HealingWell
Search Close Search
☰

Tell me it will be okay, please...

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
1 2
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 3/13/2008 2:48 AM (GMT 0)
Thanks Sherry. That's what I had read about 6mp too, is that most people take it at night. When I asked my doctor he said it didn't matter that some people take it in the morning with the rest of their pills. So, I took my first one this morning. I'm starting with 50 Mgs. It sounds like based on my weight I will eventually go up to 75 Mgs, I think? I was definitely tired today, but I'm sure it had to do with me being awake at 3 am for 2 hours. So you think it would be better to take at night? Does it matter if it's not the same time every night? That's why I took it in the morning, because I'm pretty consistent about taking my meds within the same hour every morning and I'm sure to have breakfast too. Besides being tired what are the most common side effects?

Mel - I agree, each step is not always easy. If you read my very first post I was an emotional mess. It seemed like my world was ending. Fortunately, after a week of rest and feeling better I am able to think more clearly and I figured I might as well try this next step. I won't know what I'm missing out on if I don't try. I think giving self injectibles would be very hard, but to be honest one of the reasons why I started to be more optimistic is one of my best friends has been a diabetic since she was 9 years old. When I stop and think about everything she has had to endure, the blood tests, medication, insulin, etc...then I stopped and realized that I could certainly go get my blood levels tested every 3 months from taking 6mp. My friend is one of the most upbeat optimistic people you'll ever meet and I figured if she could live with a chronic disease and make a wonderful life for herself than I certainly can too. You hang it there too, and I hope Humira gets you to that next level too.
Posted 3/13/2008 10:19 AM (GMT 0)
You don't have to take it at night if you don't want to. If you start noticing side effects and you take it at night, you will sleep off most of them. In the beginning, I found that the fatigue and headaches were the worse of my side effects. Then came the slight nausea and mild hair loss. Are you going in for blood tests in a week? Usually when you start on 6mp you will have to have weekly blood tests to make sure your liver and pancreas are handling it fine. Once the doc knows that your body is doing good then the blood visits become less. My doc started me on 25mgs and then increased it to 50mgs after 2 weeks. I was on 50 mgs for about 6 months when he increased my mgs to 100mgs on Mondays and Thursdays and 50mgs for rest of the week because I was flaring and the prometheus metabolites test revealed that I was at the low end of metabolizing the med. So the increase helped with my flare. But with each increase I had to go back in for the weekly testing. Pain in the tush! But well worth it because this med gave me back my life.
Posted 3/13/2008 10:21 AM (GMT 0)
Forgot to mention, they start the mgs at weight dosing but tweak it based on how you metabolize the med. Like I said, I go from 50-100mgs and I'm 125lbs.
Posted 3/13/2008 12:47 PM (GMT 0)
Red, I spoke with my GI yesterday regarding my metabolite test. Last visit with her we discussed 6mp and she ordered labs to determine if I would be a candidate for 6mp, as she wanted me to start this drug if things did not improve. Luckily things have improved, so for the time being, 6mp is on hold. She did say that my metabolite level is a bit low, 13.6, norm is 15.1 - 26.4....But I could still try the 6mp if needed. Do you mind me asking what your level was? I'm curious about the cause of mine being low and will ask her about it at next visit.
✚ New Topic ✚ Reply
12