Hi. I am new.

Hello all.

Not sure where to start, I will keep it short. about 3 years ago i got a pionidal sinus at the base of my spine. Had it operated on four times as some of the roots were not removed in the first op. Too cut a long story short in January of this year i had a fistula removed from my colon. I have suffered with D and pain for about two years. I thought and was told this fistula was part of the sinus i had.

Anyway in July this year i asked my consultant for a MRI scan as I felt the fistula was back. MRi scan came back as it was. I then was given a colonoscopy And told about 9 weeks ago i have Chronic colitis. The Consultant put me on Mesalazine 800mg 3 times aday. I didn't really ask many questions as it was a bit of a shock.

I Went back into hospital 4 weeks ago to have the fistula treated, but it disappeared? I have alot of scaring in my colon. I have Seen my consultant today. I asked more and what colitis i have.

He has told me thats its inbetween ulcerative colitis and chrones. He called it Chronic non specific colitis???

I have to keep taking the mesalazine and he has now prescribed me Predfoam enemas. He is also referring me to a Specialist who deals with Colitis and chrones.

I am going to start a food diary and see what i can and can't tolerate in foods.

I know it will be a long process.

Can anyone help me ? Has anyone heard of Chronic non specific colitis?

I have been looking, but i cannot seem to find anything.

Thank you.

I'm really sorry to hear about all you've been going through, and then getting dx'ed with colitis/crohn's on top of that. Keep taking your meds as prescribed, and let your doctor know about any changes in how you're feeling. For many of us, it takes some trial and error before we find the medication that is best for us, and unless we keep our doc informed, it can make the process really difficult.

Keeping the food diary is probably the second best thing that you can do for yourself (after taking your meds). I used to think to myself that I could keep track of things in my head just fine, and did for a while. Then one day I started writing things down, and it became evident early on that my brain wasn't as good of an organizer or rememberer as I had previously thought. Having things on paper helped me out in identifying not only foods that weren't good for me, but I also kept track of meds/supplements, and I learned a great deal about what wasn't having any effect.

When you have questions, feel free to post them here at HW. Even if you think it weird or that no one else will understand what you are talking about, you'd be surprised the stuff that gets discussed around here. LOL.

Thank you for your responses.

I have alot of reading to do on here. I will take a look at the resources at the top and check out the site. Just glad I have found this place.

As for the meds, I will not stop taking them, sometimes i forget to take one. But as its early days I will soon get into the routine I am sure. I have started to carry some in my handbag at all times just in case.

The food diary i am going to start tomorrow. I am also going to look at taking probiotics and a good multi vit.
I have to be careful though as i have a severe allergy to seafood and shellfish.

Anyway. Looking forward to contributing if i can.

Thank you all again.

Blues,

I have a major seafood/shellfish allergy as well. I get a reaction even if someone cooks fish around me. So far I've been able to take every med that has come my way...that includes fish oils! I was really hesitant before trying fish oil, but no allergic reaction. The first time I tried it, I took one in the morning on a day that I had no responsibilities, just in case there was a bad reaction, but nothing happened. I've avoided Cod liver oils, but I'm just being cautious I guess. Fish oil also didn't help me any, except giving me fishy burps, but others swear by it. I'm trying a flax seed oil omega 3-6-9 pill right now. Be smart though, keep reading every label, and if you aren't sure, avoid it.

Pb4.
Thank you. Your post has made alot of sense to me. When I had my colonoscopy( which has been the most painful thing i have experienced!), they did take quite alot of biopsies. My consultant sent me a letter saying my colon looked healthy, so he thought I had just IBS, But when i went to see him, The results were back and most of the inflammation was in the layers of my colon.

So pleased I have found this site. Its nice to know That there is people who know what they are taling about. My consultant is good, and he admitted yesterday, He does not know alot about it. That is why he is referring me. I guess I have been very lucky so far with the medical profession with this.

Just waiting now to see when i get to see this new guy.

Thank you again.

colitisblues :)

I hope that whom ever you're being referred to will have a greater understanding of IBD, I know it can get confusing and it's not always easy to DX a patient but it annoys me that there are docs out there that do NOT look for the obvious before they make a DX. So many have been DX with UC only to find out they infact have crohn's instead and it's like being punched in the stomach yet again for those patients I'm sure....the good news (if you can call it that) is the same meds used to treat UC are also used to treat crohn's colitis as well (and your member name doesn't have to change either), not trying to make light of your situation, but if we don't laugh sometimes then we'd cry a lot more, and we don't want that.

Here is a link of the 5 sub-types of crohn's (the names of the specific areas crohn's most commonly affects)....

http://www.ehealthmd.com/library/crohnsdisease/CD_types.html

Hang in there and keep us posted.

:)