does it ever get better

ok as some of you know that i have been talking with i have been flaring for awhile now. i'm still feeling pretty lousy,the cramping has stopped other then when i smoke a cigerette. but in the mornings i still have that urgency,cramping, and mushy stool. i'm still on pred. i'm sick of taking it i feel as if it should be working better. he has me on pred. way longer this time 60mg x1 week,40mg x1 week, 20mg x1 week. still cant get any other meds out of him. i started at 138lbs. before this flare. i'm down to 122 lbs. i'm starting to get scared about the weight loss. i'm run down no energy,and no appetite.god does it ever get better? and i cant seem to understand why smoking would make me cramp,as it helped me before to get to remission. does anyone have any suggestions to wehy that would be?

The rate at which he is tapering the pred seems awfully fast to me. I despise pred (though I am pred dependent for now), but if you come off it too fast you end up re-flaring to the extent that your overall pred consumption increases. I can't tell you how slow to taper but off the top of my head, 10 mg a week seems awfully fast. Maybe wait 2 weeks or half the reduction rate to 5 a week, or do both.

yes prednisone is the only thing that he has me on other then acetate 25mg rectal suppository that doesnt help at all.i'm also starting to hurt down low like i'm going to start me monthly but it isnt anywhere time for that yet. i've also noticed everytime i taper the joint problem comes back and that is severe. so i'm scared i dont want to taper. but has anyone else lost weight like this?

Until you get your GI appt, try taking a digestive enzyme with your meals to break down your food items into more managable nutrients your body can absorb. Also, chewable multivitamins and protein shakes will help with the body's nutritional intake and easy on the colon. The shakes really help when you have no appetite cause you can chug them and gain a significant amount of protein for body repair.

I lived off this for awhile and keep weight loss to a min. while my flare went away. I am not offering advice here and this is only what helped for me.

Lactose-free protein shake ~25grams (ensure works well too but is $), 1 gram L-glutamine, 1/2 banana, 1tsp metamucil, chewable multivitamin, 50 billion bifidus + acidophillus probiotic.
I would toss this meal in between my other meals to add extra nutrition even when I wasn't hungry.

Here's where I do give advice: Have you been keeping a food diary? Add the foods that agree with you and skip the ones that don't. Eat more of the "comfort" foods to get more nutrition while being easier on your guts.