State of confusion

I just need to talk this out with someone. Today was a bad day for me. I was a work and it was like I was in a fog all day long. People would talk to me and It was like I was not even hearing them. The whole time, I realized that this was happening to me. I am sure it is UC related. Does anyone else experience times like this? I just feel so dumb lately. Is there anything we can do about this?

Thanks for listening

Janice

I my gosh Janice, I've been experiencing the same thing the last few days, and along with it terrible joint pain. It's so awful when you have to keep your job up while feeling so poorly. Plus it's embarrassing to me because then I feel like people think I'm nuts while trying to explain it. I'm sorry this is happening, and all I can suggest is just try and sleep as much as you can until it disappears...at least that's what I do! Hope you feel better soon Janice.

As I see it hasn't been posted yet, let me just say the obligatory:

"It's just stress"

(Then I won't bother to define stress, leaving what I just said a paradox, wrapped in a riddle with an enigma and things such as that)

Ok, now that I'm done playing devil's advocate, I hear you 100%.  I have good and bad days, myself, but I have found even my ability to spell which I used to take pride in has gone to pieces among many examples.

I never thought about if it could be the medication.  I always blamed it on whatever disease process.  At any rate, all I take is Colazal.

Try to get proper sleep, yes, and follow your GIs instructions if they're a good doc and if not find another one.  And keep hope alive, things can get better.

Wishing you the best

Besides having frequency issues and this brain fog thing I don't know how people going through this can even keep their jobs let alone get new ones...it is so not easy having this DD and trying to work let alone live normally/functionally.

:)

Thanks to everyone for there replies. I am just glad I am not in this alone. All of my friends just look at me like I am an idiot. One even accused me of not listening to her and saying that I don't care about anyone but myself. I tried to explain about the meds and UC, but she didn't understand and just says i blame everything on this disease. This really hurt me, because if it is one thing i do is care about my friends. It is just they don't know what we go through.

Red, I think i might give the ginko i try. How long is it till you see results? Is there any side effects that i should be concerned with?
Thanks
Janice

I was always in a fog when I was in a bad flare. What with loss of blood, lack of sleep and steroids, some days it scared me just to drive. I'm better now, but I seem to have problems remembering names.

Good, one more thing to worry about. Is Alzheimer's autoimmune?


Just kidding.......I hope.

This brain fog can lead to being misunderstood for sure. People can read into it all kinds of WRONG conclusions; laziness, disinterest, boredom, incompetence, yes even selfishness.

Things like that about the disease make me feel like it is truly an ordeal. Even when I have a bad day at work and try to talk to people about it, I get the feeling everyone skips over what I'm saying and just thinks "Here he goes again, *****ing about the disease."

Sometimes I really feel that the best thing in the world is just to be understood. I am sometimes around people who try to judge the truth or validity of what you say based on your body language, emotional expression, behavior, etc. And I feel like saying, "Look, Sherlock Holmes, don't read into my overall presentation, just LISTEN TO MY WORDS, I have a traumatic process going on in my body, and yes I may have stuttered or came across as "low energy," but its not a comment on my mental status or attitude, or a prediction of the truth of my statement, I am just in poor health!

Don't forget; it is much easier for people, even our friends and family, to place the blame for our conditions directly on us. It is easier to say "that person can't manage stress," than it is to admit there are literally hundreds and thousands of mysterious frightening, debilitating medical conditions that may strike anyone and anytime. And to admit that medicine and science sometimes don't know what's wrong either. And to admit that sometimes sick people still have to get up in the morning and go to work...

In other words, I think people that do not understand or care to, are simply displaying a side of their human nature. Maybe only the sick can really know the differences between these two worlds or health and sickness. But no doubt, most of the hardship one has to carry around on one's own, with the exception of boards like this.

Bottom line is I've decided I don't do enough praying.

Apart from insensitivity of relatives, friends, and/or bosses & co-workers, there is the fact that modern life is complicated. There are so many chores one has to do. A neighbor of mine says that even her 85-yr-old father, a widower living in suburban house, is making himself lists of tasks which need to be done so as not to overlook something essential. This afternoon while I was on my way home from grocery shopping, the thought occurred to me that I should run into the public library branch to see if they have an income tax form I need. But no! I got distracted, went home, unpacked the groceries, & then realized that I still hadn't picked up the tax forms & the library would be closing in 10 minutes! (Sigh.) Well, another errand that will just have to wait a few more days ... / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

This is making me even madder at my doc for not giving me Azul - I NEVER had this tiredness or brain fog with it and I was taking alot more Pred than now. I know I was younger but I really believe Azul is better PLUS he won't give me the rectal meds I know I need. I'm having regular BM's but some tissue and light blood and rectal pain. And like doors12 says - I really want to find out what's causing this. I truly believe there's more to all of it than just and body attacking itself. That's my part of my prayers every day, to have a healing and learn more about this horrid thing to help others. I spend time every day doing research into inflamation, PH balance and all the relationships to UC and other autoimmune diseases. I'm so glad we have this forum to vent and share.