In the 1 percent of people with allergic reaction with mesalamine

Hi MamaDove,

How are you doing? Thank you for reading/responding to my post. I'm sorry to hear about your story as well. Oh man, I can't believe it took 12 years. I can't imagine, I was only on the Asacol for about a month, and look what it did to me. I thank you for telling your story. I'm sorry to hear about your permanent damage. It is just so scary to hear about what the drugs can possibly do. It's like the doctors were so stupid and naive. I was given Lialda as well, at the very beginning, my GI was pushing for it, and told me all his patients done very well on it... it sounded promising. I took it for about 2 days before I called him, because I felt like my throat was swelling up ( although I have bad anxiety, so maybe it was just all in my head).. he told me to stop taking it, and thats when he gave me Asacol to start. I was also on Levaquin, as well as Flagyl in the hospital. Why did you have the Levaquin? They gave it to me I think because they were so dumbfounded as to what was going on with me, they either thought I had menengitis or pneumonia. What did the Levaquin do to you? I'm sorry I'm just very curious since I was also given that in the hospital. What is LDN? I'm so new to all this, lol. Yeah, I don't trust the doctors/ big pharma either. It's hard to trust when the trust has been broken. Especially when your life has come in danger because of the meds. I feel like I have PTSD too from all that has happened. But it's so nice to have a forum here that we can all talk about our problems. It's theraputic. Thank you for your advice on nutrition and stool sample testing. I'll ask my GI doc when I see him next ( Aug. 5th). Hope everything goes well. I really like your attitude about everything you wrote. I completely agree about the doctors/ drug companies etc. I hope to find a more natural approach most deffinately. Thanks again

Hi pb4,

Thank you for reading and replying to my post. I'm sorry that you went through an allergic reaction as well. It's really a scary experience, and at times deadly. It seems like Predisone is the drug of choice when it comes to nothing else working, and especially after someone has an allergic reaction to the drugs. I am slowly decreasing it now, to 15mg. I don't like the stuff at all, with the side effects, and I know it's not good for your body to be on, but what are the alternatives? I really had no choice in the hospital, they pretty much put me on it before I knew what was going on, (since I was pretty much doped up), and you can't just get off it. Especially at the high dose they were probably giving me. I hope to get my medical records soon, to see what they gave me and did to me. It should really be interesting. As for your natural approaches, did you find anything that 's working well for you? If so, could you please share? I hope to go for a more holistic approach most deffinately.

Hi Beth75,

Thank you for replying. What is minimal change disease? I noticed on your medlist that you are taking Fosamax. I was on the fosamax also for a few years, but before this all happened, I stopped it. I'm only 25, and alot of people use to look at me like I was nuts when I told them I take fosamax, since you don't really seem to see younger people take it. Have you gotten strange comments? I got osteoprosis back a few years because I was so malnurished from my celiac disease, as well as depo-provera, and I pose all the signs of an osteoprosis canidate. I took it then, and a year later the bone scan said "osteopenia", so it did improve. I just wish I could do a more natural approach for the UC. It iwas my first flare, so I don't know what to really expect in the future, but I hope to God it's not like what I experienced. I also hope I can do without meds, since it's going to be a problem to be on them. I don't even know yet what foods will aggrivate it for me, or anything. I wish I knew more what was going on/what's going on with my body.

If you ever do end up on immune suppressants try not to worry too much. Just keep your hands clean and take vitamin C and stuff. I don't get sick more than usual, and I go to a school. Actually started taking it in high school. So I know it'd be scary for you but if the homeopathic thing fails and you don't want surgery, try it out.
Anyways if you try the natural route, I hope it works out for you!
Feel better

I know I'm responding to an old post but wanted to say that my son recently was rx'd Asacol and it caused pancreatitis overnight . He had been on Colazal but the GI doc didn't think it was working fast enough so started him on the Asacol. We were told that Jake cannot take anything w/ mesalamine...that includes both drugs.

I myself react horribly to all the 5ASA drugs- I think that if you include all those who are intolerant or get worse on those drugs it is much more than 15%. It certainly isnt 1%. I wish I could tolerate them but all they do is make my symptoms much worse.