I am getting all my ducks in a row and just requested copies of my medical records this am to go to the Chron's and Colitis Center in Boston. I will pick them up, make copies for myself and send them to C&C.
I don't know why it has taken me so long, but I really feel like right now with everything that is going on it is key for me to go. I am sending my Kidney records along with them, since some of the meds to treat me are the same and my primary care records too. I did not think they needed my OB/GYN ones.......
I hope I get there in time before my Doc's want to switch me to Cellcept from Imuran b/c timing wise, I would like to ask them first and also don't want to put Cellcept on hold a couple of months if I have to.........just want to get on w/my life.
What do y'all think of staying on a 5 to 10mg of pred for an additional few months to keep me from flaring? I will discuss w/my Doc's of course but just in case, there really is no guarantee and if I can avoid a flare on a low dose of pred then to me what the heck is a few more months????