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is there ever a time when she will have a break from drs

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Ulcerative Colitis
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Posted 7/1/2008 7:46 PM (GMT 0)
do things ever settle to the point where my daughter might be able to go months without a dr?
i know everyone is different.
thanks
Posted 7/1/2008 8:01 PM (GMT 0)
Yes, if your daughter gets into remission she should not have to see a doctor for UC on a more than annual basis.

Sue
Posted 7/1/2008 8:02 PM (GMT 0)
Depending on the severity there should come a time where you can go a couple months without a doctor. I never thought there would be but I currently don't have to see anyone GI related until September. . . .that could change but right now I'm hopeful it will stay as it is.
Posted 7/1/2008 8:16 PM (GMT 0)
I see my GI every 6 months.
Posted 7/1/2008 9:24 PM (GMT 0)
There was one point where I didn't see my Gi for 5 yrs. I know this is wrong but i kinda missed him. He's really the only doc i've had that i really like, GI or otherwise. I'll now be seeing him every 8 weeks for remicade. Its nice, he makes sure that he is there everytime i get remicade so he can check on me. (well, not just me, he does this for all his remicade patience)
Posted 7/1/2008 9:28 PM (GMT 0)
I was diagnosed years ago by an "old school" dr. that placed me on azulfidine and tried rawasa which didn't work. The cramps got so bad that I called him one day to meet me in the ER. I was admitted for one week and placed on a Prednisone drip. I continued the Azulfidine and Prednisone Tabs for another couple of months which got me into remission. I didn't have to see a GI for another 7 years. So yes it can happen!!!
Posted 7/1/2008 9:36 PM (GMT 0)
Definitely! At first, it really seems like you're at the doctor every day, and sometimes it's like that when you're really flaring, but for the most part a lot of doctors really don't want to see us that often either! :) Usually if I'm doing well I'll see my GI at least twice a year and when I'm flaring it's more like once every three months or so for an actual visit but lots of phone calls and lab visits in between. Honestly, I wouldn't feel comfortable if I wasn't getting checked out at least once a year for a scope to make sure things are looking okay (meaning, non-cancerous). But I'm just paranoid I guess.
Posted 7/1/2008 10:31 PM (GMT 0)
Definitely. I haven't had to see a GI on any kind of regular basis for several years. But yes, when you're first learning to manage your disease and are flaring, it can seem like you live at the GI's office.

Posted 7/2/2008 1:10 AM (GMT 0)
I'm in Judilyn's camp-- 6 months between gastro visits. It gives me moral support & updates my gastro's records, feels right to keep in touch because this doctor saved me in times of crisis. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])
Posted 7/3/2008 1:53 AM (GMT 0)
thanks to all that replied- it's been a real rollercoaster ride since this began and i am her main support, no one understands what we are handling here, and "b" is a very responsible 19 year old, but this is too much for anyone at any age to go alone. tomorrow we await the results of the urine culture,see the gynocologist in the morning because she's not feeling right, and then off to the gastro in the afternoon. she had to tell her employer that she couldn't come in and of course they are not happy -it's a summer job- and believe it's because it's a holiday weekend.
she promised a drs note. i'm so worried that this will always be a pattern and one day when she no longer qualifies under our insurance i don't know what will happen if she isn't well enough to work and have her own insurance. insurance is costing more and more and we get back less and less.
thanks for listening
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