mouth sores...at least it does for me.

:)
Posted 12/21/2007 12:44 AM (GMT 0)
There are cases of UC and celiac. Not all that strange.

I find that when my body is out of balance my tongue will swell and then I get sores on that. I've found that Biotene mouthwash helps to heal them.

Good Luck!

Oh - I second a good probiotic - they help with many things!
Posted 12/21/2007 10:02 PM (GMT 0)
Try eating bananas. A doctor once told me that they get rid of ulcers in the mount. It works for me.

Joan
Posted 12/23/2007 7:43 AM (GMT 0)
I have had trouble with canker sores for years. I tried several different things and nothing worked. Until one day I decided to try chammoile ( I think that is  how to spell it) tea.

I just wet the teabag with a little warm water and put it on the sore, it especially works well if you catch it right when you feel it starting to form. I just hold the teabag on the sore for about 30 minutes several times a day.  That usually takes care of it, sometimes the sore will go away and not form at all, but for the times it does form, if you catch it right away there is almost no soreness at all.

Hope this works for you.

Cindy

Posted 12/23/2007 8:02 AM (GMT 0)
I drink chamomile tea everyday first thing in the morning it's the first thing that goes into me before any food or anything eles and it helps soothe the guts, it's a natural anti-inflammatory, so as long as you're not allergic to ragweed then chamomile is a great natural supplement for inflammation, I believe it's also an antifungal and antibacterial.

:)
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