New here~ new diagnosis~ bleeding for 14 months

In August I began to bleed heavily, much worse than a menstrual cycle. I called the doctor and pretty much begged them to give me another scope. He actually told me that with my good scope last year he wouldn't do another on me for 5 years.  I kept telling him something was not right.  They did a sigmoidscope that week and could only check a few centimeters because the ulceration was so severe.

I am actually with a new doctor now. The biopsies came back as UC/Crohn's. I am not sure why they named them both. I am having an endoscopy done next week, as well as another colonscopy. They are looking to see how far the disease is.

I have had non stop pain in my stomach since August. I am hoping it has to do with the steroids. I am scared to eat because the pain and bloating gets worse after I eat for about 4-5 hours.

As far as tests they gave me a CT test with contrast and barium. I am not sure what the CT test would show as far as this disease goes. They said it looked positive.

I also did the breathe test looking for bacteria, which was negative.

I am down to 30 prednisone a day now, but noticed I am having more bm's now.

I am a little confused, discouraged, the pain really can get me down.

Sometimes I take benedryl to help me to sleep at night.  Other than that I am on Lialda. I was on suppositories, but they said I could probably stop them.

So there is my story. Thank you everyone who has posted here and shared your stories. I am trying to educate myself, and it helps to see other people have lives with this.

     I've had ulcerative proctitis for ten years.  My last flare started in April of this year and I am still flaring.  Oh, I've had some good days but few and far between.  I was hospitalized for ten days in May.  The worse thing is, I believe I am now prednisone dependant.  The doctors had me on 40 mgm IV in the hospital and when I got home had a slooooow taper.  Finally got off the pred but short lived in August, maybe a week and a half.  Another thing....I never stopped bleeding either.  Some days I bleed worse than others.  Went back on the pred in late August, slow taper again.  This time off it for two weeks and now my symptoms are back with a vengence.  Today my GI doctor put me back on 40 mgm again.  I hate this as I have high blood pressure and my blood pressure skyrockets on prednisone.  Called the heart doctor today and in addition to my two blood pressure meds he prescribed a diuretic.

     My present meds are, in addition to the pred.,  9 Colazal a day, 50 mgm of 6MP, Cort enemas alternate nights with Canasa suppositories.   I also take a probiotic, multivitamin (today started one with iron because of the bleeding), flaxseed oil capsule, calcium.....plus the blood pressure meds.  Oh, and because the prednisone plays havoc with the upper intestinal tract...doc prescribed Nexium.  Oh joy!  I have to actually write down my meds for fear of missing one or taking too much of another.

     I don't know what was the matter with the first GI you saw, but I would classify him/her as being pretty much incompetent.  Reminds me of the first GI I saw.  Ten years ago, before being diagnosed, I was really in bad shape.  I had lost 15 lbs in less than a month, everything I ate came right out of me and I was bleeding profusely from the rectum.  He did a sigmoidoscope in his office and said eveything looked OK!!  That night my husband had to take me to the ER and I remained in the hospital eight days.  Thank God I was seen by a competent GI when in the hospital!  Sorry this is so lengthy.  Good luck and you will get a lot of advice from this forum.