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Just want to say thanks!

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Ulcerative Colitis
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Posted 4/3/2008 1:43 PM (GMT 0)
Do you ever feel like you are totally going through this alone (and it's not even me, it's my son). The doctors start to act frustrated because nothing is working.  My mom says things like, "when I had this....." , even though I try to tell her she doesn't have this.  He finally joined a "facebook" group for teens with UC. I don't know how much he posts. I think right now he just reads alot.  Well, I just wanted to say thanks to everyone out there that reads and posts and supports and advises because you really get it and you really care even though none of us really knows each other.  THANKS!!!!!!!!
Posted 4/3/2008 1:52 PM (GMT 0)
UC is very much a disease of isolation and I think it's hardest on kids. No one wants to talk about or hear about bowel issues. Thank goodness for the internet! There was no internet when I was diagnosed so meeting people with UC was near impossible. Finally our small town started a CCFA meeting and I was able to meet other UCers and Crohn's sufferers. After 10 years of UC I finally met someone else with the disease, it was a blessing to be able to share and connect in a very open, honest, and supportive environment.

Sue
Posted 4/3/2008 2:12 PM (GMT 0)
I totally agree Sue! I had already had UC for about 12 years before I got the internet and found HW. I felt very isolated and thought that I was the only one. Uc can be so cruel to kids and teens but I feel it's very important for them to share their feelings with others that are going thru the same thing. Just so they know that no, they aren't alone in this fight. I think that with a proper support system that they will become stronger individuals then a normal healthy child/teen because if they can handle being sick - they can handle anything! :)
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