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Like to discuss MORNINGS!!

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Ulcerative Colitis
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Posted 10/10/2008 3:48 PM (GMT 0)
Way before being dx'd with UC I had "spells" of waking up early morning - usually between 4 and 6 - sick!  Nauseated, cramping, sweating, sometimes bad, sometimes not too bad.  I took pepto bismal for nausea and Imoidum for D.  Then I had my gallbladder out (it had to go) but did not stop these spells - just tamed them a bit.

I KNOW mornings are worse for most those with UC.  Is there anything - including remission - that will stop these terrible mornings.  I am 68 and need my rest and sometimes need to get out of the house earlier than noon.  I am now taking one Lialda mornings and one Canasa at night.  I am so sensitive to medication - even this seems like too much.  However, the bleeding is less and stool seems more normal.

Ok - does everyone here have bad mornings.  I am happy it is only mornings right now. But usually makes the whole day crappy when it is worse in the morning.

I have seriously bad knees that need replacing and wanted to get into remission before surgery.  This morning about 8 a.m. I said (and I meant it) - I would trade never having surgery - putting up with the knee pain - the rest of my life if the morning sickness would go away!

Thanks for reading - had to get it off my chest!  We planned on going out today but will have to "wait and see" if I feel good enough! YUCK!

ElaineNY

Posted 10/10/2008 5:12 PM (GMT 0)
That sounds really awful.  Have you told your doc about how sick you get in the morning?  Could something else be going besides the UC making you ill? 

I am healing from a flare right now, but my bowels wake me up too, but all I get is cramping.  I don't experience any of the other stuff except for when I'm actually going to the bathroom and that was only when I was at my worst. 

Remember that old army commercial about their soldiers doing more before 7am than most people do all day -- I think there should be one for people with IBD....we poop more before 7am than most people poop all week.  sorry.....

Posted 10/10/2008 6:11 PM (GMT 0)
Now that I'm in remission, I no longer experience the terrible mornings. I go once or twice without urgency and I'm off to work or whatever needs doing.

I'm curious... have you been tested for celiac disease?
Posted 10/10/2008 8:09 PM (GMT 0)

Yes, tested negative for celiac.  Two doctors thought I was having anxiety problems - taking Xanax for that and it helps a lot but not the morning nausea!

Another thought gallbladder (it is gone).  Does not seem to matter what I eat the night before.  AND - it never happens during the daytime - always early morning before 7 a.m. or so on empty stomach.  I also had an endoscopy and I don't have a stomach ulcer (that was my thought)  By the way, when I have this nausea/sweating/sometimes chills I DO NOT HAVE UC symptoms - no cramping, no urgency - that all comes later and pretty normal after breakfast.  Oh- and when I get up and eat a little something - toast, coffee, peppermint tea, etc. I get to feeling much better.

ElaineNY

Posted 10/10/2008 10:26 PM (GMT 0)
Glad you clarified that you have none of the usual UC symptoms when you have these bouts. That IS very odd. Could it be a blood sugar issue?
Posted 10/10/2008 10:32 PM (GMT 0)
My mornings are pretty miserable as well. I rarely wake up feeling rested and well. More often than not I wake up nauseated.

Elaine, have you tried eating a little something before bed? A couple of crackers? I wonder if it is a stomach acid issue.
Posted 10/10/2008 10:33 PM (GMT 0)
My mornings were sick mornings until just recently. Sweats, 4am D, nausea..

TOok me a while to get used to al the meds, and the doc prescribed me phenegran for the times I get really nauseous. Remicade has been a godsend. Everything has changed now.

I really hope you feel better Elaine. I mean that.
Posted 10/10/2008 10:36 PM (GMT 0)
I am in what I consider remission, for me (no blood or mucous or cramping, but a lot of BMs) but my mornings SUCK. From 5 am to about 7 am it's one trip to the bathroom after another, I feel a bit nauseated. This is just about daily for me. The rest of the day is usually fine, although I can't eat a thing until about 10 or later or I feel very nauseated.
Posted 10/10/2008 11:26 PM (GMT 0)

Thanks for all the info.  I do eat a snack at night before I go to bed.  I do think it is UC connected even though I had it years before be diagnosed (but worse before I had my gall bladder removed).

The thing is I see some of you take 3 or 4 Lialda and I am taking one a day and getting side effects.  Also, only one Canasa before bed.  I do believe these meds are working but sooo slowly. 

I am sorry others have morning problems but happy I am not alone.

ElaineNY

Posted 10/11/2008 7:04 AM (GMT 0)
I have attacks just like this every once in awhile--it included 2 hours of sitting on the toilet with the strangest BMs.
I'm not too sure how to control them or what causes them but for me not eating a lot before bed helps. Also, limiting fat/oil/grease has helped. I'm also grazing throughout the day with one large meal. Doing all this has decreased my attacks.
Posted 10/11/2008 10:50 AM (GMT 0)
Though I don't suffer from nausea and sweats, my gut pain is by far the worst in the early early morning. Most likely for me it is that I take all or most of my pred in the morning, so it's simple decay of the pred effect. But even in those periods where I have been off pred, it seems that 4 am period is the peak of pain and suffering for me and it often drops off a bit once my body's natural adrenaline kicks in.
Posted 10/12/2008 8:18 AM (GMT 0)
I'd also just like to add that testing negative for Celiac isn't necessarily correct. Best way to determine it is to go on a gluten free diet for 2-3 weeks and then add it back. My test came back negative but I can not eat gluten at all.
Posted 10/12/2008 9:14 AM (GMT 0)
For those of us past the child rearing years, I thought we were done w/ morning sickness! Yes, I wake up most morning nauseated and wondering how long it will take before I am ready to start my day. I am blessed in that I only work 2 days a week. This is one crazy disease that's for sure.

Gigi1227
Posted 10/12/2008 3:37 PM (GMT 0)

Just always happy to know I am not alone - although I wish we all could be cured!!

This morning it was about 4 a.m. - awake until about 7 and then slept until 10.  Xanax saves me as it helps me sleep.  Just hate groggy mornings.  However, I do believe my UC is improving - that is what really counts - if I can live through the medication side efffects LOL!!

ElaineNY

Posted 10/12/2008 4:28 PM (GMT 0)
I didn't realize until my pet-less friend suggested it, but I'm a light sleeper and my two cats are apparently waking me up at night. As soon as I start to wake my gut spasms and I have to go quick, when I'm flaring. Also, my lawn sprinklers were set to go off then, and that might have been waking me up.
I can't bear the thought of locking my cats out of the bedroom because there is nothing more calming to me than a soft, warm kitty curled up by my side (and they would probably howl all night),
but these things might be the culprit for others.
Posted 10/12/2008 5:03 PM (GMT 0)

I know what you say about the kitty.  We can't have any now (used to) because of my husband's lungs - but we have Penny, our loveable poodle/shizu mix. 

I have to get up about 4 times in the night because of overactive bladder (have tried ALL the medications for that) but luckily I have not had any BM's at night since I stopped eating much late at night AND taking probiotics.  However, when I wake up around 3 or 4 I start sweating/chills sometimes and nausea.  Sometimes I can get back to sleep soon - other times I fight it. If I got up and became active I am sure I would have cramps and BM's in the night.  I take Pepto bismal if I really have to.  Lately, it has been better so maybe the UC getting better is helping - I HOPE!!

Right now I am determined to "hang in there" with side effects to go into remission - not fun or easy - but trying!

ElaineNY

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