Just an update...HELP WITH QUESTIONS PLEASE!!!

Took off Friday and so I had three days in the bathroom and in bed. This is my first flare up since I was diagnosed in 2005. This sucks!!! I am going almost every hour and the "red" is not there much at all like last week and most mvmts. are light. I do have boughts where there's gas and boy that's can be a painful mvmt. (kinda feels like a hot dagger going through your tubes!) and then there's not much or the kind of mvmt. where you tense up your back is sore the rest of the day. JOY!



Well, I am eating basically a very, very bland diet of instant mashed potatoes, single serve mac and cheese w/o cheese, brown rice, Live active piece of cheese daily, jello, crackers, and that's pretty much it. I am not lactose intolerant but think I had a mvmt. after eating some cottage cheese. So, there goes that easy to digest food. Is there anything else I can include? I am calling the doctor today to see if he wants to call out the dreaded, evil, I HATE THE DRUG...PREDNISONE! Maybe, since there's not much if any "red" in the stool, this flare up isn't as bad as the last one and he won't put me on the same dosage. I think I was on 25 Mg. before and talk about the side effects!!! THAT WAS HELL!



So, do you get the side effects no matter what dosage of Prednisone you are on?

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What helps with the gas? Maybe it is the IBS which he said I have a little of. HELP!!!



Thanks. TAMMY

Post Edited By Moderator (tjf) : 3/24/2008 2:35:34 PM (GMT-6)

HEKELA...



Thanks for your reply. Ramen noodles, kinda like what I do with the single serve mac and cheese and just don't use the cheese but some spray butter of course. Good Idea. Just got a call from the doctor and yep, 40mg. of Prednisone, here we come! LOL : (



Got to get it soon! I just hope that it starts to work soon. Just have to say a prayer and wait it out. Love these flares!!!



What the heck is caprylic acid. WOW! That scares me just to hear about it. LOL



Congrats on the soon to be baby!!! Boy or Girl?

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Post Edited By Moderator (tjf) : 3/24/2008 2:35:08 PM (GMT-6)

Heh Taben - I am sorry to hear you having so much pain - it's a nightmare when you get that.
Just reading with what you are eating......thats alot of processed foods there....
But I am a believer in food here - so my experience when I used to get the pain - I backed off anything like that....
Quincy is right also - ask about the rectal meds since you are having so much pain.
But with food - I would stick to plain non acid foods....Toast - crackers - bland as food - not sure if you have it there (wherever here is) but I used to drink ALOE VERA juice also in the morning.
I do hope you get better soon....take care and keep safe.

Food will not heal it - but during flareup - I would watch what I eat so I don't aggrevate it anymore - it's working hard enough now dealing with the flareup, heavy glunkie foods sitting in there wont help.

You may want to be careful with the ramen noodles. If you check the labels on them, they're extremely high in both salt and fat. If you're having D., eating heavily salted food can contribute to dehydrating you. And the fat level means that they really aren't easily digested.

Hey guys...Well, the Prednisone is helping quite a bit and I haven't had the BAD mvmts. from hell like I did before.  Granted, they two larger ones are not a bed of roses but don't compare.  As far as what I have been eating, mashed potatoes w/some salt for flavor and light butter (not much at all, bananas, pasta w/some butter for taste, jello, crackers, brown rice, toast, popsicle maybe.  That's really about it.  I think it is a plain diet while on a flare.  Can we eat strawberries and pineapple or even applesauce?  I have all three of those items.

Quincy:

I don't want rectal meds!!!  LOL  Tushy sore enough and just don't want to deal with the mess.  Thanks for mentioning it though.  Will be calling the doctor today to let him know that the pred. has lessened the frequency and of course am still going but no where near as much.  Was on the same meds. as last time in 2005.  I appreciate you writing and all your tips and advice.  Unfortunately, we are all in this for the long haul forever!  : (

QUINCY...

Hmm? Will take your adivce and think about that.  I am still new to this and the rectal meds I have heard are very hard to deal with, messy and can make you have a mvmt. once again applying.  Don't know if that is really true but the thought of putting something where it shouldn't be especially when sore just isn't the best choice of action at the moment right now.  LOL

Yeah, I know, for life...TOTALLY SUCKS!

Hi Taben.

I do hope you are feeling a little better - we all know what you are going through.
I know people are going to jump on me with saying this - but I am concerned about what you are eating will you are going through this.
mashed potatoes w/some salt for flavor and light butter

Although soft and easy to prepare - it's full of preservatives and what ever else they put in instant mashed potatoes (dont think we have them here yet)  I wouldn't do it.

not much at all, bananas, pasta w/some butter for taste

A banana is good - as have potassium which u will be losing ( not sure if u have them there - the "little finger" ones are the best for it.....pasta again would stray from (more carbs) leave out the butter completely - I know for taste - but main thing is to make u feel better first.

jello - I assume this is "jelly" yes/no - if so - then fine - breaks down easily in the body.

crackers - plain as crackers with no topping - so no seasame seed ones - nothing.

brown rice - I wouldn't do the rice in big amounts - another carb - actually I just woudnt do it.

toast - if anything, if the only choice you have is between toast/pasta/crackers/rice - GO WITH THE TOAST - plain toast - put the banana ontop (crush it) add a little bit of sugar or cinamon ontop if you really have to have something with taste.

popsicle- Sorry (different countries throw me out) that would be like a ice-block?  Frozen liquid on a stick??? If so - yes - eat those - but only lemonade ones - nothing with colour.....this will keep fluids up to a point.

I fully understand how painful this all is - and like "quincy" said - small amounts every couple of hours.

When my stomach is like that - I pull back to the very basics - to allow it to settle - I remind myself (while all this is happening) my insides are raw and struggling - why would I want to add to the problem with putting certain foods in there, it's already working over time now.

I am not telling you off or anything like that Taben - and yes - everyone is different - but this is what I would do....So once again as you know - completely your choice.

FRUIT as in orange - apple (unless its cooked), strawberries - dont do - acid acid acid....

Banana's are fine but not like 5 per day.

Scrambled eggs - just think "light and fluffy" just for a couple of days...until it settles...

Ok I will stop waffling now...just worried that's all.

 

You would really be surprised how much the rectal meds can help. It may not seem to help much the first few times, and may be hard to retain. But, you will get better at them and see a vast improvement. I was kinda grossed out with them at first, butt...............it sure does help and I don't really give much thought to it now, I just do them. It's your choice, nobody can make it for you. We can all just tell you what has worked for us, and most of us have had UC a long time.............Good Luck!!